Please login or register.

Login with username, password and session length
Advanced search  

News:

Follow us on Twitter and Facebook

media

Author Topic: 2week biopsy referral and scared  (Read 3711 times)

Mariab1972

  • Member
  • *
  • Posts: 10
2week biopsy referral and scared
« on: February 14, 2025, 07:33:10 AM »

Hello. Started HRT July 2024. In December I had an issue with my patch and there was a delay in replacing it but it was for long. Can a couple of hours really cause nearly 3 months of problems?

 Since then, I've had issues initially with spotting, then light bleeding. I get spotting/bleeding for about 5 - 7 days then I'll be clear for about 8days and then it starts again.

Dr initially said she thinks it's hormonal imbalance, referred for scan. 6 weeks latter - still no appointment for scan, still getting the cyclical bleeding (last bleed I had spotting then a morning of medium bleeding then return to spotting), lasted 5 days. Anyway dr has referred me for the 2 week biopsy - as she says, to rule out any nasties or deal with them if needed.   

The thing is, I'm so scared of the procedure. I'm not really sure what to expect. I think it will be Pipelle as opposed to hysteroscopy as she said about suction and she didn't think they'd be cameras involved. I should have asked if they'd do a scan too as it sounds like a clinic but didn't think at the time.  I'm scared I won't be able to deal with the pain and embarrass myself.

I've spoken to my sister who used to nurse, she said "honestly, it probably will hurt but won't last long." She said it will be like menstrual cramps and to take an analgesic half hour before. I know it has to be done and I'm trying to view it as an obstacle blocking two paths: either direct to peace of mind or taking a detour via cancer treatment.

I don't even really know what I'm hoping people will say and not sure if I'm better not knowing what to expect and dealing with it as and when, or knowing and dreading it. I just feel scared, uncertain and weepy. I thought I'd have answers by now but it just seems endless waiting although I guess at least I should be a step closer to answers in a fortnight.

Thank you for reading.
Logged

Mariab1972

  • Member
  • *
  • Posts: 10
Re: 2week biopsy referral and scared
« Reply #1 on: February 17, 2025, 01:48:31 PM »

I have a date for a ultra sound scan tomorrow and a follow up appointment with a consultant on Sunday. What I'm hoping is that the scan will show healthy lining and they send me away and tell me not to waste their time. I feel a bit easier because if I needed i hysteroscopy, which I think is what i'm most afraid of, I can ask for general anaesthetic. I think I might be able to grit my teeth for a biopsy, but saw too many scare stories about the hysterocopy.

If there's a god he must be male, I'd have designed a womb that just disintergrates at 50.
Logged

CLKD

  • Member
  • *
  • Posts: 78896
  • changes can be scary, even when we want them
Re: 2week biopsy referral and scared
« Reply #2 on: February 17, 2025, 02:51:21 PM »

Ring the Dept and ask what the procedure is and R U able to have a light anaesthetic.  This is your body and U do not need to agree to anything, even when U get to the appt.  Make notes ;-)
Logged

Mariab1972

  • Member
  • *
  • Posts: 10
Re: 2week biopsy referral and scared
« Reply #3 on: February 17, 2025, 05:50:41 PM »

Thanks CLKD

Lady I spoke to definitely said scan tomorrow. I'll definitely be making notes.

Logged

CLKD

  • Member
  • *
  • Posts: 78896
  • changes can be scary, even when we want them
Re: 2week biopsy referral and scared
« Reply #4 on: February 17, 2025, 05:55:06 PM »

Let us know how you get on?
Logged

Summer-sky

  • Member
  • *
  • Posts: 57
Re: 2week biopsy referral and scared
« Reply #5 on: February 17, 2025, 07:01:37 PM »

Hi Mariab,
Sorry to hear you are going through the ups and downs with testing and procedures.  Hopefully the scan will give you all the answers tomorrow and your lining will be healthy and then no more tests. 
If you do have to have the pipelle, it might be you won't then need the hysteroscopy but if you do, GA is a good way to go for it if you have any concerns at all.  I've had the pipelle and maybe it helped a little as I didn't know ahead of time I was going to have it - saves a lot of anticipatory anxiety - but it's over pretty quickly. It's easy to say but try not to worry about embarrassing yourself - I literally hummed tunes throughout it all (!) and any distraction helps.  Chat, sing, they've generally seen it a 100 times before.  It's a thin tube and can feel like bad menstrual cramps and then its done. Knowing that it will be over pretty quickly and give you peace of mind that a biopsy is the gold standard for ruling out anything concerning will be a relief in itself.  All the best for tomorrow and with your appointment on Sunday. x
Logged

Mariab1972

  • Member
  • *
  • Posts: 10
Re: 2week biopsy referral and scared
« Reply #6 on: February 18, 2025, 08:28:17 PM »

Had my scan. I'll describe my experience a bit in case it helps others. A weird but painless experience. A few questions but other than the mechanics of telling you when the probe, as they called it, is in it's largely done in silence. I did read this can be the case due to the level of concentration needed. And you may find, just to prevent intrusions, they lock the door. There were two people - the sonographer and a nurse.

Initially I had the abdominal scan. They ask you to come with a full bladder for this. One recommendation is to drink 500ml of water 30 minutes prior to scan. In my case I went to the loo about an hour before and then had a couple of glasses of water.  For the abdominal scan I just had to lower my waistbands. After I had the abdominal scan, I had to then go to the loo to empty my bladder then return for the vaginal scan. For this you need to sign a consent form.

