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[Furyan]

[quote author=AngelaH
Wow I didn’t come across this information when I researched Tibolone, thanks for sharing! I started Tibolone a couple months ago, and came off it briefly to go back to body identical as I had a return of flushes. For one reason or another I didn’t seem to adjust to the body identical (too much oestrogen I think) so I’m giving Tibolone another go because I don’t think I gave it a proper chance to settle. I like the energy and personal sensation Tibolone gives me, it also helps with lubrication. I also found that generic Tibolone is not strong enough, I have to take Livial so my GP agreed ro name it on the prescription.

Glad you found a way to take it to support your sleep, may it long continue! Hope mine works out…

Hi Furyan,
To be honest I couldn’t find that information in English language resources, but I did search in my native language too  and this is how I came across this information. I now have finished full 4 weeks of treatment, I had couple of days when I felt like Tibolone stopped working for me, so I still expect some instability. I still have hot flashes too, but energy level is so good and night sleep as well. I intend to continue 3 months and see what happens. Anyway I can’t go back to body identical HRT because it made me feel too sick, my body couldn’t function at all. I was sold Tibolone, when I just started using it, I felt like it was too strong for me, from the second day it started making significant changes to my body, mentally and physically and I even started thinking about changing to a smaller dose, but closer to the end of the month I noticed its effects became weaker. Theoretically it should not be any difference between Tibolone and Livial, but it can be a good idea to ask and try Livial next time.

Good luck with your treatment , I hope it will work for you!

Thanks AngelaH - reading the information you shared kind of makes sense as you describe your experience. I mean, the body appears to break the tibolone compound down into metabolites as it sees fit, which can’t be the same every day surely? So this might account for variable effects at times? Good that you’re waiting it out to give it a real chance. My GP reminded me today that we need a good three months at least to embed its effects and any side effects in the beginning may simply be because we changed something and the body kicks back.

Yes, strange thing about the difference effects of generic and branded, but I definitely didn’t imagine it. I am a little more sensitive to things anyway, being neurodivergent, so that could be why I felt even the subtler differences.

I hope it works for you too - do post any feedback if you think it’s worth sharing please, I’ll do the same

[AngelaH]

I mean, the body appears to break the tibolone compound down into metabolites as it sees fit, which can’t be the same every day surely? So this might account for variable effects at times?

I hope it works for you too - do post any feedback if you think it’s worth sharing please, I’ll do the same

It’s very hard to say for me how my body uses metabolites, Tibolone delivers the same dose every day, but I can clearly feel ups and downs, mainly from estrogen side, the same time high energy level remains constant, I slept deeply tonight for 10 hours and when woke up had so much energy like 20y.o. I like my light body now, I can jump and run like before.  I eat horrible amount of ice cream and don’t put on weight. 

Yes, I continue to explore and I share any interesting and useful information here.

[Peggy60]

Just found this chat as my GP has suggested stopping tibolone now that I’m 60+ It’s been great for me and although I stopped for 3 months I’m back to square one with night sweats, sore joints and bones, tiredness, no energy, low mood etc. So I’ve started taking it again. Any idea how long you can be on tibolone? I need to see my GP soon so any info would be appreciated

[Violetta808]

Hi Peggy - just seen this. At my three-month follow-up I asked this question of the hospital consultant gynaecologist (who prescribed the tibolone in the first place). He said it’s safe to keep taking it after 60 as long I want or need to (obviously contingent on being otherwise healthy, having annual check-ups etc). My GP agreed.

I think the traditional age 60 cut off is due to the tiny increased risk of blood clots from oral hormones (as opposed to transdermal) that rises with age, but it’s one of those recommendations that is a hangover of years-old guidelines, like the outdated one only to take HRT at the lowest dose for the shortest possible time.

[Peggy60]

Thanks for the info. I’m seeing my GP in a week or so and feel as if I may need to persuade them to continue my prescription. It does seem that there are benefits for heart and bone health to continue 🤷🏻‍♀️ I hope so anyway

[flo69]

I had to stop taking tibolone last year for a few months because of the side effect of bleeding. Stopping it was awful, they just stop you dead with no taper, so you go straight into having every symptom of menopause at once.

After a scan I was post meno for sure and was allowed tibolone again, what a relief!

I love tibolone for many reasons, while I was given it for entirely the wrong reasons, told by the locum GP it was completely safe and a good alternative to normal HRT which she thought was dangerous. I read this forum and realise it's not true what she said!!

Anyway I still have a monthly bleed which isn't a period but identical to a period, so who knows what it's called.

I was post meno over three years ago.

Why do doctors call HRT dangerous when you never hear them using that word for any mens' medicine, like statins for example?

[Peggy60]

That's me been seen by the GP and she seems ok with me carrying on taking Tibolone as long as I'm aware of the increased risk of stroke and my BP and general health are ok. Weighing everything up at the moment I would like a better quality of life with hrt. I stopped for 3 months and every symptom gradually got worse - night sweats, disturbed sleep, tired, no energy, sore bones/joints, poor motivation, brain not coping with usual challenges and zero libido. After 2 weeks back on tibolone I am starting to feel more normal and all of the symptoms are getting less. I have no idea how long I'll be able to use hrt but it works so well for my quality of life.

I've not had any bleeding with tibolone except at the very start which was slightly concerning. And I got some headaches when I first started but that all stopped after a short while. I hope that the current research will find out more about hrt use in the over 60's but I'll keep taking it for now.