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Menopause Matters magazine ISSUE 81 out now. (Autumn issue, September 2025)

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Pages: 1 [2]

Author Topic: anyone on here not on HRT  (Read 3636 times)

flo69

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Re: anyone on here not on HRT
« Reply #15 on: August 17, 2025, 09:03:36 AM »

Hi Donnarob,
You had a stroke, except you say it didn't damage you, so perhaps you'd still be allowed my medication? It's called Tibolone.

I have high blood pressure I take ramipril for, I was told by the GP that tibolone was the safest menopause treatment they could give me. She told me oestrogel and utrogestan were too risky to be given to just anyone. I know that her view is contradicted on this forum, without proper studies it all seems to be based on opinions.

Tibolone's banned in America for doping atheletes, as if the drug itself is at fault there. It's a mild anabolic steroid which our bodies can use to make the three main hormones from. However, in the US it can't be allowed out of the factory for a few million women to get relief with, because it might make an escape and be into an athlete before you know it. Imagine how awful that would be? Clearly women cannot be trusted to use it for their own relief (sarcasm).

I believe the American ban has influenced GP's here in Europe. They don't tend to know much about menopause, since it's apparantly not a compulsory module for trainee GPs in the UK :o So they half remember it's banned in America and think there must be a good reason for it. There isn't. It is banned for doping athletes, not for adverse effects in postmenopausal women. However this still seems to inhibit prescribing in the UK.

At first I wanted oestrogel and utrogestan, I asked for them and was refused, I'm glad now that my GP's unusual opinion got me the unusual drug, the one that works far better. I got to try my requested drugs after a year on tibolone, oh no, that was bad, awful in fact, mood swings came back that I thought were history, fatigue as well and I believe the best protection for bones is from tibolone rather than O+P types of HRT.

As well as the high BP, I've been on recall to have my heart scanned every two years since my early forties, for enlargement. That is also medically irrelevant for taking tibolone. A GP can refuse tibolone on the basis the woman might be peri (that was why they switched me to O+P after a year, another doctor commented I was peri when I was post) but they won't say that to you at 66!

It doesn't even require checks the way I think O+P type combinations do. I have to get a BP and blood test once a year for taking ramipril but there no checks at all for tibolone, I've asked thinking they'd been missed.

All in all, tibolone seems like a pretty safe alternative to HRT to me. Perhaps worth a try?

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sheila99

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Re: anyone on here not on HRT
« Reply #16 on: August 17, 2025, 09:31:44 AM »

Tibolone is contra indicated in women over 60 because of the increased risk of stroke
https://www.gov.uk/drug-safety-update/tibolone-benefit-risk-balance
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bombsh3ll

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Re: anyone on here not on HRT
« Reply #17 on: August 17, 2025, 03:07:32 PM »

"For women older than about 60 years, the risks associated with tibolone start to outweigh the benefits because of the increased risk of stroke."

This is not an absolute contraindication, and whilst most clinicians can rhyme off the risks (although many have an inaccurate perception of their magnitude), only the user can quantify the benefits to them as an individual.

How many times have we heard the same arbitrary cut off applied to standard HRT?

This particular study showed an additional 3 strokes per 1000 women on tibolone. This amounts to an increased risk of 0.3%.

I'm not sure I would stop a beneficial treatment because of a 0.3% risk of anything.
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donnarob

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Re: anyone on here not on HRT
« Reply #18 on: August 18, 2025, 11:56:55 AM »

Hello Again from Norway  :)

Just a quick update as I am turned 66 last July and officially an OAP but in denial :)

For the past couple of years, I could swear that I have monthly cyclical symptoms and have kept a diary of my symptoms. They include waking up drenched in sweat, low down period like cramps, bloating, painful gas, burping, feelings of anxiety, brain fog.  I usually get these symptoms beginning, middle and end of the month. My GP is generally sympathetic but thinks I should be well over it by now. I have an appointment with my GP in two weeks time and going to ask to be referred to an endocrinologist who specialises in hormones.  Sometimes I feel sick and it´s almost like morning sickness which goes away when I eat something.

