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[Greenfields]

Hi Pinkwindsor, i do have other symptoms thats why i went to the GP in the first place. I do pee all the time which i have done for so long and thought this was a menopause symptom, i did look on the NHS website for symptoms of cancer and they do seem the same, i have put weight on when i thought i shouldn't, and read that weight gain is a symptom for ovarian cyst, (im not sure if these can turn/be cancerous), I just can't understand why my oestrogen would go up....but i cannot understand all the blood results. It's so hard not to try and read things on the internet because you want to know what's going on! My GP did do the CA125 test which was normal, but then i started reading thats not accurate  The bleeding has felt like a period but the anxiety is absolutely terrible!! Ive been trying to ring around and get a transvaginal scan because the wait is torture and im scared the NHS will take longer!

[Miss Sunshine]

I'm coming onto this thread in the hope I can reach my people i.e. late menopause.  I'm 55 and waiting on the 2 week referral for bleeding.  I was on hrt until November 24.  Had been on it 1.5 years.  Had fairly regular periods before starting HRT.  Got some withdrawal bleeds on hrt but not every month.  I then didn't have a period for about 4 months, had a light bleed for a day or 2.  Then I had breast clinic investigations so came off hrt in November 24.  Feb '25 diagnosed with dcis. Had lumpectomy and 5 sessions of radiotherapy.  I'm currently bleeding and have been for 10 days. Not heavy but more than spotting.  This came 2 weeks after my last period so was very unexpected.  I've had 2 periods since March,  5 weeks apart and then 2 weeks later this bleed.  I'm so worried I have a new cancer.   I've never felt so hopeless and worried.  Has anyone experienced anything similar.  Doctor isn't concerned about late periods but has said another bleed so soon needs investigating.  I agree, I'm just scared out of my mind.

[sheila99]

None of it is unusual for late peri, I think she's just being cautious which is a good thing. If you were 50 she'd probably just tell you to go away and stop worrying. I've had periods close together as well as far apart, light, heavy, clotty, short, long, it's all part of the the joy ( ) of meno.
Oh, and the panic when you mention the 2 recent periods you've had in your 60s...

[Miss Sunshine]

Thank you Sheila.  I appreciate your words of comfort.

[Clovie]

Hello, just bumping this thread in the hope there are other late menopause ladies to talk to...

Going through a bad and anxious time (for me anyway, as I have major health anxiety) am being sent for another scan as I am still bleeding - but - on a predictable, regular basis for a predictable length of time, with all the PMS symptoms preceding the bleed despite the fact I have been on continuous HRT for over 2 years now.

I refer to the bleeds as periods because I think they are, I've never had my periods stopped, ever, I think I've missed the odd one period over the years, never missed two.
My doctors will not refer to my bleeds as periods because I am 61. They call it abnormal bleeding and my scan letter says Post Menopausal bleeding! 
Had a scan 2 years ago because I could not POSSIBLY still be having periods, yet my scan was absolutely fine, no thickness, no other issues and was told my 'womb was that of a menstruating woman'.

I am dreading my scan, imagining the worst. Terrified of further investigations. I'm beside myself.... 

Anmyway, just bumping in case any other late ladies out there...

 

[sheila99]

I think GPS have to do this for safety but once you get to hospital doctors they're likely to know more. If you want some ammunition you could do a blood test. I've just done the randox female hormone one and it shows FSH and LH a long way below post menopausal range (they increase post meno). I'm 64 but have a mirena so no bleeds now.

[Clovie]

I think GPS have to do this for safety but once you get to hospital doctors they're likely to know more. If you want some ammunition you could do a blood test. I've just done the randox female hormone one and it shows FSH and LH a long way below post menopausal range (they increase post meno). I'm 64 but have a mirena so no bleeds now.

I'm seriously considering Mirena despite being intolerant of synthetic progs, but I'm afraid of the fitting, and subsequent removal. I've read some ladies get pain and cramping with it, whilst at the moment I have zero pain and some ladies still get bleeding. I'd have to have it fitted with sedation or something... 

[Lma]

Hello all, I’m 64 and convinced I’m not post menopausal (unlike multiple gynes) as having heavy bleeding and a slightly thickened endometrium I’ve been on various plans for progesterone tablets for about the last 4 years. So  did this new WidEasy test that looks for uterine cancer, it came back positive. So a biopsy and yet another MRI later they can’t find anything wrong. As with all the ultrasounds and tests I had regularly for years. So I’m very confused. I was booked for a hysterectomy yesterday but was cancelled for admin reasons.

Do I really need it? Why does no one believe those of us who are late menopause? My FSH when tested 3 weeks ago was 21.4!

[Clovie]

Hello all, I’m 64 and convinced I’m not post menopausal (unlike multiple gynes) as having heavy bleeding and a slightly thickened endometrium I’ve been on various plans for progesterone tablets for about the last 4 years. So  did this new WidEasy test that looks for uterine cancer, it came back positive. So a biopsy and yet another MRI later they can’t find anything wrong. As with all the ultrasounds and tests I had regularly for years. So I’m very confused. I was booked for a hysterectomy yesterday but was cancelled for admin reasons.

Do I really need it? Why does no one believe those of us who are late menopause? My FSH when tested 3 weeks ago was 21.4!

Oh my god Lma, your post made me feel like a panic attack was coming on, I felt sick to my stomach.
I read some of your older posts - why the he** are you being pushed into a major operation , is it just your age?

