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Author Topic: Am I the only person here with Lichen Sclerosus?  (Read 52071 times)

Eddie

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #60 on: October 12, 2012, 09:12:16 PM »

I use vagifem too, maybe i should stop it, my g.p. would love that, just to see if it makes any difference, i feel fine inside. It is so difficult to know the difference. Eddie. x
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Eddie

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #61 on: October 25, 2012, 03:43:04 AM »

I had to see my GP today for a prescription for Vagifem, she never gave me it, I mentioned I was sore again and she wanted to check. She said she def thinks it is LS and not meno. Referred me to Gynae. She also did swab for thrush again. If I have thrush again thats twice in as many months.
Eddie. X
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CLKD

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #62 on: August 19, 2013, 09:00:11 PM »

BOUNCE
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Taz2

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #63 on: August 19, 2013, 09:36:44 PM »

Do you  mean BUMP?  ;D ;D ;D
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CLKD

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #64 on: August 20, 2013, 11:07:36 AM »

Hands, knees etc..    We have a new member with a combination of issues so thought it might be useful for her to read  ;)
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Elena

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #65 on: August 20, 2013, 02:29:47 PM »

BOING   ;D
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CLKD

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #66 on: August 20, 2013, 03:35:39 PM »

said Zebedee  ::)
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Melbury

  • Guest
Re: Am I the only person here with Lichen Sclerosus?
« Reply #67 on: August 29, 2013, 08:33:14 PM »

Hello again all of you fellow LS sufferers :)

How is everyone doing? 

I am not too bad, still have phases where I need to use the Locoid cream for a few days, but generally pretty OK.

Would still rather have my bits back and in good working order though ;)

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CLKD

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #68 on: August 30, 2013, 02:34:08 PM »

The Trial and Error of finding relief and treatment for any chronic condition can be tiring.  Then there is the constant need to remind ourselves to manage the condition before it gets bad again  ::)

GROUP  :hug:
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Eddie

  • Guest
Re: Am I the only person here with Lichen Sclerosus?
« Reply #69 on: September 02, 2013, 01:34:43 PM »

Hi Mel. I have all the symptoms of Lichen sclerosus, but the biopsies were negative. There is a question over where they were taken from though.
So my diagnosis is Vulvodynia, however nothing is treating it.
Eddie. x
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honeybun

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #70 on: September 02, 2013, 01:47:30 PM »

Hey Eddie

Nice to see you back. At the risk of hijacking the topic for a second.....How are you and the family.

Honeyb
X
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Eddie

  • Guest
Re: Am I the only person here with Lichen Sclerosus?
« Reply #71 on: September 02, 2013, 01:55:34 PM »

Hi Honeybun. Nice to see you too. We are all a bit stressed just now, Youngest is still in and out of hospitals with pelvic pain, waiting for another ultrasound, but she is full of pain killers and other stuff because they wont admit her. Oldest has just moved into a nicer flat with the same boyfriend, we still don't like him.
Mum is good, YEAH...... Hubby was assaulted in town a few weeks back, so he is suffering bruised ribs and back pain.
So....... bet you're sorry you asked?

How are you and your family?

Eddie. x
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honeybun

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #72 on: September 02, 2013, 02:00:01 PM »

Sorry to hear that you have been having a bit of a time of it. Hope your hubby is recovering well. Have they still not found out what's causing your youngest all this pain. Poor soul.
We are all much the same. My baby is leaving home to live in halls. She got her keys today and moved some stuff in. The rest will go over the next two weeks or so. I am going to really miss her.
Mum.....well just the same as ever only older and more crabbit.

Same old same old.

Honeyb
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Eddie

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #73 on: September 02, 2013, 02:10:21 PM »

Oh, i couldn't bear my youngest leaving the nest! What a though. She was diagnosed with polycystic ovary syndrome, last summer, but the frequent urine infections have not stopped, or the pain. We were advised that pcos doesn't give you pain, so looks like something else has presented itself. My chance of being a grandparent is flying out the window. (joke)
Eddie. x
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Elena

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #74 on: September 03, 2013, 04:17:51 AM »

Is it endometriosis Eddie?

My daughter has PCOS and also gets pelvic pain which has been diagnosed as IBS but i do have a friend whose 22 year old has endo.  Horrible disease :(
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