On my return, they asked me to undress from the waist down. They put a curtain around you and give you like a giant paper towel to cover your modesty. On the bed they put a wedge, your bum goes at the top of the wedge, you put your head on the pillow, feet apart, knees bent. They get the probe. Some may find his a little intimidating to see but it's only a small part of it that goes in, and they sell more intimidating implements in Anne Summers. It is very well lubricated and inserts easily. Once in, they very gently move the probe to get all round views. I became quite focused on the light on the smoke alarm. I always think time stands still in these sort of situations but I arrived at the gynaecology department at 1:50 and was dressed and out of the hospital by 2.15.

Now it's just the wait til Sunday when I see the consultant, which I'm told will be thorough and if a biopsy is required it will be taken then.
Logged

CLKD

  • Member
  • *
  • Posts: 78896
  • changes can be scary, even when we want them
Re: 2week biopsy referral and scared
« Reply #7 on: February 18, 2025, 08:38:07 PM »

Tnx for the update.
Logged

Mariab1972

  • Member
  • *
  • Posts: 10
Re: 2week biopsy referral and scared
« Reply #8 on: February 23, 2025, 08:59:45 PM »

Hi

Got scan results today, womb lining 3.7mm so massive relief. They did the biopsy anyway, (always best to be extra sure) and took a smear test at same time. The biopsy is not an experience I'd want to repeat for sure. Just so relieved. Just need to review my HRT now.

Thank you so much
Logged

CLKD

  • Member
  • *
  • Posts: 78896
  • changes can be scary, even when we want them
Re: 2week biopsy referral and scared
« Reply #9 on: February 24, 2025, 09:34:41 AM »

Were U not offered a light GA prior to the biopsy?

Logged

Mariab1972

  • Member
  • *
  • Posts: 10
Re: 2week biopsy referral and scared
« Reply #10 on: March 01, 2025, 05:28:24 PM »

Regarding GA, not prior to biopsy no, half way through it was mentioned and they did spray a local. I had taken 2 paracetamol followed by 2 ibuprofen before.  It was the speculum opening the cervix more than the actual biopsy bit and it was that weird kind of pressure thing that caused issues as my natural reaction was to fight back. I haven't had children so that possibly made it worse and I had worked myself up. I've had smear tests and I have to say I disagree with it being described as "like a smear tests". I don't like smears and find them uncomfortable but not like the biopsy.

However, if I ever do have one again I will definitely ask about GA. Thing is I think the biopsy could have been avoided. My GP initially just asked for a scan on new year's eve and I think this is supposed to be done in 6 weeks. The scan has only just appeared on my NHS app as a waiting list for 23 weeks even though it' been done.  Although I felt reassured by what the gynacologist said, you still want the results to confirm one way or another and they can't really amend my meds until the results are through.

The bleeding, even though light is unnerving of course and my moods and brain fog seem to be returning. At work I just feel irritated (it's a pretty toxic place anyway), and I only really feel OK at home. Some people i've told
Logged

CLKD

  • Member
  • *
  • Posts: 78896
  • changes can be scary, even when we want them
Re: 2week biopsy referral and scared
« Reply #11 on: March 01, 2025, 05:50:36 PM »

It's not good enough not to offer a GA for what are invasive procedures!

How do U feel overall?
Logged

Mariab1972

  • Member
  • *
  • Posts: 10
Re: 2week biopsy referral and scared
« Reply #12 on: March 06, 2025, 01:51:10 PM »

Health anxiety is a big issue for me so the waiting is getting to me regarding the biopsy result and official confirmation i'm OK. I've got a post-it note on my computer at work with 3.7 on to remind me my lining measurement is OK. Smear was clear though so that's good. I think the biggest thing is without the results I'm kind of stuck in terms of reviewing my options. Overall I'm OK in myself but it seems to have been dragging on and unnecessarily so as my hospital missed the 6week recommended target with the scan. If my GP hadn't have referred me down the 2week route, my wait would have been up to 23 weeks.
Logged

Mariab1972

  • Member
  • *
  • Posts: 10
Re: 2week biopsy referral and scared
« Reply #13 on: April 04, 2025, 06:51:53 PM »

Just in case it helps anyone, after a 3 and a half week wait, i eventually got my results and there is nothing suspicious. While waiting I came across a post on another site that detailed more about why womb biopsy results can take so long.  Now, I'm not a specialist and therefore can't guarantee complete accuracy of the description but the gist of it all makes sense. The sample has to go through several processes of freezing and slicing so slides can be prepared. These will have to be examined by specialists and they will prioritise the more suspicious looking cases first. As an example my womb lining was 3.7mm so within a normal range, if a lady has a much thicker womb lining their biopsy will take priority and be bumped up the examiner's list ahead of yours.  A sample may not be very good so a new slide may need to be prepared or initial investigations inconclusive and further examinations carried out. Although I hope it may provide some reassurance, length of time is not indicative of the result. I just know I must have asked my partner and myyself "why is it taking so long" a million times  :) Now I've just got to wait for the GP to recall me to discuss further HRT options.
Logged

CLKD

  • Member
  • *
  • Posts: 78896
  • changes can be scary, even when we want them
Re: 2week biopsy referral and scared
« Reply #14 on: April 04, 2025, 07:16:29 PM »

 :thankyou: How R U feeling overall?

MayB decide which symptom you would like to ease first?  Make a list of symptoms to take to the appt..
Logged