We have received notification that we can take part in a health trail, in partnership with the NHS. Run by 'our future health' ...... however, it seems that there are several other organisations involved with this 'charity'

and I wonder whether there are in fact, far too many Chiefs and not enough Indians in the whole NHS system.
Surely if a charity is running a research programme, they should oversee everything? Not do the initial contact, then pass on different parts of the results to others to analyse?
How secure is data security 4 example? What happens to that date when research organisations go out of business ..... we have decided not to participate. We have get certain tests done within 14 days of filling in the on-line questionnaire - that is almost impossible to get an appt. across much of the UK in that time scale!