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[Minnie Mouse]

simple answer....yes it does!
I've been through exactly what you describe, now gone.
It's not forever. Be gentle with yourself xx

[CrispyChick]

Thank you Minnie. I needed to hear that. 

[Ayesha]

Yes, agree. I always refer to it as going through a phase, it does come to an end. With the ageing process you will find that you go from one phase to another with whatever the body decides to hit you with, but each phase ends.

[CrispyChick]

Ok. I guess that is helpful. The true 'hormonal' stuff I can see might be a phase. It's certainly getting worse.

But the horrific illness I get triggered by my cycle or any additional / removal of hormones seems different. It's the most horrific poison. And ive now had it 8 whole years. Only settling occasionally on contraceptive pills. That's some long phase 

[CrispyChick]

Ladies.

I'm on one of the worst months ever. I'm back to feeling like I'd rather be dead than continue like this.

What do I do?

I was meant to be stabalising on nothing. No new hormones, no ADs etc. Yet only 4.5 weeks I to that and the last 4 weeks have been some of my worst.

Do I:

A) continue doing nothing and see what happens once this month ends? I do feel very periody - so I might bleed through cerazette again.

B) Raise cerazette some again. I started this stint on double dose and it did supress LH, FSH and estrogen - but I developed excruciating joint and muscular pain. That pain has only just lifted (quite interesting coincidence considering the month I am having - I expect E is surging)

C) try a combined pill again. It'll just be carnage, I know it will. I get so many reactive symptoms to changes - severe stomach pain, severe nose pressure and headaches - MCAS possibly. Both gone whilst not trying anything new. And the pills never fully controlled my symptoms before.

Seriously, I'm at my wits end.

I fail to see how it is normal to feel so ill that Id rather be dead.  but no medic can help me it seems. 

My GP suggested adding in mirena  or COC. 

[CrispyChick]

Can anyone cast their eye over this.

So I'm having one of my worst months ever. Starting with a breakthrough bleed (on one cerazette). Day 21 bloods show E is 50. So low.

Fsh is 52 and lh is 26.

On double cerazette my fsh and lh were kept low - supression.

So I'm absolutely not supressed now. But I thought my E must've been high as I feel soooo bad - had that bleed, and feel like I'm about to get another.

But, on the plus side - that's the highest fsh I've ever had. And I didn't think it showed through mininpill.

Do I just ride out this hell? Is this indicative that it's nearing an end???

I am as sick as a dog this week. Don't understand any of this. 

Thanks

[Mary G]

Crispy, this is terrible and I don't really know what to suggest.  You obviously need a double Cerazette dose for full suppression probably because you are young.  I get full suppression of FSH and LH with 75 mcg single dose Cerazette but I'm very post menopause.  Perhaps younger women need more?  The aches and pains you mentioned could be caused by extreme oestrogen suppression. 

Have you ever had your estrone levels tested?  Apparently this is the bad, inflammatory form of oestrogen which doesn't do much good but too much of it could be a problem if you don't have much of the good oestrogen ie estradiol to counter it.  I'm pretty hazy on it but perhaps someone on here can shed some light on it?  It's a long shot but I would read up on it.

Sorry to ask again but did you have any hormone problems pre menopause?  Did you have PMS, pregnancy or period problems?  Did all of these problems come out of the blue when you started peri menopause?

From what you have said, your body needs oestrogen but you are not processing it properly and it is poisoning you so the question is why?  Assuming you don't have any pre menopause history of hormone problems, what suddenly changed to cause this?

You could try doubling up on Cerazette, it might help.

I wish I could be of more help.

[dangermouse]

Hey, I suspect the oestrogen blood test isn’t showing a clear picture as that doesn’t include tissue-bound oestrogens.

I don’t understand enough about the FSH and LH as that may be more accurate.

What is your worst symptom right now that is overwhelming you?

[dangermouse]

Ooh MaryG, we just posted at the same time and you also are questioning the other oestrogens.

