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Author Topic: Louise Newson  (Read 41522 times)

Kathleen

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Re: Louise Newson
« Reply #75 on: October 01, 2024, 10:56:02 AM »

Hello again ladies.

My story is similar to the woman in the programme called Rachel in that I turned to Louise Newson because I needed HRT and due to COVID lockdown I couldn't see my GP.  My private clinic HRT journey began then.

I was with NH from the end of 2019 until about a year ago when I decided I couldn't afford the fees any longer and their treatment hadn't helped my main problems.  During my time with NH I tried several combinations of Oestrogen and Progesterone plus some testosterone and I saw three different doctors (they seemed to last a year and then leave).

My complaint with NH is that I felt that the doctors were talking from a script and they were not the experts that I believed them to be. If I was an unusual case because I didn't respond to treatment as expected I thought they would have other suggestions for me to try but, as one of the Panorama ladies reported, they just wanted to continually raise my Oestrogen despite my painful breasts and spotting then bleeding.

Looking back I was just be as unstable emotionally on their regime as I am now on my much lower dose but at least physically I feel better!

To be fair to NH the doctors did their best to help me and it was suggested that I speak to their nutritionist and/ or their psychiatrist but that was all extra cost and by that time I had lost confidence in them.

It was interesting to hear one of the NH doctors say that Louise Newson herself is using a high dose of 300mg of Oestrogen, implying this must be safe however I read somewhere that she has had a hysterectomy so her concerns for her own health are likely different to most other women.

As I said before, I would personally be happy if my current safe, tried and tested HRT regime was effective enough to resolve all my symptoms, in other words just do the job that it is supposed to do!

Take care ladies and wishing you all well.

K.

 
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Ayesha

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Re: Louise Newson
« Reply #76 on: October 01, 2024, 11:18:16 AM »

The younger woman who went to Newson after a hysterectomy is a strange case to say the least.  Where was her oncologist in all of this?  Why wasn't she having regular scans - in her case I would have thought it would have been MRI scans. 

This was the piece in the documentary that was puzzling, the young woman having to have a hysterectomy after giving birth because of cancer. Was the cancer hormone related, if so the NHS would have refused her HRT.
She went instead to Newson and got HRT, really, did she go there under false pretences and if so, that would be gross negligence on Newson’s part if as she claims didn’t look into her previous history before giving her HRT, which resulted in another cancer.

This documentary left so many gaps, questions unanswered, it's like the last page in a book that's missing.
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Emma

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Re: Louise Newson
« Reply #77 on: October 01, 2024, 11:30:30 AM »

Menopause Matters has released a statement regarding the Panorama programme.
It's currently on the home page news section but here's the statement as a pdf
View/download the statement here.
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CLKD

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Re: Louise Newson
« Reply #78 on: October 01, 2024, 11:38:16 AM »

Ayesha - - that's my query , often.  Until recent years 1 had to have a referral from a GP to any Consultant - with a resume of the patient's full medical history whereas a Consultant may not think to ask and the patient may not remember or be prepared to reveal.

Tnx. Emma
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Hurdity

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Re: Louise Newson
« Reply #79 on: October 01, 2024, 11:57:43 AM »

I saw the documentary and actually was very shocked at the approach. Because I’ve been doing other stuff I haven’t kept up with everything that’s going on but although the criticisms (of the blanket approach of oestrogen oestrogen and more oestrogen) are valid I was shocked at the vehemence with which they demolished the Newson clinic’s approach and particularly Louise Newson herself and I'm not sure of the motivation behind this.

I haven’t been a patient of hers either but the second half or two thirds of the programme almost portrayed her as some evil woman bent on causing harm to other women for the sake of money and disregarding safety, when in reality she has done a huge amount to publicise menopause more recently. Although I do disagree with her approach, I felt for her, personally as I thought it was very unfair. Also I disagree with private clinics that charge so much and for example admire the other specialists – like Paula Briggs and Heather Currie who spoke on the programme who as far as I know either don’t practice privately or maybe in a very limited way.

“The BMS need to follow strict guidelines to receive their funding” - someone said this earlier in the thread.

