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[Fusseh]

Hi
Katejo mentioned that if using an NHS prescription for online pharmacies you don't have to pay the listed (extortionate) price.  Can someone tell me how this works as even though I ticked the box saying I had prescription, the price remained the same at checkout. Do you get refunded when they receive the prescription in the post or is this a blip?

Thanx in adv
H

[flossie fiddler]

Following the last reply, as I saw my doc today and have a prescription for 6 months supply of Everol Sequi, but have rung all the local pharmacies (was on the phone for over an hour) and they can't get them. Ive seen them on Oxford, and on Independent and wondered how it works.

[bear]

Hi
Katejo mentioned that if using an NHS prescription for online pharmacies you don't have to pay the listed (extortionate) price.  Can someone tell me how this works as even though I ticked the box saying I had prescription, the price remained the same at checkout. Do you get refunded when they receive the prescription in the post or is this a blip?

Thanx in adv
H

Hi Fusseh,

I think you have to tick the NHS prescription box, not the private prescription box to have the discount.

BeaR.

[bear]

Hi girls,

This link is just to remind you that drug shortages are a global issue and at least one Giant Pharma is taking measures to avoid them in the near future.

https://www.fiercepharma.com/pharma/bring-machines-merck-kgaa-hopes-pilot-platform-will-stanch-chronic-drug-shortages

BeaR.

[Rosebush]

Hi Ladies  I am so pleased I got my new patches today, picked up my prescription (2 weeks early) decided to try all local pharmacies, before making phone calls to out of town one's, first pharmacy had 8 patches, so decided to try next one just 10mins away, was gob smacked when I got all 24, both mentioned hit & miss with deliveries on lots of meds!!

I have been stretching patches out to 2 weeks, just to save some rather than run out completely, feeling extra hot during night from 10th to 14th day...but just coping best I can..

Someone very kindly gave me their unwanted patches, but they were Estro only, so this time on 10th day I cut one in half and stuck it next to my full conti patch and it really helped not so hot now during night, not sure its the right thing to do, any views you may have would love to hear them, just want this shortage to be over soon for all of us.. x

[Jellyb]

Hi all
This is the reply I've just received from Janssen regarding Evorel patches (i enquired specifically about Evorel Conti).

"Thank you for your email.

We are keeping our corporate website updated with the most recent information on the availability of Evorel products, which can be accessed here. Evorel Conti 8-patch packs are still available, although we are anticipating a complete interruption to supply of Evorel Conti as of November 2019. This is a complex situation with multiple factors impacting our ability to restock the market, and we are working on a return to full supply by mid-2020.

As such, we encourage patients currently prescribed Evorel Conti to discuss alternative HRT options with their healthcare professional. If pharmacies are experiencing any issues with orders while products are still available, they can contact our Customer Services team directly.

We understand the urgency of the situation and will continue to work closely with UK health authorities, healthcare professionals and the British Menopause Society to provide further information and advice as the situation continues to evolve. We are acutely aware of how difficult this situation is for those who rely on our products, and we wish to apologise to all those impacted by the current Evorel shortages.

Kind regards,

Medical Information
Janssen-Cilag Ltd
50-100 Holmers Farm Way
High Wycombe
Bucks
HP12 4EG"

[bear]

Hi Jellyb,

Janssen has acknowledged (to healthcare professionals) that they are having 'bulk supply issues'. Bulk supply is another term for API - active pharmaceutical ingredient.

https://www.medicines.org.uk/emc/dhpc/1589/Document

Bear.

[Hurdity]

Thanks for writing to the manufacturer Jellyb and for posting the response. Looks like all the pharmas who make HRT are communicating with BMS - and I think they summarised this info also in their reply to BMS on their last update.  Therefore looks like the last supplies of Evorel patches will be entering the supply chain over the next couple of weeks. I imagine the situation regarding HRT shortages (here at least) is changing very rapidly as customers switch product.

bear the Janssen information is freely available to all. I thought I'd posted it before - I think it was put up on another site, but I saw that it was the same as the BMS info regarding availability and resumption of supply.

Hope everyone is still managing to get some sort of suitable HRT!! I can't believe I am saying that (as opposed to finessing which product..)

Hurdity x

[bear]

Hi Hurdity,

Janssen doesn't mention ‘bulk supply' issues in their press release https://www.janssen.com/uk/hormone-replacement-therapy-hrt-shortages-uk

‘We continue to experience an unprecedented increase in demand for the Evorel range of products, due in part to the lack of availability of alternative hormone replacement therapies (HRT) not produced by Janssen.'

