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[CrispyChick]

Scampi, I don't think you need to wait for period, but it won't give u immediate contraceptive protection if you don't (least of all our worries I know).

I'll just make a straight switch when I get it. Hopefully later this week. Ended up with full blown migraine last night. Had to take a triptan. Today, it's on the edge and I feel a bit nauseous. I know I can't live like this...

[RebJT]

Morning ladies

Gilla and Floo, wanted to ask about testing.  Is the Rhythm test the saliva one over several days?  Iv'e done that years ago and no doctor would take it seriously, said unless it was serum, no point doing it, is there another test we can do over several days, did you buy a bundle Floo and if so which one?

Thanks

Reb

[RebJT]

Sorry, just seen you answered and I left the window open, walked the dog and clicked 'post' without checking!

Annoyingly gynae has sent me a script for Zoely, but I'd been chasing to speak to her, I fear I'm getting the brush off (usually happens eventually, nobody knows what to do with me!) and had hoped to talk this through, maybe she's busy and i'll get a reply to my plaintive cries for help next week.  So yikes, that's going in a drawer for a bit until I'm more stable.  I still haven't quite figured out the logic of giving histamine sensitive women estrogen yet, I get to suppress, but not sure how we're meant to get enough on board for it to do its job without flushing myself down the loo before that happens ... This week has been the worst its ever been in terms of ramped up jitters, I'm still vibrating now.

Better for a long walk, some outside jobs on the yard, and meditation - also put relationships tussles with boyf's ex in loving brackets and parked that for the time being, he'll just have to wait, can't stay employed, upright, and function at all AND get sucked into someone else's drama, got enough of my own!!

Hear you Crispy, I'm considering chucking in the towel on hormones for a bit and going back to 7 doses of utro, alternate nights, second half of my cycle and just sucking it up for a bit ... I'm feeling battle weary after the last 18 months of up and down (it's the good patches that kill me, I'm used to feeling shite, it's the patches where I think I'm finally free of it that just destroy me when I crash).

xx

[Floo36]

Hi Reb,

I went to m local Nuffield it’s only a few minutes away, it cost me £31 each time but still cheaper than finger prick tests you can get online. 

[RebJT]

Hi Floo

OMG that's cheap as chips, I'm going to call mine, they are twenty minutes away, I'd love to have prog and oestrogen on good days and bad days and 'vibrating' days!  I think I'm also going to do a four point cortisol test with my func med, might do two, one on a good day and one on a bad day, need some sleuthing.

Thanks ever much, I was braced for hideous costs but that's not bad.

Thanks

[Scampidoodle]

Thanks Floo for confirming about the Eloine to be taken continuously. I did wonder. Hope everyone has managed to get through the day ok xx

[RebJT]

Morning

Just checking in as you ladies are helping me hold onto my sanity, and I literally have no one else who gets what this is like.  Now on day 12 of DefCon4 symptoms.  The internal distress and buzzing has come down a bit but I'm still absolutely flooded with histamine, and feel ramped up to the moon.  I am now angry my gynae has just sent me a script electronically and not engaged with me, I have been in bed for a week!!! This trial and error is killing me!  I need proper help! etc  That clinic must have had two grand out of me in fees, I think the least I'm worth is a bloomin' chat before anyone tells me to put exogenous estrogen in my system again, or indeed a hormone infused piece of plastic in my uterus!

Anyway, I am at utter exhaustion, it's the kind of exhaustion you feel when you've had the flu, but I'm up and trying to work early so I can clock off early and sleep.  I slept for eight hours last night as I added in another mast cell stabiliser I remembered I'd got - rupatidine - which seems to have taken the edge off a bit.  My plan is regroup and settle my system.  I've booked some cranial sacral therapy later, I need to soothe my poor old nervous system, and I have my somatic session at 11am.  I honestly feel like a hand grenade has gone off in my nervous system, I'm scared I'll end up with M.E.

Keep bursting into tears as starting to worry there aren't any answers.  But hoping this is just the hormone crash.  Bit crampy, really hoping I get a withdrawal bleed as that should press the reset button.

Keep up the good fight ladies, watching with interest how you all get on,

Reb
x

[Scampidoodle]

I’m glad you got a bit more sleep at the very least Reb. I hope the therapies todsy help to soothe the system a little.

I know what you mean about feeling unsupervised with it, you want someone invested in your care don’t you not going it alone when you feel this bad.

Wish I had the answer x

[RebJT]

Hey

Jumping on the Eloine train, finally spoke to gynae.  Interestingly histamine sends your adrenaline up, so that answers that question.  Will fill in details tomorrow, but for now I'll be trying on day 1 period, three to four months with no breaks, and seeing how I go.  Meanwhile woman on a mission to empty my histamine bucket!