Great minds….!

[CrispyChick]

Thanks guys.

Mary - this came out the blue at 41. I had been messing with the herb agbus castus beforehand. So I've always felt that was a trigger.

But I just don't know what this is that is triggered.

My worst symptom DM is, as usual, I feel hideously ill, poisoned and like death. I cannot explain it - which is part of the problem. And that's irrespective of the fact I've felt so hormonal.and nauseous and migrainy this week.

Mary - I used to bleet on about E poisoning me. But I disproved that as chem meno made me feel exactly like this. And I had zero E.

So my current conclusion is it's an extreme body reaction to changing hormones. But right now, I'm at my absolute worst.

Estrone - I had a Dutch test a few years ago. Pretty sure that was tested. There was nothing untoward on it.

I can't double cerazette again as the pain was agony - and yes, I assumed too low E, too quickly. It felt like chem meno.

I really am fading away ladies...

[AmandaJR]

Is it possible that you’ve come full circle? Years of Estrogen surging made you feel hideous, chem meno (No E) was even worse and now super low Estrogen making you feel the same as the chem meno, is it worth gently lowering the progesterone pill to allow a little more of your own estrogen in?
Your FSH suggests your body is screaming for more E.
I had horrific joint pain when my E tanked to 80 pmol, so yours at 50 pmol could well be behind this agony.

I’m not suggesting adding E.

Just throwing an idea out there. Keep going Crispy, we’ll find a way.x

[CrispyChick]

Thanks Mandy.

I think if I lower the Cerazette, I may as well just stop it.

Not sure I'm ready to do that yet as, before October, I told a friend I was still hideous, but since being on cetazette, I no longer wanted to die.

Well, I'm now back to wanting to die. But I'm only in week 4 of this state. So I feel I need to see what happens next. Pre cerazette I spent 5 months like this.

I dont now believe my poison and vile and feeling like death are linked to absolute levels of E. If I add in HRT it'll trigger it too. Yes, my pain and flushes are - but they're not my biggest issue.

So it must be changing hormonal levels. I was disturbed by the fact chem meno triggered it - but, in hindsight, that was the most brutal 'fluctuation' ever.

The only time I ever got rid of it was on cerazette at 42-43. I lost the poison. But unfortunately my pms was horrid so I started trying other things. But this tells me stability stopped it. Cerazette no longer gives me that stability. I'm just bleeding through it. Something I've never done in my life.

I'm just lost. 

[dangermouse]

One observation I can make there is that whenever I have tried progesterone or progestins, I feel good for a week, sometimes up to 3, and then I feel much worse.

Chat explained something about it initially stimulating the oestrogen receptors which then wears off as it builds up. That doesn’t explain why taking E also makes me ill but your Cerazette week 1 to 3 sounds like this.

[Mary G]

Crispy, I've done a bit of digging around two things spring to mind, inflammation and migraines.

I don't think the angus cactus has done any permanent damage and it was probably just a coincidence.  But I think it's worth looking into the combination of inflammation caused by low oestrogen and the onset of migraines.

Inflammation stops you from absorbing and processing hormones properly and might explain why HRT either didn't work or made you feel worse.

Menopause induced migraines are also triggered by inflammation and hormone fluctuations and the two can be connected or they could be two separate issues but obviously both caused by the menopause.

Has this ever been discussed with any of your specialists?

[CrispyChick]

Thank you ladies. You are very kind to keep digging for me. 

I don't think inflammation has specifically been mentioned. No. But I am booked with an expert who deals in dysautonomia, MCAS, ME/CFS etc...so I suspect she deals in this. Seeing her in a few weeks.

Migraines. Nope. My neurologist is specialist in FND. So he takes on 'functional' cases - that's what he believes I have. Central sevsitization. Volume turned up.

I've only really started to have low E in the last few months I think. 

Things to discuss with the neurologist I guess. Thank you. Appointments take forever though.