Hello all, I had a total hysterectomy back in 97 at age 26 for endometriosis. Straight into menopause and to be honest the worst thing i ever agreed to was having that operation.
Only on HRT for a year as the patches gave me bloody supperating rashes and my g.p refused to change my hrt. Also dose was too low and I was still getting menopause symptoms. Another g.p suggested i wear two patches, yay that will really help my rash.
Anyway off hrt for over 10 years just started estradiol gel on arms but none of my doctors will give vaginal cream. Keep getting told not needed what I'm getting is enough.
Now to what is making me miserable. I have suffered bowel problems for a couple of years, things became a lot worse this year. Had blood tests all normal, chest and stomach x ray, normal, colonoscopy, no path changes, no polyps, no imflammation, challenging procedure because of bowel looping and could not get down last part of colon. Wanted me to have a barium x ray for the last part but i cancelled, had had enough by then. Told probably IBS.
Was told i have pelvic adhesions from the hysterectomy, get a lot of bowel grumbling and where i used to have the endometrial pain in right groin that still flares up. One time ended up in hospital on morphine, most of the time it is a deep, gnawing ache.
Most of the time i have stomach pain which radiates into my back. Weirdly i also get a strange sensation in my back which feels like someone is pressing a block of ice into my back. I dread getting that because I feel so ill with it.
All this summer ibs was hell, lost a lot of weight doctors had no clue why. Finally starting to put it back on a little, all these years of not being able to keep my weight down after the hysterectomy, things reversed and I was having to eat constantly just to try and keep the weight on.
Now to the scary part. I do get vaginal stabbing pains quite often, gynacologist had no clue, suggested maybe scarring from hysterectomy, but scared me by saying my hrt would probably reactivate my endometriosis and I should be prepared for more abdominal pain and adhesions.
Feeling pretty scared to take it now, thinking i should stop.
Now a few months ago during a bout of constipation, i use a squat potty, find it impossible to use a normal loo, I was straining and started to bleed, stood up blood everywhere and I freaked, really freaked out.
I initially thought it a rectal bleed until a couple of days later i started to get severe and i mean severe pain in my girly bits, like someone pushing razors in. Doctor said I had a urethral caruncle and a large haematoma. Three more doctors agreed. I swear, more men (doctors) have seen my bits than have walked on the moon. Could not walk or sit properly for a couple of weeks.
Several weeks passed, saw a gynacologist who had to examine me with a child size speculum as I was screaming in agony during the exam. I then saw another who couldn't believe what she was seeing and dashed off to get her colleague. No caruncle, definitely not, told it all looked normal, no one can explain what the bleeding or heamatoma was.
Does anyone have any idea? Could I have burst a blood vessel in my urethra straining.? Several urine tests all clear. I do have a creamy white discharge but I have had that for a few years, no infection.
I still get the stabbing pains and my ibs last few days has kicked off so i am straining again but I am terrified in case i bleed again. The pains are sharp knife like and sometimes it can be embarassing in public when a sudden sharp pain will make me stop to catch my breath. They come and go but all the time i have an abrasive sore feeling.
I also get a lot of discomfort right across bottom of my stomach, weirdly it feels rather like severe PMS just before a period. I also get a lot of spaced out feelings and feel exhausted and shaky. Also have osteopenia, arthritis, chronic back ache and have nerve problems in my legs, probably the adhesions pressing on my sciatic nerve. Doctor said my vitamin levels were best she had ever seen and thyroid and everything normal so why do I feel like crap and why do my girly bits feel like someone is shoving razors in.?
Would continuing on hrt help?