Reb
x

[Gilla999]

Good luck with the Eloine Reb, I really hope it works for you. I've had another 3 or 4 nights with zero sleep and night sweats - same old crap, and off work again. Today I had cramps in the early hours of the morning too, which is exactly what happened the last two episodes, so I know there is something hormonal going on when this happens, it's just so frustrating not understanding what. I am hoping beyond hope that it's still my body adjusting to the Pill. Going to speak to a gynae in a couple of weeks' time too. Feeling really down with it all.

Crispy hope you're doing ok xx

[CrispyChick]

Awww Gilla, that's awful. So, so, frustrating!!!

On the plus side, as I move further on with this microgynon trial, things are defo settling down. That's nearly 11 weeks on it. It really must take time. Just think I had the ragey for 8 full weeks... Before anything changed. I was positively happy yesterday. So you defo nerd the full 3 months...

Still getting the nose / head pressure unfortunately. It is more intermittent. I called yesterday and my gp has put prescription for eloine through. So really pleased about that. I'll go get it... Then decide... I know the drop in estrogen will affect me.

How was the colonoscopy??? I had one in my 20s...😬.

[Gilla999]

It's so lovely to hear you're feeling a bit more positive! It just goes to show how long it takes for side effects to subside. Good news on the Eloine - at least if you have it then you can make the decision. I do think it's worth investigating if the nose thing could be something else (at least just to rule it out). If you're getting migraines that's obviously not good or manageable though xx

Colonoscopy was fine - they don't know what's wrong (and I'm not celiac). I am sure that it is caused by the Pill as it literally started at exactly the same time. I suspect it's something to do with the water retention the Pill causes. They'll refer me to a dietician anyway. On its own it wouldn't be enough to stop me taking it anyway... I just wish the original problems would stop happening. In a way being woken by stomach cramps and needing to take painkillers is oddly reassuring because at least I know there is actually something going on. I have wondered if I could be making it "worse" by not taking a break since December... not sure of that logic, just a thought 

Looking forward to speaking to the gynae soon and seeing what her take is... so lovely to hear you had a good day yesterday xx

[Scampidoodle]

Really good news crispy I do hope things continue well for you!

Gilla your symptoms must so be hormonally influenced. Is it always the week pre period you experience the sleep and night sweat issues?

I haven’t started Eloine yet just as I’m on steroids for my hives and antibiotics currently so want to be off those so I know what’s what when I start Eloine. Too many variables at present! X

[CrispyChick]

Yay. My Eloine is waiting at pharmacy for me. I must say, despite not being able to help me, my GP is lovely. I did all this as a special request online.

I probably made it sound like I'm a lot better than I am 🤣🤣. I just felt a bit cheerier yesterday. First time in a long time.

I've had the nose thing investigated and I'm waiting on surgery. But I think the combined pill amplifies it and brings it on... With headaches too. I'll see where I go over the next week. I'm not going to rush to change.

So glad you found the colonoscopy OK. Worst thing I've ever had 🤣. It does sound connected.

I'm pretty sure a lot of my random intermittent symptoms are hormonal. I get indigestion sometimes. Had it really bad whilst on the mini pill. I get hair pain on and off. There seems to be no rhyme or reason, but I'm pretty sure now the only thing that can help balance is the pill.

I not that when floo mentioned being in eloine, it only masked for a while... I guess as, we get more into meno, not everything will be masked.

Could you try sleeping tablets for the week when this starts gilla???

Scampi, good luck starting eloine when you do. Keep in touch. I might end up swapping at the same time. And now Reb has eloine too...

[Gilla999]

Scampi before I started the Pill back in December my symptoms (middle of the night insomnia and night sweats) were ALWAYS in the week before my period... and then it grew to be the two weeks before. From Day 1 to day 14 I never had any problems, ever. Ever! And it took me a year to even make the connection regarding the timing, it wasn't like I was "anticipating" it. Since starting the Pill it has obviously been impossible to tie it cyclically to anything (I'm not taking any breaks in packs) but when the bouts of insomnia and night sweats are accompanied by period pain then I know there is something hormonal still going on. I just wish I knew what it was so I could stop the misery!

Crispy I have tried every single prescription sleeping pill out there. Zopiclone, diazepam, everything. I'm still on Mirtazapine (an antidepressant) specifically for the insomnia when all this started, but when I have these bouts, none of them work. Whatever goes on hormonally to mess up my sleep it is very strong (and I think probably once it happens a psychological element comes into play to make it worse too).

Ahh i know you're not out of the woods Crispy! It was just nice to hear one of us have a good day... although I take the fact that Madame O hasn't been here in a long time as a really positive sign too 

I've had septoplasty before - is that the surgery you're waiting on? They also made my sinuses bigger - forgotten what that part was called x