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[Jules]

I don't get pain with the medication but do if I stop taking it. I was also initially referred as a non urgent because I didn't meet criteria for urgent eg, no blood, no weight loss, no trouble swallowing but I was so worried I paid to see someone whilst I was waiting. I had sedation with both that I had last year. I was ok. Don't remember much about it. It has an amnesiac in it.

[Smokey]

You have put my mind at rest, coincidentally after I posted I had an appointment letter through for the endoscopy it’s on 21st of August.

What I hate is the fact that as soon as I’m hungry I get the indigestion, it’s a pain trying to figure out what to eat all the time.

[Jules]

I think that hunger feeling is acid or it can be gastritis. I get it, I feel hungry and as though food will ease it so eat and it just aggravates it more. Three weeks then?

[Dandelion22]

Hi Smokey, I know what you mean about getting indigestion just as you are about to eat I was having mine just before my evening meal and during the night too. My endoscopist said it was acid as the stomach is getting ready to eat so maybe try to eat a little snack between meals?  I had a stomach ulcer so when I ate it irritated it and also when I was hungry there was nothing to protect the ulcer from the acid but the Lanseroprazole helped with that after a matter of days.  Like Jules said it could be gastritis as that was what I was diagnosed with at my first exam ad that was caused by too much acid. I just had the throat spray both times for my endoscopies, the team were so lovely I asked if I could have the same ones and they booked me for my follow up with them.  The worst bit is the spray, it really is awful!  I just closed my eyes and let them get on with it but I seemed to be the only one opting for that as everyone else seemed to have taken the sedation.  I have switched to omeprazole 20 mg to see if that works better for controlling my acid as the Lanseroprazole seemed to stop working after a few weeks.

[Jules]

They give you the throat spray even if you have sedation. I don't find that too bad. I couldn't manage without sedation.  I've a terrible gag reflex and I'd panic

[Smokey]

Yes appointment is in three weeks t8me thinking back I think I had throat spray and a anaesthetic and just remember them putting the mouth piece in and to swallow and then woke up so didn’t remember anything thankfully.

It just makes me nervous as I’ve had swallowing problems with my MS before  I get so nervous with any appointment, I’m waiting for a follow up letter to confirm, does anyone know if you have to avoid eating beforehand?

[Dandelion22]

Yes, you can’t eat 6 hours before the appt and can have sips of water up to 2 hours before. They usually send the information to you with your appt confirmation. I think if you are apprehensive and have problems swallowing it may be better to have the sedation.

[Smokey]

Thanks. I did wonder about food. I will ask for everything available.

[Dandelion22]

Just a bit more help please on my acid indigestion journey! I have taken the 20 mg omeprazole every day for just over two weeks and have not had indigestion since but after one week I started to experience diarrhoea. It happens within about 2 hours of me eating anything. I know this is a known side effect of taking a ppi and it does say that it will go away when you stop taking the medicine but I can’t continue with this indefinitely. Has anyone else who takes a ppi experienced this at all?
Thank you

[Ayesha]

I take a probiotic every day to balance things out and they work well for me. As you say diarrhoea is a side effect of PPI's and controlling what you eat is important and that means having a fat free diet, PPI's hate fat it seems.

When I started to take probiotics it did settle things down with not so many frequent visits to the loo, except when I pig out on chocolates which is now a rarity these days.

[Dandelion22]

Thanks Ayesha, do you use any particular probiotic?

[Ayesha]

I use Nu U Bio-Cultures Complex, I find this brand the one that suits me the best.

[Dandelion22]

Hi Ayesha, I have ordered some probiotics, did you find they helped settle the diarrhoea down from taking the ppi? I stopped the omeprazole last week and have not had the diarrhoea since but am starting to get the indigestion again so think I need to take them.

[Ayesha]

It definitely made a difference by calming things down. I am on omeprazole long term and used to get bad diarrhoea but not anymore.
Its also down to what I eat, I refuse to give up chocolate but if I eat too much I am on the loo most of the next day but not with diarrhoea just very loose.

I would never give up on the probiotics, they definitely help when having to take a PPI in my experience.

[Dandelion22]

Hi Ayesha,
Just an update as I have been on the probiotics you recommended for a while now and I am so much better. I have managed to wean myself off the ppi and feel like my old self! I know some people have to take the ppi but my endoscopist thought that once the stomach ulcer had healed I could taper them off and have been ok. If I need to take them again in the future hopefully the probiotics will help as I am continuing to take them. Thank you for your help it was so much appreciated.