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[Fuzzwhizzer]

I was referred by my doctor to Gynaecology on 19th August under the ‘Urgent 2 week pathway’, after erratic periods and a 9mm lining. Scan detected 31mm cyst on right ovary a simple clear fluid filled cyst. I received a letter that said it might be longer and only contact them if nothing heard by 16th September. The NHS APP said it could be anything up to a 24 week wait! That would take me to February. I actually didn’t phone them until today. They told me it could be a 58 week wait! That’s more than a year! Gulp. How is that urgent I’m very confused! She said she’d put me in the short notice cancellations list, which I agreed to. I’m going to try and book a private consultation I think, then let them know to take me off the list so it frees a space for the next person. The stress is giving me mental pain as well as the body pains.

[bombsh3ll]

I can understand what you are going through - I had a very similar experience recently with dermatology, the NHS appointment took over a year to come through after being referred urgently with a suspicious mole.

However I think a similar thing has happened here - you have had imaging with benign findings and have subsequently been down-triaged on the back of this.

If your scan had shown anything sinister you would have remained in the urgent lane and probably been seen and had further imaging/biopsy by now.

In my case the photographs sent by the GP had been reviewed by the dermatologist and I had been taken off the melanoma pathway - which would have been nice to be told, but still!

[CLKD]

It's disgusting and a letter to your MP, copy to the Health Minister if he/she stays in post long enough?

What they don't take into consideration is the stress of waiting plus the fact that there will be waiting times due to staff shortages, holidays, strikes .........

[Fuzzwhizzer]

Ooh I’m hoping it is because of the original findings, but yes CLKD, my stress has been building over the weeks, because the original pains were in spring and it took me that long to get anywhere at the docs originally. It’s all a worrying state of affairs for everyone these days. I never ever wants to be a fussbudget but the weeks pass us by week in week out and the panic simmers gradually as we all know. Concentrating on life can be quite hard when it’s all you can focus on.

[CLKD]

U be a fussbudget all you like ! 

[Fuzzwhizzer]

Thanks! I’ve managed to book something gynae at Spire for this coming Wednesday so here’s hoping it’ll be useful xx

[CLKD]

Take a list and do be aware that gynaecologists aren't always au fait with anything menopausal 

[bombsh3ll]

Glad you have an appointment.

I would also phone your GP in the meantime and make sure you have had a CA125 blood test.

[Fuzzwhizzer]

Yes I had that one it was all good had it in July. The nurse practitioner sent me for that one first and foremost. I’ll try and cover everything with this lady gynaecologist on Wednesday fingers crossed.

[Jules]

Don't remove yourself from the NHS list though. If you need treatment, unless you can pay, you'll need to go back via the NHS and you don't want to have to be referred again. . Regarding skin referrals, it's correct that they've now prioritised melanomas and downgraded others like basal cell cancer. My sister was told there was a year wait to see a consultant because her basal cell cancer was slow growing. It was on her face. If she'd waited that long her surgery which she paid for including graft would have been even more disfiguring. It's because there are so many skin cancers and not enough skin consultants and surgeons.

[Mummytron]

A year for urology for me! Absolutely rubbish 

[Jules]

A year for urology for me! Absolutely rubbish 

It's shocking. I would advise anybody who feels it's urgent to keep checking for cancellations. I've been referred for endoscopy. Just had a text. If you've not heard by November 18th blah blah....The waiting makes you feel worse doesn't it.

[Fuzzwhizzer]

Yes it’s all crazy these days. My husband had a basal cell carcinoma he had to wait six months to get it looked at and a further year to get it removed.

I had my private gynaecology appointment today. She was a lovely knowledgable lady. We talked everything through and went over things, (a lot of the stuff she was describing I already knew as I’d learned it from you lot in here!) She said she didn’t think I had anything serious and was likely still in perimenopause. Then she said she could try and do a biopsy there and then, just to be on the safe side. ( I wilted somewhat!) she is a very nice and friendly lady. I went for it. It was quite uncomfortable, but I did my best to be as relaxed as possible. Unfortunately the strange configuration of my uterus made it nigh on impossible to get anything. She used several different sized implements, but as my uterus doesn’t line up she had to clamp it and try and move it. It wasn’t too bad by this stage and I was having a mini celebration thinking YAY nearly over. But nope. She said it was just too risky to persevere as she might damage something. She said it would be better to do it under a G.A.as then she can feed it up a wider tube and it would be safer. I nearly cried. I’ve never been put under in my entire life and I’m petrified. I’m sitting at home now after a shower with my cup of tea feeling very sorry for myself and berating myself for being a jessie. She’ll send me the appointment in the post and we can use our insurance hopefully. She also offered to shove in a mirena coil but I’m not sure about that. It might mean doing it again sometime argh. The perils we get to ‘enjoy.’

[Fuzzwhizzer]

Ooh and forgot to say did another CA125 blood test there today and she’s getting me to do a repeat ultrasound in three months to check on the simple cyst.

[Northerngirl]

Fuzzwhizzer, just wanted to say you are definitely not a Jessie after what you've been through today you deserve a cup of tea (at least😂)
It wasn't your fault the procedure couldn't go ahead and it is better and safer for you she stopped and wants to do it under GA. Something very similar happened to me in 2023 and I felt like you ,I just wanted it to be done there and then as I'd been on the 2w wait and couldn't take much more anxiety. I had previously had GA's before  but was still petrified at the prospect of another. It all went well eventually and I had my hysteroscopy/biopsy 6 weeks later.
Stay strong, you will get through it . Let us know