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Author Topic: Lichen sclerosis- apparently  (Read 3151 times)

CLKD

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Re: Lichen sclerosis- apparently
« Reply #30 on: April 23, 2025, 08:49:27 AM »

I was told to use no more than a pea-sized amount of steroid cream on the 'sun burnt' area after radiation for 5 days then stop. 
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Dierdre

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Re: Lichen sclerosis- apparently
« Reply #31 on: April 23, 2025, 09:14:51 AM »

Well I've been using the Dermovate for Lichen Sclerosis now, but having been told to use it daily for the 1st two weeks, I can't actually use it for more than 3 days before I'm really sore.
I do wonder if I'm being told to treat something I don't actually have. Can anyone shed some light on how this condition should be diagnosed, please? My GP said there is a slight 'pearly' appearance with a bit of a sheen, to my vulva, which us why she decided it was Lichen.
I was diagnosed by a consultant many years ago for Lichens schelerosis but have never been 100% sure it was that. I was struggling with atropy at the time and he said I had "features" of Lichens but not active at the time. The only way to be certain is with a biopsy. I've never had the white patches, shiny skin or constant itching. Although I do get sore when having a flare up,  I think is atropy, it's only for a few days and extra local estrogen and Dermavate sort it quickly. The consultant also said I may not have a flare up of Lichens again for years or never again, which I thought strange.
If it was Lichens just extra estrogen wouldn't clear it up and I'd need a longer course of steriod cream. I didn't use the Dermovate last flare up, just doubled up on vagifem and estriol and it did the job so I'm convinced it was misdiagnosed.
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