Print

Please login or register.
1 Hour 1 Day 1 Week 1 Month Forever
Login with username, password and session length

[Penguin]

I'm having problems again. Had a bad and long episode of reflux and then last night woke with what I'd describe as crescendo pain in my stomach, burning that builds up and subsides. I also have a hunger feeling so eat but that aggravates it more. I'm going to up the omeprazole as I've started taking it again.  Has anyone else had this?

Is that rebound acid from temporarily stopping the ppi? Did you wean off or stop suddenly? I was only on mine for less than two months for gastritis but the ppi itself caused rebound reflux (which I'd never had before) when I first tried to stop it. You may need to wean off gradually. Also wondering what time of day you take it? When weaning off I switched to just taking at night so I was comfortable lying down. I found the rebound acid easier to deal with when awake and upright.

[Jules]

I'm having problems again. Had a bad and long episode of reflux and then last night woke with what I'd describe as crescendo pain in my stomach, burning that builds up and subsides. I also have a hunger feeling so eat but that aggravates it more. I'm going to up the omeprazole as I've started taking it again.  Has anyone else had this?

Is that rebound acid from temporarily stopping the ppi? Did you wean off or stop suddenly? I was only on mine for less than two months for gastritis but the ppi itself caused rebound reflux (which I'd never had before) when I first tried to stop it. You may need to wean off gradually. Also wondering what time of day you take it? When weaning off I switched to just taking at night so I was comfortable lying down. I found the rebound acid easier to deal with when awake and upright.

I dont know but yes I did stop suddenly because the consultant and GP said I could do and didnt need to  wean off. However Ive started taking them again and have also got a weaker dose which I am going to move onto. The GP said if I get the symptoms again when I stop I may just need the medication. I take my medicine in the morning but I will swap to evening and see if that helps. My stomach has settled just at the moment but Im dreading being woken again with it tonight as Im shattered after last night and it's so painful. It's the sort of pain I had when I had an ulcer.

[Penguin]

Gosh I think that is really poor advice about not weaning off, even just by doing alternate days then every three days etc. Rebound acid is a known thing when stopping these meds so I'd definitely go slowly. If you take one tonight, perhaps also take gaviscon advance right before bed and prop yourself up a bit (I bought a wedge pillow from amazon which did help a bit) and I'd do daily now until the burn goes (so you don't hurt your tummy lining) then try alternating days. Are you on lowest dose available of the ppi? When I was researching how to come off it safely, forum users were talking about breaking open the capsule and taking a small amount out each day so your body gets slowly used to having less. It can be prescribed in capsules, tablets or liquid so perhaps you could ask GP for liquid or capsule if you've been given the tablet form. Even the NHS website says that symptoms may come back if you stop suddenly and if you have been on them a long time then you may need to come off them gradually.

[Jules]

I was on 20mg daily but I've now been given 10mg to try. I was concerned that I had caused damage to my oesophagus with such a prolonged episode and then obviously to my stomach especially as that's what started the whole saga of referral,  tests and diagnosis of disease caused by acid reflux. And to have got the symptoms under control and be told after so long that I don't have that disease afterall it was upsetting to think I may have caused harm. Both the professor and GP told me I could stop. I'd been taken them for about 18 months. Thankfully I have been ok during the night. I took 10mg omeprazole and used gaviscon at bedtime. I'm going to drop as you say gradually and if I need to take them routinely I will as I don't want those symptoms. I've learned through this last 2 years that you can't trust a doctor, they all give different and conflicting info.

[Penguin]

I was on 20mg daily but I've now been given 10mg to try. I was concerned that I had caused damage to my oesophagus with such a prolonged episode and then obviously to my stomach especially as that's what started the whole saga of referral,  tests and diagnosis of disease caused by acid reflux. And to have got the symptoms under control and be told after so long that I don't have that disease afterall it was upsetting to think I may have caused harm. Both the professor and GP told me I could stop. I'd been taken them for about 18 months. Thankfully I have been ok during the night. I took 10mg omeprazole and used gaviscon at bedtime. I'm going to drop as you say gradually and if I need to take them routinely I will as I don't want those symptoms. I've learned through this last 2 years that you can't trust a doctor, they all give different and conflicting info.

Oh I'm so glad you were okay during the  night. Is your 10mg a capsule? In which case you can reduce very slowly by opening it if you need to, that way you'll get some every night..
I think you've said previously that your diet is good now, so hopefully you'll be okay during the day. I really don't think you've anything to worry about with it coming back for such a short period of time. It takes a long time for damage to build up and lead to cell changes. Plus you are back managing it now so it will hopefully be gone again very soon. From all that I'd read at the time, the body does end up adjusting when you come off the ppi, you just need to manage the interim.

[Jules]

Okay thanks.  I thought capsules were such for a reason though so not sure about opening them. It always tells you not to chew. But I'm going to go slowly. I still feel gas or acid bubbling in my throat but no stomach pain. I can't help but worry with the stuff I was originally told.  I don't totally believe everything is normal and I'm hyper alert to any sensation now.

[Dandelion22]

Sorry you have been suffering again Jules. I stopped taking the Lanseroprazole about 10 days ago and have not had indigestion since.  I can feel some acid in my throat in the mornings but Just stopped taking them without tapering off so could be rebound? I took them for 8 weeks. I am still really careful what I eat, I am not sure if the ppi has altered my gut and it may take time to go back to normal.  I have my endoscopy on Monday to check my stomach ulcer has healed and have lots of questions for them! My Dad took omeprazole for over 30 yrs and never had an issue but I just don’t think they work for me.  I am still concerned my GP prescribed me 80 mg of Omeprazole without me even having a diagnosis so will raise that at my appt as well.