The point is that the BMS is the professional body specialising in menopause and as such is underpinned by science and evidence. This and other such organisations exist across the whole range of scientific disciplines and most have their own journals where the latest research is published. Because they are evidence based then there is necessarily a delay in new guidelines etc as research takes time. This doesn’t make them old-fashioned nor does the fact that they are a charity make them corrupt or only interested in funds. Their accreditation system necessarily will give approval to those who follow guidelines and licensed regimes so that we women know who to trust on the whole and who perhaps to be more wary of.

Here is what they say on their website:

“The British Menopause Society (BMS) is the specialist authority for menopause and post reproductive health in the UK. Established in 1989, the BMS educates, informs and guides healthcare professionals, working in both primary and secondary care, on menopause and all aspects of post reproductive health.”

“All BMS resources are evidence based, peer reviewed and they incorporate recommendations for best practice from both national and international guidelines.”

I can’t really add anything to some of the excellent points already made on this thread but to say I agree as we know that the NHS is woefully underfunded sending many women to private treatment and all the inequalities associated with that.

Also the point about dosage vs oestrogen levels and testing – agree with all that. However the specialists consulted did say that they individualised their treatments and were in fact prepared to prescribe unlicensed regimes in certain cases and therefore “think outside of the box”.

I think the main criticism if borne out in practice, of not looking at the woman’s complete health picture during consultations – may well be valid?

A bit off topic but the old issue about gels – someone said the gel was watered down to make it go further. This can’t possibly be the case. There are very rigorous quality control measures in place so any deviation from both the concentration of estradiol and total amount in a pack would not be picked up. Say what you like about big pharma but this is an absolutely fundamental principle. Variation in dose due to variable pump mechanisms may play a part but dose concentration is still the same. If a bit less comes out in one dose then  more will need to be applied but should not result in more being used if you see what I mean (as an aside I find this with Lenzetto – the spray amount  is variable depending on how much is left in the canister and the priming).

Hurdity x
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Mary G

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Re: Louise Newson
« Reply #80 on: October 01, 2024, 11:58:17 AM »

Menopause Matters has released a statement regarding the Panorama programme.
It's currently on the home page news section but here's the statement as a pdf
View/download the statement here.

This paragraph intrigues me:

If you’re on a standard licensed HRT dose and aren’t experiencing any problems,
just continue with your routine check-ups, usually done once a year.

What exactly do these check up consist of?  Talking to someone from the other side of all desk is not a check up so presumably we are talking physical checks of some description?


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Hurdity

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Re: Louise Newson
« Reply #81 on: October 01, 2024, 11:59:38 AM »

Menopause Matters has released a statement regarding the Panorama programme.
It's currently on the home page news section but here's the statement as a pdf
View/download the statement here.

Thanks and good to see a statement from MM

Hurdity x
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Hurdity

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Re: Louise Newson
« Reply #82 on: October 01, 2024, 12:02:19 PM »

Menopause Matters has released a statement regarding the Panorama programme.
It's currently on the home page news section but here's the statement as a pdf
View/download the statement here.

This paragraph intrigues me:

If you’re on a standard licensed HRT dose and aren’t experiencing any problems,
just continue with your routine check-ups, usually done once a year.

What exactly do these check up consist of?  Talking to someone from the other side of all desk is not a check up so presumably we are talking physical checks of some description?

These will vary. No not nessarily a physical check though I had a review recently that included a complete blood tests (for everything to check my health) as well as estradiol and Testosterone and I am having ongoing blood tests as part of the review and change in HRT dose and delivery.

The check surely should ask how you are feeling, whether any issues eg bleeding etc, maybe to discuss change in dose?

Hurdity x
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Mary G

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Re: Louise Newson
« Reply #83 on: October 01, 2024, 12:03:58 PM »

The younger woman who went to Newson after a hysterectomy is a strange case to say the least.  Where was her oncologist in all of this?  Why wasn't she having regular scans - in her case I would have thought it would have been MRI scans. 

This was the piece in the documentary that was puzzling, the young woman having to have a hysterectomy after giving birth because of cancer. Was the cancer hormone related, if so the NHS would have refused her HRT.
She went instead to Newson and got HRT, really, did she go there under false pretences and if so, that would be gross negligence on Newson’s part if as she claims didn’t look into her previous history before giving her HRT, which resulted in another cancer.