The BMS website mentions ‘interruption of supply' but doesn't give a cause https://thebms.org.uk/2019/09/british-menopause-society-further-update-on-hrt-supply-shortages-23rd-september-2019/ 

The BMS link hasn't been updated since 24th Sep, Estradot patches are not available any more.

‘There is an interruption of supply for Evorel®, Evorel® Sequi and Evorel® Conti that will result in shortages to patients. The product range will stockout at the end of October 2019. The company anticipates that pharmacies will be out of stock until mid-2020.'

The letter to HCP adds new information: ‘Product availability has been impacted by increased demand in some countries including the UK, combined with issues in bulk supply, resulting in an accelerated depletion of current stock.'

https://www.medicines.org.uk/emc/dhpc/1589/Document

You could check the links before you post that I'm giving old information. And by the way, my username is BeaR. 

BeaR.

[bear]

Thank you for the really helpful info BeaR.
I have a few weeks left of my patches, and that's it for me. I've tried so many over the years and had settled happily (kind of) on Evoril Conti. Nothing else suits so I'm being forced to stop. Can't think it's going to be that pleasant but there are no other options left for me.
😢

Hi McKay Girl,

You're welcome. Oh dear, I'm sorry to hear that, maybe you could ask someone to buy it overseas? They are marketed under other trade marks, Systen,if I'm not mistaken. I really hope you can find an alternative that suits you. My friend has bought FemSeven Conti equivalent, Feminova Plus, in Belgium.

BeaR.

[Butterfly22]

Well Christmas has come early for me, I asked the doctor if he could give me a six month prescription due to the problems I've had in the past and just picked my patches up yesterday (estrederm) I left the prescription there for a few weeks but so pleased I have a few months stability as I need it. Xxx good luck to all xxx

[Hurdity]

Butterfly22 – well done – I know you've had problems with HRT over the years  so I hope this gives you some stability.

You could check the links before you post that I'm giving old information. )

BeaR.

Woah bear hold your horses!  You will see from my post I was specifically referring to “availability and resumption of supply” which as far as I know has not changed recently re Janssen and Evorel.  While of course it is illuminating to read the causes of manufacturing delays, for most of us who use and depend on HRT the most important issue is whether our favoured product is still being made, when supplies will run out from the manufacturer and when they anticipate it will be available again (in UK of course).

We're all running around like headless chickens from pharm to pharm (!) chasing our patches and tablets!

Hurdity x

[bear]

Butterfly22 – well done – I know you've had problems with HRT over the years  so I hope this gives you some stability.

You could check the links before you post that I'm giving old information. )

BeaR.

Woah bear hold your horses!  You will see from my post I was specifically referring to “availability and resumption of supply” which as far as I know has not changed recently re Janssen and Evorel.  While of course it is illuminating to read the causes of manufacturing delays, for most of us who use and depend on HRT the most important issue is whether our favoured product is still being made, when supplies will run out from the manufacturer and when they anticipate it will be available again (in UK of course).

We're all running around like headless chickens from pharm to pharm (!) chasing our patches and tablets!

Hurdity x

Hi hurdity,

Do you speak in the name of ‘most of us who use and depend on HRT', but I presume this is a public forum for anyone to read and I also presume you don't know every member or every member's interests?

I don't know why you keep replying to my posts implying that only the ‘official' information regarding HRT shortages is the ‘right' one, whatever that is. I'm posting info that is available on the internet for anyone to see. I think some members might find it useful. It's not misleading info, I always make sure I post links to the original sources.

For someone who thinks one is 'dependent on HRT', I thought you would be interested to know the real reasons for the shortages. It's bound to happen again, this is not Brexit related (although it's a complicating factor) and if users could be proactive, instead of just moaning about their own situation, maybe all women (present and future, including their own daughters) could benefit from more transparency in the pharmaceutical business.

I hope you don't mind if I call you hurdity as you don't bother calling me BeaR. 

BeaR

[bear]

Well Christmas has come early for me, I asked the doctor if he could give me a six month prescription due to the problems I've had in the past and just picked my patches up yesterday (estrederm) I left the prescription there for a few weeks but so pleased I have a few months stability as I need it. Xxx good luck to all xxx

Hi Butterfly22,

Merry Christmas!    Well done!

BeaR.

[Butterfly22]

Ah thank you 😚xxx