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Menopause Matters magazine ISSUE 81 out now. (Autumn issue, September 2025)

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Author Topic: Low vitamin D or hormones?  (Read 6268 times)

JS79

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Re: Low vitamin D or hormones?
« Reply #30 on: December 03, 2024, 08:42:29 AM »

How did anyone manage to get loading doses from GP? My d level was 27, so really low and was told to supplement.
My b12 was just in normal range so at moment no way a GP will give loading doses, even though I have neuro symptoms.
I'm on fb chats and a lot of people do their own b12 injections but that scares me. I would rather a GP was involved.
I feel if GP gave vit d loading dose I could maintain on oral supplements.
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Seasidegirl

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Re: Low vitamin D or hormones?
« Reply #31 on: December 03, 2024, 09:09:14 AM »

Taking 4000iu per day should mean you see an increase when you next test at 3 months.

That's a high ferritin level you've got. It can sometimes indicate inflammation in your body. Did you also get CRP tested?

Good luck with the private Endo. They're often more open to prescribing even though a lot of them also work for the NHS. Remember to give them your most recent blood test results or it's a waste of a first appointment.

Morning Sunday Girl, CRP HS is 1.01 so whilst it's not high,  my research suggests it could be indicative of an inflammation or immune response.

I'm convinced my thyroid is overactive, the NHS ENT consultant who scanned my thyroid goitre said it might be producing thyroid hormone or it might have an autoimmune component.    My antibodies aren't obviously showing an issue but I haven't had TSI tested which might point to Graves although I'm not sure I'm entirely symptomatic of Graves. 

I'm leaning towards a toxic goitre causing high levels,  this could tie in with the high SHBG which is messing up the benefit of HRT and the vitamin deficiencies or of course the deficiencies could be unhelpful to a borderline thyroid performance!   

As an example of the impact of high SHBG, my testosterone is 1.48 nmol which is sightly over range, SHBG is 124 (down from 131 in July), meaning FREE Testosterone is 0.01 nmol!!!

The two GPs I've spoken to about high SHBG say it isn't relevant to anything 🙄. 

Luckily my GP has just prescribed six months T and it was the private bloods that show the high T level or I'm guessing they'd be stopping or reducing that based on the high total T.   I won't be sending that result in!     

(Sorry I'm taking the bus down a SHBG cul de sac!)
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Seasidegirl

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Re: Low vitamin D or hormones?
« Reply #32 on: December 03, 2024, 09:12:13 AM »

Re vitamin D, I've ordered the Better You 4000iu spray as I wonder if it is an absorption issue and the spray might be better.   

I'm probably going to mix and match and go a bit higher for a few weeks in the hope of getting the level up quicker to see if I feel better.   
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SundayGirl

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Re: Low vitamin D or hormones?
« Reply #33 on: December 03, 2024, 10:02:30 AM »

Morning Seasidegirl  :)

You take our bus down any route that might help  ;D

I'm pretty sure I read in my endless research surrounding thyroid disorder that high SHBG can be an indicator of hyperthyroidism. You may well be onto something there.

You can also be hyperthyroid without Graves. Then again you could be hypo and going through a hashi blip. Hopefully your Endo appointment will throw some light onto your situation. It's possible to have thyroid disease without having antibodies as well. Bloomin confusing stuff this thyroid thing.  ::)

The Better You sprays are good as they get absorbed through the mouth. Can get a bit expensive in the long run though.

It's a nightmare that Thyroid issues often raise their ugly heads at this time of life.
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SundayGirl

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Re: Low vitamin D or hormones?
« Reply #34 on: December 03, 2024, 10:13:21 AM »

How did anyone manage to get loading doses from GP? My d level was 27, so really low and was told to supplement.
My b12 was just in normal range so at moment no way a GP will give loading doses, even though I have neuro symptoms.
I'm on fb chats and a lot of people do their own b12 injections but that scares me. I would rather a GP was involved.
I feel if GP gave vit d loading dose I could maintain on oral supplements.

I'm surprised your GP didn't prescribe a Vitamin D loading dose with those levels. They usually prescribe to raise your levels to 50.
You can manage it yourself though fairly easily. Work out your own loading and maintenance doses. Cheaper as well if you pay for prescriptions.

With a B12 within NHS ranges, GP's don't see a need for prescribing. They certainly wouldn't entertain B12 injections. Buy yourself a decent B complex. Don't worry about self-injecting. Only consider that route if you can't raise your levels with supplements.
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JS79

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Re: Low vitamin D or hormones?
« Reply #35 on: December 03, 2024, 10:21:38 AM »

I'm in Scotland so prescriptions free.
Getting more blood tests this week and I have appt with GP on 13th so will discuss results then, hoping vit d still low, even though supplementing since feb/March.
I think I may go private for a b12 injection,hoping once a moth and then can daily supplement myself.
It's such a minefield and doesn't help that so many conditions have the same symptoms.
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Seasidegirl

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Re: Low vitamin D or hormones?
« Reply #36 on: December 03, 2024, 10:37:07 AM »

It's a massive minefield, that's why I really wish I'd had a decent package of baseline bloods before I started HRT as I'm now struggling to see what might be cause or effect.   

JS79 your doctor ought to prescribe a loading dose at that number.  In England you can look up the Formulary for your Trust and that tells you the approach your trust host has.   In England,  mainly they do loading dose of you are under 50.   I'm not sit if you have the same Formulary set up in Scotland.   

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