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Author Topic: Endocrinologist  (Read 3755 times)

donnacrichton

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Endocrinologist
« on: February 08, 2017, 09:49:15 PM »

Had a check up today and gynaecological confused why I get anxiety & burning when estrogen rises. My own system has been shut down so think maybe one of the other hormones out of sync. I've always thought estrogen was the problem during meno could the balance cause this much grief?
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CLKD

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Re: Endocrinologist
« Reply #1 on: February 08, 2017, 10:47:49 PM »

Yep. 
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dangermouse

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Re: Endocrinologist
« Reply #2 on: February 09, 2017, 05:04:06 AM »

There seems to be a pattern with gynocologists finding oestrogen intolerance unusual - my friend who saw Prof Studd was also greeted with 'are you sure, it's normally the other way around?' in terms of where in her cycle she felt anxiety and depression.

I don't know if this is due to Gynos treating more young women (if they deal more with pregnancy?) or with post meno women who are more likely to need oestrogen, but endocrinologists seem more aware that everyone is different and one woman's balance is another's imbalance.

There are no good or bad hormones, it's simply that balance is good and imbalance is bad. Two women suffering from anxiety, depression, migraines or flushes may need the exact opposing treatments.

For me, surging oestrogen is the most debilitating state I've ever experienced and it's potentially dangerous given the growths it's already caused on my liver, not to mention the risk of oestrogen driven breast and endometrial cancer.

More diagnostics and less guesstimating would help patients so much more than all this trial and error - particularly when we have to feel those errors!
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donnacrichton

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Re: Endocrinologist
« Reply #3 on: February 09, 2017, 10:17:17 AM »

I have the marina which us now running out & needs replaced. Never mentioned any other hormone at all so when I asked could it be a different imbalance he looked puzzled. Don't get me wrong this consultant has been really supportive but wouldn't this be quite common?
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dangermouse

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Re: Endocrinologist
« Reply #4 on: February 09, 2017, 10:18:33 PM »

I'm not sure what you're asking is common but maybe just get your Mirena refitted and then if it's the low progesterone causing the problem as oestrogen rises it should solve it if this worked for you before.

Docs will go for the most likely diagnosis, without thorough tests and monitoring, but we keep reading about them (particularly Prof Studd as he's seen by many here) being surprised about a patients symptoms not fitting a common pattern, or their protocol not working, even though they clearly are saying these same words to lots of women!
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Tempest

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Re: Endocrinologist
« Reply #5 on: February 10, 2017, 10:01:38 AM »

I'm definitely one of the women who can't tolerate estrogen only hrt, I know that! It was an absolute nightmare for me and I'll never go back there. Even the most seasoned consultant's can't understand when this happens and think you're an oddball (but some, a very few, are prepared to listen).

To me its a no brainer. Our bodies require balance - anything other than this is just not natural and will cause pretty nasty effects.
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Wantmylifeback

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Re: Endocrinologist
« Reply #6 on: February 10, 2017, 11:41:53 AM »

Hi Folks

I would agree, I seem to be at my worst around day 7-8 of my cycle. Every time I express this to GP or meno clinic they all look at me like I have 2 heads. I literally hit a brick wall on day 7/8, I feel sick, dizzy extremely tired and anxious. This has been happening every month at the same time for the last 2 1/2 years. I have tried patches, gel and now on BCP and nothing stops these horrendous 7-10 days. I was at the meno clinic yesterday and the consultant couldn't understand how I was still getting this dip when my cycle has been shut down! I am so......fed up of being made feel like I'm imaging these symptoms, I can barely function for a week of every month. This is not in my head it is very real! I just wish someone could find the right thing for me and let me get on with my life. 😡😞

WMLB
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donnacrichton

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Re: Endocrinologist
« Reply #7 on: February 10, 2017, 12:44:15 PM »

Every time I go they say my system is shut down and on steady estrogen so should have no fluctuations. I agree in theory but that's not happening. So if it's not the estrogen surly that means another hormone. Tearing my hair out 😠
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Hurdity

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Re: Endocrinologist
« Reply #8 on: February 10, 2017, 04:35:45 PM »

Had a check up today and gynaecological confused why I get anxiety & burning when estrogen rises. My own system has been shut down so think maybe one of the other hormones out of sync. I've always thought estrogen was the problem during meno could the balance cause this much grief?

If your system has been shut down, if I understand correctly, then your ovaries are no longer producing oestrogen nor testosterone (or is it just ovulation that is suppressed?). It is the amounts of these two hormones which are crucial not progesterone. We only produce large amounts of progesterone to prepare for pregnancy and during pregnancy. Oestrogen and testosterone are our two main sex hormones so inadequate levels of either/both will cause symptoms and of course an imbalance in favour of testosterone is also not good for women!