This documentary left so many gaps, questions unanswered, it's like the last page in a book that's missing.

It's very strange.  What type of womb cancer was it?  I would be surprised if it was endometrial cancer at her age.  She didn't mention what stage the cancer was either which would be an important part of her prognosis and possible recurrence of the cancer.

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Dandelion

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Re: Louise Newson
« Reply #84 on: October 01, 2024, 12:24:17 PM »

This feels like it may be another WHI type watershed where treatment for many woman is adversely affected by what should be a discussion about a specific issue - ie off licence oestrogen. 

I am also a Newson patient,  forced to pay because my GP refused me HRT (in favour of AD's).   The GP has  taken on my prescription but refuses to prescribe at 75 rather than 50 despite me still being symptomatic at 50.

I'm now paying again to try testosterone as GP regards T inside the reference range (0.101 upwards)  as being OK, again despite me being symptomatic in line with the nice guidelines. 

This is another pop at LN after the "how dare she prescribe T" guff from a couple of months ago.

I really fear this noise is going to make it even harder for woman to access HRT going forward as it creates confusion in already under informed HP's.
75mcg is within the licenced prescription, why does your GP refuse to go over 50?
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Dandelion

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Re: Louise Newson
« Reply #85 on: October 01, 2024, 12:31:09 PM »

How many micrograms are there in 2 pumps of gel which deliver 1.5mg of Oestrogen  :-\
When I was on gel - oestrogel, 2 pumps was equal to 50mcg patch, that was before the gel changed, but I "think" it's the same dose.
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CLKD

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Re: Louise Newson
« Reply #86 on: October 01, 2024, 12:55:23 PM »

Some cancers are triggered by pregnancy - but clarification in any of these programmes and news articles should be a requirement.  MayB the editors don't have any idea as to what readers need to know! 
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sheila99

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Re: Louise Newson
« Reply #87 on: October 01, 2024, 01:01:56 PM »

The BMS and NHS are very quick to say 'there is no evidence for...'. Usually there is no evidence against either, the research simply hasn't been done and isn't likely to be either.

Perhaps someone whispered in their ear that the hrt bill is getting too big a new scare story was needed to reduce it.

Cynical? Moi??
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bombsh3ll

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Re: Louise Newson
« Reply #88 on: October 01, 2024, 01:03:56 PM »

I haven't watched the programme but I am saddened and angry about the effect this could have on women's access to treatment.

If everyone was able to get the care they needed on the NHS there would be no need for private clinics, and people like Louise Newson who challenge the narrative that has existed for years that HRT is dangerous and women should just suck it up and take antidepressants, have helped far more people than they have harmed.

I have seen adverts by journalists wanting a sensational negative story about various things - they never seem to be looking for someone with a positive experience as that doesn't make good television.

Nobody is being forced to take treatment, everyone who goes there wants to try hormone therapy in a meaningful dose in order to address their symptoms or health concerns, and if it doesn't work or their approach doesn't suit you, just stop. No crime has been committed just because someone has had the opportunity to try a treatment that might have really helped them.

I am fully in favour of treatment doses being individualised even if this means some take a higher dose than allowed on the NHS, and of women being afforded the autonomy to choose a treatment that may have some risks, if it improves their quality of life and reduces other risks such as osteoporosis.
 
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bombsh3ll

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Re: Louise Newson
« Reply #89 on: October 01, 2024, 02:39:35 PM »

Having listened to the episode I actually think the journalist has pulled a really dirty trick with the young woman with "womb" cancer.

This would almost certainly have been cervical, which is not driven by estrogen.

At 34, endometrial cancer is as rare as rocking horse manure, whereas cervical is common, and  if they'd have been able to truthfully use the word endometrial cancer they would have been screaming it, not couching it in vague terminology like "womb" cancer which could be either.

It looks to me they deliberately conflated a case of cervical cancer, after which the young patient absolutely should receive HRT, and at a higher dose than a typical 50 year old, with endometrial cancer which is very different, knowing that Newson couldn't point this out without breaching confidentiality.
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