Hey both
I'd cut my right arm off for mere random boob pain! Ha! Ferritin can be falsely elevated in the presence of inflammation (which mcas is) did they test your HB and RBC, how are they? Do they check your inflammatory markers? My ferritin was 100 and I felt like death, but had just sent myself hyper on my thyroid meds (lost a load of weight, it's dosed per kg of body weight, totally forgot!) and that can send it up. But they infused me on the basis of my Hb and Rbc, serum, and other markers (MCH, MCV, transferrin saturation etc). But totally agree, even some bloody illness with some kind of clear disease progression would be easier to cope with, in particular mentally, than this roller coaster! Not that I'm wishing a disease on anyone but you know what I mean I hope.
I'm still highly adrenalised this afternoon, high heart rate, feel shaky and revved but it's a different kind of feeling to previous days, and not quite so ramped up, histamine is coming down and my lovely mum tells me I look more normal (I look tired, waking at 5am). I've taken all my estrogen dominance supplements, brocolli oil, calcium d glucarate etc to try and process this stuff out of me! I assume this is high estrogen still - hoping this gap of pills might give me a bleed, and settle it down, my previous ups and downs are looking preferable to this nightmare anyway.
I was thinking I'd jump aboard a new pill right away, but think I need to bail out my histamine bucket first and get some semblance of a baseline again, as Im chasing my tail at the moment. I just wish I knew a bit more about prog reactions, do they cause this adrenalised feeling or would I be feeling more bloated, low, weepy, depressed, greasy haired, etc. Or do they make you jittery and wired? What is prog intolerance, nobody seems to ever spell it out. I say that as I'm starting to think maybe for me I need to just do prog only for a bit and get this estrogen opposed, but no way Im putting an implant in my bloomin' womb without knowing if I'm going to be tap dancing on the ceiling within moments of the bloody thing going in!
Gilla, thanks, you poor thing that must have been total heartbreak, after doing so very much better for a good chunk of time. It's hellish isn't it. So I can see you seem to need a good high dose of estrogen, at least in theory, and Zoely wasn't enough for you to suppress the sweats and surges etc (do you mind me asking your age?). I think this is where you and I are different, as too much E sends me spiralling into histamine (although frustratingly probably need it like crispy says to shut the shooting match down, but can't tolerate it long enough to get there maybe). So perhaps Zoely would be OK for me, but I'm so nervous of setting off this shit show again, I'm half tempted to just try Jaydess, steer clear of E altogether until these mad surges are over, and live with my 'normal' ups and downs of E, at least I'm prepared for those (I organise my work diary around my bad days usually, I freelance so I make excuses about meetings, or other commitments and clients never know, it's harder to hide this level of buggered up though, just had to confess to one lot why I hadn't delivered as promised!).
I'm so confused I think I need to let it all settle, I wouldn't recommend it though, withdrawing off this stuff is really quite manky! I want to be clear headed and prepared and well researched when I speak to the gynae, so I ask the right questions. I've tried googling, there's virtually nothing on the internet about Jaydess, just the spiel telling you how wonderful it is. I know you Scampi did OK on just prog coil for a bit with the same issues as me, maybe that's the way to go. Just don't know.
Thanks for taking the time to explain Gilla, I'll come back to your post again when I'm thinking a bit clearer.
Reb
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Topic: GP has prescribed Qlaira - Feeling scared and need encouragement! (Read 92904 times)