[Jules]

Sorry you have been suffering again Jules. I stopped taking the Lanseroprazole about 10 days ago and have not had indigestion since.  I can feel some acid in my throat in the mornings but Just stopped taking them without tapering off so could be rebound? I took them for 8 weeks. I am still really careful what I eat, I am not sure if the ppi has altered my gut and it may take time to go back to normal.  I have my endoscopy on Monday to check my stomach ulcer has healed and have lots of questions for them! My Dad took omeprazole for over 30 yrs and never had an issue but I just don’t think they work for me.  I am still concerned my GP prescribed me 80 mg of Omeprazole without me even having a diagnosis so will raise that at my appt as well.

Sorry I hijacked your post. I dont think you should worry about your doctor prescribing the medicine though that seems high. I think it is the go to medication for anybody presenting with gastric symptoms like ours and they usually try those first before they refer. When I had my endoscopy last year and they found gastritis I had to take 20mg twice a day for 8 weeks. I think there are some conditions that a higher dose is appropriate though. I dont think its advised to be on a high dose for much longer than 8 weeks and that is usually sufficient though in my case it took longer. I have been on them much longer than you have so probably have more of an effect stopping plus I do produce a lot of stomach acid anyway. I think the long term risk is osteoporosis which is particularly pertinent to women but my GP said it's negligible. I have learned over the last 2 years that none of the advice doctors give is ever consistent

[Dandelion22]

Please hijack away!  I don’t mind taking the omeprazole if the hospital thinks it is necessary I just think 80 mg a day is very high and he didn’t say how long for. It would really help me if they can tell me what my issue is then I can get on with it.  Like you, I feel there is not much consistency in treating this particularly problem. I will let you know what happens on Monday

[Jules]

Please hijack away!  I don’t mind taking the omeprazole if the hospital thinks it is necessary I just think 80 mg a day is very high and he didn’t say how long for. It would really help me if they can tell me what my issue is then I can get on with it.  Like you, I feel there is not much consistency in treating this particularly problem. I will let you know what happens on Monday

My doctor told me my 40mg per day shouldn't be taken for more than 8 weeks and the hospital prescribed for that long too. But as I said it may depend on the problem. My pain appears to have settled.  I'm going to take 10mg morning and night for a week then try dropping one of the doses. Everybody I speak to is on omeprazole or similar

[Dandelion22]

Well, had my follow up endoscopy today. My stomach ulcer has healed but my stomach is full of acid. They didn’t think the Lanseroprazole was causing the indigestion I had suffered and it has reappeared the last couple of days so that is probably the case. I do have very slight erosion on my oesophagus and he thought that might be causing me a bit of an issue so he has recommended me to take just 20 mg of the omeprazole that was prescribed during my last contact with my GP, not the 80 mg that he had prescribed. That is the plan anyway, watch this space:)

[Jules]

Well, had my follow up endoscopy today. My stomach ulcer has healed but my stomach is full of acid. They didn’t think the Lanseroprazole was causing the indigestion I had suffered and it has reappeared the last couple of days so that is probably the case. I do have very slight erosion on my oesophagus and he thought that might be causing me a bit of an issue so he has recommended me to take just 20 mg of the omeprazole that was prescribed during my last contact with my GP, not the 80 mg that he had prescribed. That is the plan anyway, watch this space:)

He thought it was, or wasn't causing it?
What dod he mean by erosion?

[Dandelion22]

The erosion is a patch of irritated lining in the oesophagus or stomach but not near to the ulcer stage. I asked him what had caused the stomach ulcer and erosion and he said it would be the acid.  When I spoke about stopping the Lanseroprazole and the indigestion disappearing he just said that was very unusual and thought it must have been a coincidence.  It was a very big coincidence though!

[Jules]

The erosion is a patch of irritated lining in the oesophagus or stomach but not near to the ulcer stage. I asked him what had caused the stomach ulcer and erosion and he said it would be the acid.  When I spoke about stopping the Lanseroprazole and the indigestion disappearing he just said that was very unusual and thought it must have been a coincidence.  It was a very big coincidence though!

Okay thanks. I ask because there was something noted on my endoscopy report that I didn't understand.  And when I had a repeat it wasn't mentioned. They mentioned a GOJ nodule probably from chronic acid reflux and that i had esophagitis in addition to Barratts Oesophagus. When I had my second one I had been taking omeprazole for 7 months so it might have addressed some of the inflammation. But because I was then told I don't have Barrett's Oesophagus and I could stop the medication, Ive had some acid symptoms again and feel I may have caused inflammation again or worse and if they looked again they would see something different.  Im going to keep taking the omeprazole. I feel the risks from not taking it outweigh the risks from taking it long term.  Isnt it difficult to decipher the facts from what we are told and it's hard to still feel some uncertainty after all your tests are complete and you are discharged

[Smokey]

Hi I’m jumping on this thread to.

I’ve been having problems with my stomach lately too, as some of you ladies may remember I have ms and have had a lot of stress and anxiety lately too with my cat of 15 years dying of cancer and my mum passing away in the same month.
I’ve been having some of these problems beforehand but now worse because of stress I’m currently taking 30mg of Lansoprazole twice a day, but reducing to 1 each morning from today, sometimes I get stomach pain after I take the medication does anyone else get this? I still quite often get indigestion after eating too and like some of you have to take indigestion liquid as well. I’m awaiting appointment for endoscopy my doctor doesn’t think it’s anything serious so I’m not on urgent list.  How was your endoscopy Dandilion22? Were you sedated? I’ve not had one for about 7 years and am already starting to panic.