Print

Please login or register.
1 Hour 1 Day 1 Week 1 Month Forever
Login with username, password and session length

[CLKD]

He has had 5 scans and 2 MRIs so far.  Symptomatically he has a disease but it hasn't been found ......... often cancers don't show up until post mortem.  They live 2 hours drive away so can't do much ........... maybe 'draining of Life's blood' is a Jewish saying  ........... he was getting older and more frail but now is determined but his body won't follow.

[Trey]

CLKD, can you order something they like to eat, special treat or nice cards or offer a half day of help so your mum could get away?  Don't know how ill so hope these suggestions not inappropriate.

You are too thoughtful so I know you have not blown a chance to help in your own way. 

Sorry

[CLKD]

Mum has a fridge and freezer stocked with food stuffs and her friend is nil by mouth at present, as the pain relief upset his gut.  Pain relief is by patches only until tomorrow.  She will ring at 9.15 a.m. as usual - her parting words were "I don't want to ring until Monday unless anything drastic happens" but I know she'll be on the 'phone to local 'friends' for hours about it all.  Another sign of control  .  Hey ho, what I don't know ...........

I need to clear our house in case she wants to stay after this is all over.  So busy sorting C.mas/birthday gifts which are stored in the spare room, searching for wrapping paper and cards .......... they can go into the loft until required, out of sight out of mind.  In case ..........

[limpy]

CLKD - would it help to contact any of her friends? They may have some ideas about what she wants, and what might help.
Also, look after yourself, don't get exhausted  clearing your house. Though, I imagine your house is far tidier than mine.

[CLKD]

Tidy - moi  - we go to auctions, sales, are selling 'stuff' .........

Her friends are in touch daily and too far away for me to 'interfere'.  Whilst she wishes to remain independant ..... she will be adrift once he has died and the funeral is over 

[flushtered]

Your mum will need you after it's all over if not just now and you'll be there for her then - not a lot you can do at the moment.  You take care, could be a busy time ahead.

[CLKD]

Yep Flushtered - think that's how the next few weeks will be 

[honeybun]

Sorry to read this CLKD.

Can your sister help if she is closer to them than you are?

Take care.

Honeyb
x

[CLKD]

My sister is MILES away ........... patient is still nil by mouth  .......... GP and Nurse going in 1/2 a day.

[honeybun]

Has your mum got the hospice nurses going in yet or is it too soon. They are angels and can help with so many things.

If he is still not allowed to eat how is he getting any nourishment. That will be needed to stop him going down hill even faster.

Honeyb
x

[Taz2]

Did you know he was ill CLKD or did your mum want to shield you from it?  I agree with honeyb that the sooner you get the hospice involved the better. Nil by mouth seems very harsh if he is being nursed at home. It seems such a shame that he seems to have been given up on re diagnosis.

Taz x

[CLKD]

He's been 'ill' for years but well in himself.  This is something different and sometimes diagnosis can only be made after death.  No hospice care in the area but the GP/Nurse seem to be doing their best. 

[Trey]

I have sent you a note.

[CLKD]

Got it 

Mum's friend had relatives visit on Sunday which helped them through the day.  GP and Nurse went in twice ysterday.  They have another set of visitors booked for tomorrow  ........... he is lucid and even shares dry humour at times.  It's the worry about constant pain which gets him down the most.  I know how that feels 

He wasn't keen on having a hospital bed downstairs and it would mean a mountain of moving furniture for Mum but at least it has been offered.  As quickly as being delivered today  - I suggested they get it in so that they can use it if necessary .......... 

[honeybun]

How about Macmillan or Marie Curie nurses then CLKD.

How do they know it is terminal if they cant say what it is......bit confusing really.

I hope you are feeling better CLKD....anything like that in a family is very stressful.

Honeyb
x