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Author Topic: Am I the only person here with Lichen Sclerosus?  (Read 52048 times)

Melbury

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Am I the only person here with Lichen Sclerosus?
« on: January 16, 2012, 08:43:01 PM »
Just wondered if anyone else on the site suffers from this - feeling a bit down and alone  :'(



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sweettooth

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #1 on: January 16, 2012, 09:03:10 PM »
Sorry Melbury that you are feeling so down and alone. I dont have any answers for you im afraid but just wanted to say hello and im thinking of you. Im sure someone will be along who has experience or knowledge. Take care xxx
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CLKD

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #2 on: January 16, 2012, 09:07:40 PM »
I did a 'search' and there are 5 other references on the Forum. 
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Taz2

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #3 on: January 16, 2012, 11:12:41 PM »
Sorry that you are feeling so low Melbury. I wonder if you have ever had a look at this site http://lichensclerosus.org/discuss/  It has a forum which is active - so many of them are old forums but this one was last posted on three hours ago. It may make you feel less alone.

Taz x
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Ghiro

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #4 on: January 17, 2012, 10:16:32 AM »
Melbury

If you look on the Lichen Sclerosus site that Taz has posted there is a 'contact us' part.

If you want to - the form on there is to email the helpline to arrange a phone call or skype call.

I have met Fabia Brackenbury once who runs the helpline - she lives locally to me  - she is a lovely person but does run the helpline on her own so the reason i think to make an arranged call.

Fabia has had lichen sclerosus herself - i don't have LS but talked to her about my vulva pain and it was a relief to speak to someone who understood and knew of all the options available.

Ghiro x

 

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CLKD

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #5 on: January 17, 2012, 10:22:49 AM »
Thanks Girls!
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Melbury

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #6 on: January 17, 2012, 08:16:09 PM »
Thank you all so much for the replies, greatly appreciated. 

I have been on the Lichen Sclerosus site and posted a couple of times, but have to say I do prefer this site, it is so much friendlier :)  They don't seem to get that many posting on the forums.

Feeling a bit more positive today, think a lot of it is that I am so worried about my OH, he has an appointment to see a surgeon on Friday and I just don't know how I will cope if he has to go through yet another operation.  I knew this was coming before Christmas but just kept trying not to think about it.
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viv

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #7 on: January 17, 2012, 08:20:19 PM »
Sorry to hear about your hubby. I hope its not too serious.

Its funny when we worry and have to be strong for someone else our problems fade for a while. Still take care of yourself though as you dont want to be worse when the worry reduces.

Keep posting, there is always someone to have a chat with.


 :hug:

Honeyb
x
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Suzi Q

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #8 on: January 19, 2012, 05:52:43 AM »
BIG HUGS TO YOU BOTH XXXXXXXXXXXXXX
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mae

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #9 on: March 06, 2012, 12:30:35 PM »
hi,I.m new to this site,but have visited several times.I too,have LS,diagnosed 12 years ago.It usually flares up 2/3 times a year,but as soon  as I feel it coming on use the cream off dr. and stops it.I.m now in the height of the menapause,lack of sleep,night sweats,daytime hot flushes and sooo dry down below.I found I had to use my cream for Ls a lot more to see if it would ease it.But after a recent visit to dr,am now trying vagifem.I wasnt sure if the Ls  flaring up more or if it was problems with the menapause.So far it seems to be better,but time will tell.
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CLKD

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #10 on: March 06, 2012, 07:42:54 PM »
It's trial and error which is so tiring, finding what suits each one of us when and how  ::)  .........
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Suzi Q

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #11 on: March 07, 2012, 05:42:42 AM »
SEEEEEEEEEEEEEEEE theres one already your not Billy No Mates
We are nice here cos we are all bloody daft as Basil Brush and we dont care
Plus we are women and we care for each other we may never see or meet but
You will get to kow people and dont firget you can use the PM message to talk privately to anyone on here
I have made 2 really good pals we talk every day send pictures bday cards Im even meeting one next year
So this site is not just meno matters its for all of us for what ever reason we need to chat  8) 8) 8) 8) 8) 8)
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Suzi Q

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #12 on: March 07, 2012, 10:39:41 AM »
IVE DONE IT TWICE IN 4 DAYS HEEYYYYYYYY
NO PAIN LOVELY JUBBELLIE YIPPEEEEEEEEEE
SORRY BIT OF DECORUM NEEDED I KNOW BUT
SEXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXY
THATS ME OR AS MUM USED TO SAY LUST IN THE DUST
\AND IT DIDNT HURT
THATS WHAT COMES FROM UPING THE DOSAGE
HOPE TO GOD IM OK TOMORROW BUT NO LIVE IN THE MOMENT
AND IT WAS Q NICE MOMENT HEHEHEHEHEHEHEHE
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lorrapaw

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #13 on: March 08, 2012, 11:29:42 AM »
When i started getting problems down below with menopause i got a little patch of lichen schlerosis on one of my vaginal lips, i got it checked at gynacology and they said if it wasn't bothering me (which its not) to just leave it.
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Melbury

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #14 on: March 19, 2012, 06:06:08 PM »
Quote from: Suzi Q on March 07, 2012, 10:39:41 AM
IVE DONE IT TWICE IN 4 DAYS HEEYYYYYYYY
NO PAIN LOVELY JUBBELLIE YIPPEEEEEEEEEE
SORRY BIT OF DECORUM NEEDED I KNOW BUT
SEXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXY
THATS ME OR AS MUM USED TO SAY LUST IN THE DUST
\AND IT DIDNT HURT
THATS WHAT COMES FROM UPING THE DOSAGE
HOPE TO GOD IM OK TOMORROW BUT NO LIVE IN THE MOMENT
AND IT WAS Q NICE MOMENT HEHEHEHEHEHEHEHE

Hi Suzi, what would we do without you on here to cheer us up and make us smile :)  Please don't ever stop posting!
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