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[Northerngirl]

Ladies, I was told I had Hydrosalpinx( if I understood correctly it's a fallopian tube full of fluid due to previous surgeries and adhesions)18 months ago after an ultrasound/tvs. I was told it would probably need monitoring and possible keyhole surgery.
 I'm just wondering if any of you have experienced the same and what treatment etc you required??
I am thinking of going back to see a private consultant (not cheap I know but I've managed to save a little bit incase of emergencies)as I've still not heard anything from NHS.

[CLKD]

No follow up then!  . Were U referred back to your GP?

Could you ring the Hospital for an appt with the Consultant/Dept. to avoid going through the GP?

[Northerngirl]

No it has never been mentioned again....I think they've genuinely forgotten. I don't think I can could go through months and months of waiting again for the NHS,  it was bad enough last time and that was 2 week referrals each time....this wouldn't be. I think I'd rather speed things up and go private as I'm not sure what to expect now as the Hydrosalpinx will definitely of gotten bigger by now.....I just hope it's not attached itself to other tissue like my abscess did 13 years ago....that involved major surgery and that's why I'm dreading going through all of this again.
Thanks for your advice CLKD.....much appreciated x

[CLKD]

It's awful when there is no follow up procedure 

[bombsh3ll]

Unless you plan to have IVF there is no reason to treat a hydrosalpinx.

The fluid within the tube, which is in connection with the uterus, can interfere with the embryos' ability to implant.

If this is not the case and it is not causing you any symptoms then I would leave well alone - surgery is likely to lead to further adhesions plus all the usual risks eg anaesthesia, pain, bleeding, infection, damage to other structures.

[Northerngirl]

Unless you plan to have IVF there is no reason to treat a hydrosalpinx.

The fluid within the tube, which is in connection with the uterus, can interfere with the embryos' ability to implant.

If this is not the case and it is not causing you any symptoms then I would leave well alone - surgery is likely to lead to further adhesions plus all the usual risks eg anaesthesia, pain, bleeding, infection, damage to other structures.

Thanks Bombsh3ll,  I'm 57 and definitely not planning to have ivf 😂. The issue is the pain  and nausea. I know it's getting bigger and if it starts to stick to other things then I've got real problems....this is what happened when I had an abscess 13 years ago. That's what annoys me the most because they removed my ovary(and appendix which it was stuck to) if they'd removed the tube at that point it wouldn't have happened.....of course I didn't realise this at the time. I was also told after that surgery that I should NEVER have any more abdominal surgery as I'd already had 3 caesareans also. So this is worrying me.
As you ladies know I suffer with anxiety when I have health issues so I just need this sorting asap hence the reason for going private. I would quite happily leave it but I don't think it's an option. Just hoping there was a non surgical solution.

[CLKD]

Morning.  However, if U required emergency surgery they would have to go in .......... and techniques are improving all the while.

Talking through with a Consultant will give you an idea of what you R up against.  Take a list!

[Minusminnie]

I think I'd rather speed things up and go private as I'm not sure what to expect now as the Hydrosalpinx will definitely of gotten bigger by now.....

After 18 months now would it be worth paying to get an ultrasound/TVS done again and a possible second opinion from that before paying much more to see a consultant.
Ultrasound Direct do pelvic scans and have places around the country.

[Northerngirl]

Morning.  However, if U required emergency surgery they would have to go in .......... and techniques are improving all the while.

Talking through with a Consultant will give you an idea of what you R up against.  Take a list!

Thanks CLKD , they did say never again unless life or death....different hospital last time.  I don't want anymore surgery unless absolutely necessary....this would be keyhole I think.
I think I need to get a scan first and weigh everything up   

[Northerngirl]

I think I'd rather speed things up and go private as I'm not sure what to expect now as the Hydrosalpinx will definitely of gotten bigger by now.....

After 18 months now would it be worth paying to get an ultrasound/TVS done again and a possible second opinion from that before paying much more to see a consultant.
Ultrasound Direct do pelvic scans and have places around the country.

Thanks minusminnie, I will look into ultrasound direct ...thank you. I was supposed to be scanned at the NHS after my biopsy results came back last year if they came back all clear (thankfully they did)  Life just seemed to get back to normal and tbh I wasn't bothered about the Hydrosalpinx as they obviously weren't....just the last few months it's got worse. I can live with the pain ...I have been for 15 years with other things so that doesn't bother me,  it's if it gets attached 🤦‍♀️

[Minusminnie]

   I feel for you.
My neighbour is in a similar position re no more surgery on abdomen but she really needs it. Take Care.

[bombsh3ll]

It is very unlikely that a hydrosalpinx in itself would cause pain or nausea, in terms of the anatomy and the size it would have to be in order to cause a mass effect.

It is probably an innocent bystander to another process which could be causing your symptoms such as inflammation or adhesions. Of course these warrant attention however simply removing or attempting to remove the fallopian tube, which could be stuck, is unlikely to resolve this and could lead to bigger problems.

 

[Northerngirl]

It is very unlikely that a hydrosalpinx in itself would cause pain or nausea, in terms of the anatomy and the size it would have to be in order to cause a mass effect.

It is probably an innocent bystander to another process which could be causing your symptoms such as inflammation or adhesions. Of course these warrant attention however simply removing or attempting to remove the fallopian tube, which could be stuck, is unlikely to resolve this and could lead to bigger problems.
Yes I think you're probably right....it's a combination of many things.  Apparently Hydrosalpinx can cause no issues or many issues left untreated so I think I'm just going to have to find a good consultant for my needs. Thanks again x

 

[Northerngirl]

Well ladies,  I've just booked to see a consultant on the 26th...hope he's worth it  as I really need this sorting hopefully without surgery 🤞
I'll let you know what happens....thanks again for all your advice.....much appreciated x

[bombsh3ll]

Questions that I would ask your consultant are is the hydrosalpinx proximal or distal ie uterus end or ovary end, and whether there is any possibility of either hysteroscopic or percutaneous aspiration of the fluid.

This may relieve symptoms (albeit temporarily if it filled back up) if it truly is the culprit, and it would also allow the fluid to be sent for cultures and cytology.

Good luck 🤞