When I googled the symptoms, it transpires that lowering levels of oestregen and progesterone slow down the digestive tract and causes bloating and gas and sometimes with IBS type symptoms.  Honestly, I feel like I´m going mad as most of my girfriends are either 6 years younger or 3 years older and they had forgotten how they felt as my age.

I do use a Yes vaginal moisturiser but I´ve been getting discomfort probably due to athropy.  I need to get motivated and rejoin the gym with my physio.  Do you believe in mind over matter?

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KittyKats

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Re: anyone on here not on HRT
« Reply #19 on: August 18, 2025, 12:59:18 PM »

Yes I do personally believe in mind over matter! Not that my symptoms don't exist. They certainly do but I need to keep focussed away from my bodily sensations. I was an artist and I've been looking over and sorting out all my old illustrations and have found I am less focussed on my body. I became quite obsessed with it all during and for the years following menopause. Great you are seeing an endocrinologist. They could be very helpful with the hormones. I think we still ebb and flow after menopause for many years it's just they are smaller than they were.
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DottyD68

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Re: anyone on here not on HRT
« Reply #20 on: August 18, 2025, 01:03:53 PM »

Hi Donna,

Sorry to hear that you are struggling. I definitely think an exercise regime would help you, both mentally and physically. If you can get a weekly plan of what you want to achieve, with realistic goals, that would be a good start. And for extra motivation maybe try and work out with a friend or a PT (at least on some occasions). You mentioned your physio too. It doesn't all have to be gym-based, getting out in the fresh air is equally beneficial. Good luck X
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donnarob

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Re: anyone on here not on HRT
« Reply #21 on: August 18, 2025, 01:35:17 PM »

Hi Dotty,

Since I had the accident with my back and previous many issues with my health, my confidence is at an all time low and I really need to address the situation.  I did go to the gym a few months ago but then we went on holiday and various other things stood in the way.  Tomorrow I am going to call Tuva my physio with an aim to go for two 30 minute sessions a week as my back has been getting worse due to stiffness and the muscles need to be worked.

i never used to be like this and I seem to have lost my va va voom and need to get more energy. When I went to the gym, I was supervised by the physio and I did feel as if the machines were helping strengthen my back.  I used to be so creative but it´s like a veil has been put in front of me and I do wonder whether it´s all to do with rising levels of Cortisol.

Thanks for the advice x
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DottyD68

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Re: anyone on here not on HRT
« Reply #22 on: August 18, 2025, 02:52:44 PM »

It is a vicious circle. The less you do/feel like doing, the harder it is to do it, so you don't. Baby steps. Just start gently. Even when I don't feel like doing my yogalates (as I call it) I start off with some gentle warm up stretches and before I know it I've done a whole session. I used to work as a PT and it was amazing how a client would be really reluctant to get going but an hour later they would be absolutely buzzing and invigorated. It doesn't have to be anything strenuous, just something to get the blood flowing. Once you get back into the swing you will feel much better. But also expect to have days when you really can't face it - and that's ok too.

It's good you are going with a physio. They will make sure you are doing the exercises correctly and that will increase your confidence. Then it becomes a positive circle. X
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DottyD68

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Re: anyone on here not on HRT
« Reply #23 on: August 18, 2025, 03:02:06 PM »

Could you ask your physio to give you a 15 minute program to do at home? Then on the days you don't go to the gym you could do that and that would be a good foundation to build up your routine x
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Dandelion

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Re: anyone on here not on HRT
« Reply #24 on: August 29, 2025, 12:37:32 PM »

Hi Dandelion,
I'm interested to understand how HRT could have prevented gallstones and gallbladder issues. Please can you explain.
Thanks
Hello
I'll try but I am no doctor.
I do know that not having our hormone causes us to be vulnerable to inflammation everywhere in the body.
I know women get the gallstones more than men.
I know some women gain weight in menopause - I did. This might not be you though.
I know lack of oestrogen accelerates aging as well all over the body, inside and out, including the brain.
I hope that helps.
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