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Author Topic: Just fading away  (Read 13758 times)

Konijntje

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Re: Just fading away
« Reply #45 on: November 09, 2025, 09:24:01 AM »

Just a thought, since you’ve only started to get symptoms of low E recently and you no longer get suppressed on 1 cerazette and get low E symptoms on 2. Would 2 cerazette and then adding back in some E again be an option? I know you’ve tried this before, but things have shifted now for you with your hormone levels it seems, so might be worth a new try? I’m hesitant to suggest it, because you are feeling so poorly right now, but if you are considering trying things again, maybe this should be in the option list?

If you do go this route, I highly recommend trying lenzetto for E, because I find that is most stable delivery for me. Surprisingly enough (because up until I listened to the podcast from this week, I just thought it was just me and my skin) it was mentioned in the podcast that lenzetto has the E level curve with the least spikes and lows from all delivery routes. (I’m very sensitive to fluctuations myself and even with the gel I seem to get them a bit too much, so I might ask to go back on lenzetto + 1 pump of gel if I keep feeling these fluctuations. They might just be my own fluctuations, because I switched progestins).
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CrispyChick

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Re: Just fading away
« Reply #46 on: November 09, 2025, 10:28:12 AM »

Thank you kon.

I only wish I could. That was my initial thoughts - take double cerazette then add in E.

But alas, my body doesn't tolerate add back. I get extreme stomach pain and nose pressure migraines. Possibly MCAS reactions.

I just tolerate nothing. Except progestins. But even the first 6 weeks of cerazette, I was very reactive.

I'm trying to hold out. Be ause change is not my friend. But when my own body keeps changing...

Thank you for the info on lenzetto. I'll bare that in mind if I'm.ever able to try E again. Xx
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CrispyChick

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Re: Just fading away
« Reply #47 on: November 09, 2025, 11:58:00 AM »

I'm having these massive stressy meltdowns. Totally overwhelmed constantly. Cant cope with anything.

Is this part of peri symptoms?

I can't tolerate and AD meds to help. They make me worse!

No hope.
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AmandaJR

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Re: Just fading away
« Reply #48 on: November 09, 2025, 01:03:02 PM »

I'm having these massive stressy meltdowns. Totally overwhelmed constantly. Cant cope with anything.

Yes, that’s exactly what I was like. Thought I was having a nervous breakdown as there was no rationale.
Are you getting good sleep?
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CrispyChick

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Re: Just fading away
« Reply #49 on: November 09, 2025, 02:05:35 PM »

Oh ok. So what do u do about it? I'm losing it over everything. Feel like I'm having a breakdown.

And that's before mentioning all my hideous symptoms.
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AmandaJR

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Re: Just fading away
« Reply #50 on: November 09, 2025, 03:08:24 PM »

I was prescribed 2 pumps of Oestrogel and 100mg Utrogestan. It was early lockdown and face to face GP appointments weren’t available thankfully as I wasn’t capable of driving or seeing anybody. I responded quickly to Estrogen and the feeling of utter terror/anxiety/insanity subsided so I knew it was hormone related. Other symptoms took longer.

I expected HRT to make me feel poisoned because all forms of hormone birth control had made me so ill, pregnancy was horrific (every minute of it) so i really didn’t think HRT would help.

Can you see your GP tomorrow?

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CrispyChick

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Re: Just fading away
« Reply #51 on: November 09, 2025, 04:33:36 PM »

Oh 😞

No. No point fir me. I can't tolerate hrt. I just cant.

Sigh. X
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dangermouse

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Re: Just fading away
« Reply #52 on: November 09, 2025, 05:44:59 PM »

Yes Crispy, this is the anxiety part I think you said wasn’t affecting you before, where you had more physical symptoms. However, it is what I call a physical anxiety as it’s not thought driven and is the brain reacting to volatility and, perhaps, the dwindling egg supply. It’s a potential alarm to make you take action to continue to pro create!

You can calm some of the adrenaline spike symptoms by lowering cortisol with the amino acid phosphatidylserine.
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ToriiJ

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Re: Just fading away
« Reply #53 on: November 09, 2025, 05:54:43 PM »

Oh Crispy I can feel your desperation. I am in that space too.

I feel like I’ve tried everything. I’m about 4 years post meno and the last couple of years have been the worst of my life. Shows how different we all are as so many people feel so much calmer post meno.

My symptoms are mainly the severe depression and now the nausea seems to come paired with it too. Urgh I dunno, I wish I could put across how much I wish I could help you, how I wish we could all help each other, this is so unfair.

I am thinking of you and sorry I can’t help.
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Mary G

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Re: Just fading away
« Reply #54 on: November 09, 2025, 06:05:45 PM »

Crispy, you have mentioned feeling migrainey and having a sinus type migraine feeling so I would continue to explore that despite the neurologist saying you don't have migraines.
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CrispyChick

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Re: Just fading away
« Reply #55 on: November 09, 2025, 06:20:18 PM »

Thank you ladies.

So so many symptoms. Still feeling hideously ill with poison, dizzy and nausea and completely off my food. Now so much overwhelm - I cannot cope with anything. Definitely feel like I'm having a mental breakdown on top of the physical.

I feel so hopeless. I want to give up. No idea where this is headed. This month has been one of the worst ever.

Not sure how to keep going really.  :(

But thank you all for your kind words. X
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dangermouse

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Re: Just fading away
« Reply #56 on: November 09, 2025, 07:47:41 PM »

Oh Crispy, I would just stop the Cerazette as you may be too tipped towards progesterone dominance. As much as prog has been my only hormone friend throughout this hell, it can cause depression and suicidal thoughts when it becomes too dominant.

I would leave all the hormones alone and go down your other routes you have arranged to support your own hormonal fluctuations.
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Tressym

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Re: Just fading away
« Reply #57 on: November 09, 2025, 09:11:29 PM »

Crispy, I actually joined this forum to try to connect with you. I’d come across some of your posts during some desperate internet searching about ‘estrogen dominance’ and other twists and turns in your journey and felt like ARE YOU ME???? I’ve been around the block with peri stuff as I know you have and we should definitely compare notes. I need to catch up on your posts when I’m a bit less fogged to have something more informed to say but wanted to reach out right now as I totally hear your frustration and wanting to give up. I’m hoping we’ll have some tidbits to share or at least some understanding (so many people hear about my issues and are like ‘whaaaaaaaaaat?’)
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Tressym

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Re: Just fading away
« Reply #58 on: November 09, 2025, 10:28:14 PM »

As someone working with MCAS/HI for some time, I think you’re on the right track. Several things you describe, like responding poorly to hormonal fluctuations and many meds/supps are very common especially when the MCAS is uncontrolled. I worked with a leading expert in the U.S. for several years before she passed away (not from MCAS), Beth O’Hara, and I recovered quite a bit under her care. Step 1 she said was nervous system retraining. Sounds like you’re already preparing for that. I can say that nervous system retraining was a top 5 game changer for me- absolutely worth the effort. I’m still a crazy mess bouncing across message boards mind you, but I was absolutely shocked how many symptoms were nervous system related.
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CrispyChick

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Re: Just fading away
« Reply #59 on: November 10, 2025, 08:11:53 AM »

Oh. Tressym - hello!

I've never been sought out before  ;D.

Are you UK or US???

Interesting points you make about MCAS and nervous system. I'm currently doing the Gupta programme - early days yet. And I'm getting some brain retraining on the NHS. But it is so slow I feel it's not going to get me anywhere. Hence signing up to Gupta.

Would love to chat when you feel ready.

What hormonal stage are you at? X
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