I am not clear why you say oestrogen is rising - as if your system is shut down I presume most of your oestrogen will be coming from exogenous source ie the gel - and relatively small amount from your body - and not your ovaries (I'm not quite clear about what shutting down actually does?). You should no longer have a cycle of any sort - I thought that was the whole point  :-\. No other hormone will be cycling if you are not ovulating as you will not produce a corpus luteum therefore no (additional) progesterone, nor the slight rise in testosterone that occurs at ovulation.

Steep rises and falls of all our hormones can give rise to symptoms - hence the mood swings in peri-menopause - even sudden steep increases in oestrogen can have adverse side effects.

I don't really know what you are saying re the Mirena? This only provides protection for the uterus. The amount that is absorbed systemically in no way replicates the effects of progesterone elsewhere in the body - so I have read and in fact can interfere with it as well as giving rise to some negative side effects in some women - although these should wear off by the time 5 years is up ( but then is not providing uterus protection).

Hurdity x
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dangermouse

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Re: Endocrinologist
« Reply #9 on: February 10, 2017, 07:08:46 PM »

I think I had a near to 'shutting down system' when on the pill (as it's large amounts of hormones that dampen our own down) but in mid 40s I could still feel my cycle clearly going on behind (which didn't happen when younger).

Our hormones are SO powerful that when they're surging or plummeting we feel it despite any dampening down effects from HRT or the pill.

I think some wome find raising their oestrogen HRT even more will take more charge of the cycle but some just feel the build up of tension in their bodies too much (probably more peri women as post probably are so low it's hard to take too much).

Otherwise it's a more complex case of adding smaller amounts of what you need, which can only be done privately at some expense.

Wouldn't it be great if there was a home kit where you tested each morning and it gives you the perfect dose of what you need - maybe in the future!

I guess we can be grateful that we're no longer shipped off to the nearest asylum diagnosed as a hysterical women!
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CLKD

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Re: Endocrinologist
« Reply #10 on: February 10, 2017, 08:17:19 PM »

The Pill - used as a contraceptive method - stops the egg dropping down, it doesn't alter the 'period'/cycle.  Therefore the womb prepares itself along with PMT, weepyness, nasty temper etc. until the bleed begins.  It also took away my sense of smell apart from garbage  >:(

When our dog was injected with hormones to 'shut him down' prior to castration, it was to see if the injection made any difference to his temperament: it didn't  ::).

Why doesn't the Meno-clinic listen to what they R being old?  If you are experiencing hormonal upheavals then it is *real*!  They should be taking on board any anolmolies that they are being told in order to look into any adjustments required!
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Wantmylifeback

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Re: Endocrinologist
« Reply #11 on: February 10, 2017, 08:35:54 PM »

CLKD

You just hit the nail on the head, I feel like a crazed lunatic since starting on BCP, I growl at everyone, I can't stand to be in my own body half the time. The only improvement has been slight clarity in thinking and a little increase in motivation to do things, other than that I am miserable and making those around me miserable. I'm scared to open my mouth as I don't know what foul thing will come out of it!

WMLB
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CLKD

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Re: Endocrinologist
« Reply #12 on: February 10, 2017, 08:47:23 PM »

Presumably you have 'cycles'? there4 any moodiness should be 10-14 days prior to the bleed and go away once the period begins.  It if isn't suiting you ?  :-\ ?
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dangermouse

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Re: Endocrinologist
« Reply #13 on: February 10, 2017, 09:10:33 PM »

'Should be' though is the problem as that is presuming it's classic PMT (although that tends to be the last week of the cycle when both hormones suddenly drop and some say it's falling oestrogen and some faling progesterone but possibly a combination of them both).

My first half cycle was a nightmare and once ovulation was over I could breathe again until it all started climbing again at day 7ish.

The moodiness on the pill is often down to the synthetic progestogen - I was ok with Norethisterone but would hate even a cuddly kitten on Levonorgestrel! If you haven't shopped around then try one with a different prog in case it suits your body chemistry better.
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donnacrichton

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Re: Endocrinologist
« Reply #14 on: February 10, 2017, 10:05:13 PM »

While on zolidex which was supposed to stop ovaries working I was still getting estrogen breaking through so switched to buserelin which shuts down the piturity gland so no estrogen should be made from the ovaries. I'm finding even on the nasal spray I am getting symptoms of burning back head zaps and very adjitated which decrease as soon as I remove my estrogen patch. I can feel the relief in a matter of hours. This is the reason it feels like estrogen but maybe a different hormone. I have now got very bad scarring acne. Didn't think of it mu h until now but my colleagues have mentioned and made a laugh out of my voice deepening and also very strange arousal problems maybe tmi sorry. Seeing consultant again in 3 weeks hoping for any answers 😢
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