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[Menomale]

Hi Annie,

You mean taking bcp or hrt along with Tibolone?

[warwick01]

Hi Annie

Good to hear your doing ok

I think your correct Suzanne turned a corner at around week 9. Every time I have tried to reduce my Oestrogel always go dizzy so completly stopping is no surprise re the dizziness. Checked my BP all ok so like Tempest holding on tight to this roller coaster.

Suzanne - did you have the strange head /dizziness? and how you feeling now ?

Wxx

[Annie0710]

I'm almost certain Suzanne had dizziness Warwick

Menomale - only going by shat I read on here but is it Zoladex ? It suppresses the cycle then Tibolone is given to add back x

[Menomale]

Thanks Annie, I don't think I'm a candidate for tibolone anyway (as I said on the other thread) but even if I was I'm not sure why to suppress the cycle would be of any benefit in my case because I had a bleed only in December 2015 and another in October 2016...

[Annie0710]

Oh I don't know Menomale, it all goes way over my head, sorry xx

Just realised I wrote shat above lol x

[Tempest]

I'm pretty much having everything you've described today, Warwick! It's been HELL. And from nowhere - the jelly legs have started. Worst of all is the incredible anxiety! I'm convinced this is some kind of 'semi-crash' - it's been 5 days off the Estrogel. Guess I have no choice but to persevere.......I've had this happen before, stopped an HRT, felt good for several days and wham! It's happened when I've either reduced dose or stopped completely - the stopping completely of course has been catastrophic! Taken BP a couple of times today and it's falling lower. Last reading was 98/62!

[Menomale]

Oh I don't know Menomale, it all goes way over my head, sorry xx

Just realised I wrote shat above lol x

From one menobrain to another... 

[Annie0710]

I'm pretty much having everything you've described today, Warwick! It's been HELL. And from nowhere - the jelly legs have started. Worst of all is the incredible anxiety! I'm convinced this is some kind of 'semi-crash' - it's been 5 days off the Estrogel. Guess I have no choice but to persevere.......I've had this happen before, stopped an HRT, felt good for several days and wham! It's happened when I've either reduced dose or stopped completely - the stopping completely of course has been catastrophic! Taken BP a couple of times today and it's falling lower. Last reading was 98/62!

 
Hate it when you don't feel right, I really do

How low can your BP go before you have to see someone ? I've always had low BP and during pregnancy once they were astonished at my lower number being 50

Xxx

[warwick01]

Hi Tempest,

Look at this as normal in the circumstances. Like my Gyne said it's like any withdrawal effect we are suffering. My BP has lowered over the last 7 days - but then again it was to high on Oestrogel which I put down to always feeling wired and agitated was like one of those mechanical bunnies ha ha. 

I am more calm this last week even with these crappy headaches. Also feel more stable mentally.

You will be fine in a few weeks. Don't dwell on the past hormonal crashes. You are on the right medication to get your life back on track. Be kind to your self, keep occupied (look at planning a holiday) and make no plans for a few weeks.

I apologised to my DH for not wanting to go anywhere or do anything. Not even a walk in the park. He is good and understands I have to make changes which are not easy but hopefully get back to the women he married 12 years ago. Such a shame things started to change due to meno 4 years after we married

With you all the way Tempest....... Wxx

[Tempest]

I'm not too sure, Annie! I don't want to panic though as things can get out of control in that department for me very quickly! I'm just trying to relax as best as I can as I NEED this to work - it's pretty much my last option. I'm also super stressed today because I have a phone consultation with my Psychiatrist tomorrow round midday - luckily, he's agreed to do this rather than me going to his office at the moment. I just don't want to have a meltdown when I speak to him as that never ends well.......

[Annie0710]

But make sure you explain to him that this is early days on this regime Tempest. 

Sending you big calming hugs xxxx

[Tempest]

Warwick, THANK YOU!!!!! Your post has made me feel much, much better! I tell you what - a HUGE part of this for me is because I feel I need to prove that a lot of what I've been suffering mentally since my oopherectomy is hormonal - I KNOW it is as I know what I was like before! I feel like the 'pressures on' every time I speak to my psychiatrist! He's is a very nice man and is loathe to medicate me - even though my GP is putting pressure on in this department! I know he wants to see if HRT does the trick before hitting me with 'head meds'. I just feel like I'm under the spotlight continually though!

We also felt exactly the same on Estrogel! I couldn't stand it - even though my Menopause Consultant felt I wasn't absorbing or circulating it efficiently. Energiser bunny from hell is a good description!

I also did a bit too much yesterday. Loads of tidying, and today I've tried doing the same and trying to smarten myself up a bit when I should have just clung to the sofa a bit longer, probably! I'm my own worse enemy in this department. 

I cannot begin to tell you how much your post has really helped - it was just what I needed right now. Hubby is just in from work and I've just told him what you wrote - he says thank you, and wise words (he reckons I never listen to him when he tries to reassure me - not true! He's a lovely guy). I can't believe that even though you're dealing with your own issues with starting the Tibolone, that you've taken time out to find such thoughtful words for me.

Yes, I hope we CAN get back to the women our Hubby's married - at least to some good degree. That would be wonderful, wouldn't it?!

Much love, hugs and thanks! xxxxx

[Tempest]

Aww, thank you too Annie! I'm always scared witless that I'm going to come across as an even bigger basket case when I speak to him. I've decided that I'm going to try to calmly explain about the Tibolone. He knows a reasonable amount about HRT, but I don't think he's ever heard of Tibolone. When I tell him that it replicates all 3 hormones, I just have visions of him beating his head off his desk thinking 'oh Christ! This is ALL we need'!!!! Women + hormones scare him, I think!!!! xxxxx

[warwick01]

Tempest

Just to add - we know our bodies.

After the birth of my only daughter when I was 18 I suffered major hormone crash. More anxiety panic etc. Never told anyone suffered in silence. Got by and eventually settled on the pill.

Fast forward 10 years - went off the pill to try for second baby. No stress in my life went on holiday to Corfu and WOW within 24 hours I went into a hormonal meltdown (physcotic) episode. Flew home the day after and went straight to GP who did a referral to Psyci team told I had a breakdown. Bloody rubbish......went back on the pill and things got back on track

No one believed me it was hormonal. All started again post meno for me. Was fine in my 40's hit me in my 50's. Hope this helps!

Wxx

[Annie0710]

Aww, thank you too Annie! I'm always scared witless that I'm going to come across as an even bigger basket case when I speak to him. I've decided that I'm going to try to calmly explain about the Tibolone. He knows a reasonable amount about HRT, but I don't think he's ever heard of Tibolone. When I tell him that it replicates all 3 hormones, I just have visions of him beating his head off his desk thinking 'oh Christ! This is ALL we need'!!!! Women + hormones scare him, I think!!!! xxxxx

Then this is a good start for him to learn! He must've come across your situation before and unfortunately you won't be the last.  Educate him Tempest and get him understanding.  Write notes tonight as bullet points to explain so you don't get in a tizz on the phone

Remember: this is your chance and the more specialists in your side, your better hope of recovery xxxx