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[edelweiss]

Hello ladies hope you are well this BH Sunday.

I hope you won't mind if I write down how I am feeling. It helps a bit.

HRT doesn't work for me anymore. I'm told I've developed an acquired resistance to estrogen.

I've zero appetite for food & drink and total insomnia (haven't felt sleepy or hungry/thirsty once in 4 months). I have constant loud intrusive tinnitus, dizziness, anxiety, tremor, dry and burning mouth, aches, pins & needles, numbness in arms and legs, body shape changing, and VA. Can't concentrate, think or see straight. As you can imagine I'm feeling very low.

There's no pleasure left in life - from food, sex, sleep.

It doesn't feel possible to feel this bad and yet I do - all day every day.

Top consultants (all the famous names), different HRTs, ADs, propranolol, etc have not made one jot of difference. Acupuncture, diet, herbal meds - nothing helped.

Is there anything I've missed?
Can this go away one day?

Any words of hope would be so welcome. I have a life I would otherwise love and a husband I adore. But I can't feel the joy in it all. I can't even believe this is happening to me.

Thanks for reading. Sorry to moan. I hope everyone reading finds balance, contentment and happiness after all their difficulties are over. X

[Tempest]

Hi, Edelweiss!

This is why I'm currently seeing an Endocrinologist and have just had an ACTH Stimulation Test to check my adrenal function. I've posted quite a few things about my struggles if you want to take a look.

I understand exactly how you feel!

Hugs,

Tempest xxxx

[CLKD]

Make a list and take to your Practice Nurse ?  Do you have thyroid problems?  Maybe see an Endocronologist for advice.

The dizziness and anxiety may be because you are under-nourished, anxiety LOVES a person with low blood sugar when the body is hungry  because it can get a grip! 

Oestrogen is a 'natural' hormone so how can you have an acquired resistance  - is your body making any of it's own?  I'm sure that someone will be along with advice.

[jorainbow]

Hi edelweis - I'm sorry to hear you feel so rubbish. I have many of those symptoms but the tongue one I mentioned to the specialist i saw and she said it could be dehydration and/or low iron. I'm just about to start HRT so my journey is just beginning. I hope you get some answers and feel better soon xx

[Mbrown001]

Have you considered using a low dose AD.

That just might help a little bit and some ADs can help with flushes.

Mrs Brown

[Tempest]

Mrs Brown, Edelweiss says she's tried several AD's too.

CLKD, it's possible to not be able to tolerate HRT if something else is 'off' in your endocrine system. The thyroid is the major culprit but rarely it can be the adrenals or a pituitary problem.

The very first place to look though is plain old anxiety. You're perfectly right on that one!

[Elizabethrose]

edelweiss, I too didn't want to read and run. You didn't mention seeing an endo which was my first thought like Tempest. Where are you in peri or meno?

Please don't apologise for feeling lousy and sharing here. That's what we are all here for and happy to help each other whenever we can. If it gives you some relief off load all you can! 

[edelweiss]

Thank you all lovely ladies so much for your replies and for your suggestions of help.
Good luck Jorainbow - when it works it's brilliant!

Yes I've seen a top endocrinologist. My thyroid levels are fine, tho I've Hashimoto's (treated 15 years).
And I'm eating properly because i make myself eat. It all just tastes like cardboard.
I believe every symptom I have is because of lack of estrogen effect.

I'll post another explanation i received. I think it's interesting and plausible.

Thank you again xxx

[dangermouse]

Sorry you're having such a hard time too. Do you know how many months/years you are post meno?

[Tempest]

Did the endo. check adrenal function, Edelweiss? I'd be interested to read the other explanation you have too. xxxx

[edelweiss]

Hi dangermouse, I'm not sure about how many years post meno. I was just starting to have longer cycles when I started HRT 4.5 years ago. And I haven't had a real period since. All suppressed as far as I could tell.

Thanks Tempest re adrenals. Was it your endo suggested this test to you?

My endo is at v expensive Harley St hospital, top job. But was very dismissive when I suggested my problems were lack of estrogen effect. He said not - anxiety & depression. This was when I was trying to figure out what was happening, as I was using HRT, but had all these weird symptoms. it wasn't until got VA and body fat redistribution that I clicked it was meno-related. As far as I am aware anxiety & depression doesn't cause your ladybits to shrink and go numb!!!

I take no pleasure at all in being right, but turns out I was!

[edelweiss]

p.s. Tempest, I don't think I can PM you yet cos i haven't made enough posts. Can you pm me, I wonder? Be lovely to chat. xxx

[CLKD]

See another endo. then  .  If anyone is dismissive 

Tnx Tempest - hormones are such a mystery sometimes >sigh<

edelweiss - maybe another thread but what's in your diet day-by-day?  As a recovering anorexic (from age 3) there are days/weeks when I haven't been able to eat at all  and food/drink can 'stick' and taste of nothing at all .........

[Tempest]

Most certainly, Edelweiss.

As soon as I have access to my I -pad, I'll drop you a note. PM's are nigh impossible on my phone! xxxx

[edelweiss]

My diet is (and has always been) mainly porridge, nuts, seeds, salads, veg, fruit, lean white meat or fish. No alcohol. No choc. No sugar. I've always been healthy. Doesn't matter what I eat now it all tastes the same - metallic and/or tasteless. GRIM. I used to love food and cooking.