I can see this down the road for me, an uphill battle all the way, I'm really worn out by this, it's making me ill, I have no interest in anything I'm consumed by this. I'm sick of this rearing its head every time.

looking through this thread more carefully I feel worse, why are us ladies being treated as absolute freaks just because we are late menopause? Just because we don't fit the medical norm?
Yes, I understand the need to treat various physical evidenced anomalies but to make me feel like they have made me feel is breaking me.

I go for a few hours feeling positive (no red flags, no reason to think I AM menopausal and it may have slipped my mind that my periods stopped   before I plunge into panic again. I mean I am REGULAR, predictable, I bleed for a set length of time, starting  low flow building, then tailing off (you know, like a PERIOD) and I get all my usual PMT symptoms beforehand. I have no dryness down below or other signs of atrophy etc. Why can't they just believe me?

I can see this being the start of  a nightmare for me. I don't want any invasive tests. I don't want a hysterectomy. i don't want my HRT stopping. I feel helpless.

Sorry I know I must sound a bit unhinged but I have no-one else to talk to. Honestly, I am a reasonably intelligent normal married mum with grown up kids and a nice life, normally I am fun and happy and jolly.... 

[Lma]

It’s reassuring to know I’m not alone, the feeling of being shoehorned into a ‘diagnosis’ is really destabilising as it makes you doubt yourself. I’ve done uv tests,every 6 months or so, and mris and biopsies they asked me to do for 7 years but still they can’t find any ‘logical ‘ explanation to them for heavy bleeding and lately periods that last 2 weeks, with some small clots, so in their minds it’s post menopausal, which we all know is bad, so it’s turned into project fear…it may be cancer but we may have missed it.


When my insurance company declined cover to remove ovaries and tubes, due to lack of clinical evidence, (and also wouldn’t cover robotic assisted op - apparently this is quite common but the consultant didn't think  to mention this), that was enough for me and I cancelled the hysterectomy being sufficiently spooked.

[Clovie]

It’s reassuring to know I’m not alone, the feeling of being shoehorned into a ‘diagnosis’ is really destabilising as it makes you doubt yourself. I’ve done uv tests,every 6 months or so, and mris and biopsies they asked me to do for 7 years but still they can’t find any ‘logical ‘ explanation to them for heavy bleeding and lately periods that last 2 weeks, with some small clots, so in their minds it’s post menopausal, which we all know is bad, so it’s turned into project fear…it may be cancer but we may have missed it.


When my insurance company declined cover to remove ovaries and tubes, due to lack of clinical evidence, (and also wouldn’t cover robotic assisted op - apparently this is quite common but the consultant didn't think  to mention this), that was enough for me and I cancelled the hysterectomy being sufficiently spooked.

I really feel for you... 
We didn't ask for our periods to carry on this long did we?
I feel like they think I'm in denial about getting older or something? Like I am pretending still to be having periods.
NO.

What's next for you now you've cancelled the hysterectomy, Lma?


It would be interesting to know when all these ladies on this thread stopped having their periods. I'm nearly 62. My mum was 58.
Every time I'm due on I'm crossing my fingers it doesn't happen.

I'm now taking 200mg Utrogestan every night instead of 100mg so hoping that will stop my 'period' this time - but I due for a scan in 2 weeks so I don't want to be scanned just before I am due to bleed as if I do have any kind of lining build up i don't want them ringing all the alarm bells.

All your tests, Lma, were you offered any of them with sedation? I have major health anxiety so would need to be sedated for anything doing. Obviously Id prefer not to have GA due to that in itself having risks.

Thanks for replying, appreciate it, really do 

[Lma]

Well, Clovie, my new plan is to see an endocrinologist to see if she can explain my oestrogen, FSH and LH readings.

As I have been on and off provera progesterone for 4 years or so, as my body expelled the last mirena coil I had.
Took last tablet last Friday, waiting to see what will happen now.

I have no meno symptoms.

I had the hysteroscopy biopsy done using local sedation, an injection into the cervix, the injection was painful but otherwise didn’t feel a thing.  My previous one (with a D&C) I’d had done under general. No pain related to TV ultrasounds (just a bit undignified) or MRIs.

[Clovie]

Well, Clovie, my new plan is to see an endocrinologist to see if she can explain my oestrogen, FSH and LH readings.

As I have been on and off provera progesterone for 4 years or so, as my body expelled the last mirena coil I had.
Took last tablet last Friday, waiting to see what will happen now.

I have no meno symptoms.

I had the hysteroscopy biopsy done using local sedation, an injection into the cervix, the injection was painful but otherwise didn’t feel a thing.  My previous one (with a D&C) I’d had done under general. No pain related to TV ultrasounds (just a bit undignified) or MRIs.

Thanks, Id need actual sedation, be somewhat 'out of it;' rather than anaesthetic for the pain. Its the mental side of it as well as the physical. 

Good idea, your next plan. Sorry, I may have misunderstood, during all these investigations etc, were you still prescribed HRT, or was it threatened to be stopped if you didn't submit to the investigations?

Me, I'd rather have a scan and then IF (Hoping to the heavens!) it is fine then to be left alone again for another year because I feel my periods are changing over last 6 or 7 months. Lighter and slightly closer together, but still PMT etc etc. They MIGHT be stopping?

I do not want to be bullied into any invasive tests, nor do I want my HRT stopped...

[Lma]

I’m not on HRT, was prescribed progesterone to oppose my own oestrogen production, as without it the uterine lining got too thick.

[Clovie]

I’m not on HRT, was prescribed progesterone to oppose my own oestrogen production, as without it the uterine lining got too thick.

Ah, I see.  Thanks.
Are you still having periods then?