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Author Topic: Cognitive decline & brain fog  (Read 4158 times)

dhadden

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Cognitive decline & brain fog
« on: November 02, 2018, 06:51:18 PM »

Hi, i'm new to the forum and was diagnosed as menopausal about 18 months ago, I was 46. It felt like my whole world just crashed around me with Insomnia, anxiety, panic attacks, hot flushes etc. etc. I'm on HRT estrogen patches now but the biggest issue for me still is the brain fog and cognitive decline. I am really struggling with this. I have a very technical job and need my brain every day. I can't remember anything at work and I have told the doctor I think i have dementia. She is very understanding and trying to help me through this but I just can't cope with the brain issues a lot of the time. I never feel normal anymore and I crave feeling normal. It makes me really depressed about how stupid and abnormal i feel. It really affects my work and I want to leave and go and hide away somewhere in the hope that this passes one day. The patches have been helping but I think my oestrogen levels are dropping so much that they are not as effective anymore. Does anyone have any ideas on supplements that can help with the brain fog and cognitive decline? I feel I can't cope with it anymore and feel I am at the end of my tether with it. It really makes me panicky at work when I can't remember stuff and it really exasperates things to the stage where I feel I may have a breakdown. Can't believe my life has been turned upside down like this through hormones :'(
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Hurdity

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Re: Cognitive decline & brain fog
« Reply #1 on: November 02, 2018, 08:45:36 PM »

Hi D666

 :welcomemm:

As Birdy says - the dose may not be enough for you.

Also what preparation are you taking and in what format ie is it one that gives a withdrawal bleed (period) every month,  or continuous combined ie same patch type all through the month? Maybe you have a Mirena coil? If you are on this type (conti HRT) and taking progestogens all the time this can exacerbate brain fog in some women. I am sure with some tweaking you should arrive at a formulation and dose that will suit you with minimal side effects. The main thing to aim for is to feel better on HRT overall than when not taking it!

How are you re diet and exercise? - HRT alone does not work miracles (although it can work magic!) so having a good diet of fresh ingrtedients and plenty of exercise and fresh air will also help to keep the brain alive.

Hurdity x
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CLKD

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Re: Cognitive decline & brain fog
« Reply #2 on: November 02, 2018, 08:47:04 PM »

Sadly brain fog is 'normal' during The Change.  Mine feels like mush  :'(

R U able to bring colleagues on board?
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Katejo

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Re: Cognitive decline & brain fog
« Reply #3 on: November 02, 2018, 08:56:39 PM »

Hi, i'm new to the forum and was diagnosed as menopausal about 18 months ago, I was 46. It felt like my whole world just crashed around me with Insomnia, anxiety, panic attacks, hot flushes etc. etc. I'm on HRT estrogen patches now but the biggest issue for me still is the brain fog and cognitive decline. I am really struggling with this. I have a very technical job and need my brain every day. I can't remember anything at work and I have told the doctor I think i have dementia. She is very understanding and trying to help me through this but I just can't cope with the brain issues a lot of the time. I never feel normal anymore and I crave feeling normal. It makes me really depressed about how stupid and abnormal i feel. It really affects my work and I want to leave and go and hide away somewhere in the hope that this passes one day. The patches have been helping but I think my oestrogen levels are dropping so much that they are not as effective anymore. Does anyone have any ideas on supplements that can help with the brain fog and cognitive decline? I feel I can't cope with it anymore and feel I am at the end of my tether with it. It really makes me panicky at work when I can't remember stuff and it really exasperates things to the stage where I feel I may have a breakdown. Can't believe my life has been turned upside down like this through hormones :'(
The book which I have just been reading about the benefits of oestrogen says that patches are less effective in improving neurological symptoms than tablets. So far I haven't had this problem so can't help any more than this but thought it was worth mentioning.
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dhadden

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Re: Cognitive decline & brain fog
« Reply #4 on: November 02, 2018, 09:58:25 PM »

Girls, Thank you so much for replying. I don't know how to reply individually or if that is even possible so the responses are all amalgamated. It's so nice to even know that other people feel the same. I am very stressed and depressed about the whole situation. I am on Evorel 75 patches now. I have been on the 25 then the 50 and now the 75. I have a mirena coil fitted so this is being used for the progesterone. I have a docs appointment next week and I want to ask to go on the tablets to see if they will help me more. I can't live without the HRT as I know it is helping in every other way but the cognitive issues are just destroying me as a person. I often have meltdowns over it (one this morning again) and I just don't want to feel like this anymore. It's completely ruined who I am as a person and I don't even recognise this as me. I think you are right, I need a higher dose of oestrogen and that's what I will be asking for next week. I have been on the patches for over a year and they were great at first but now don't seem to do much. I totally get that you can't spell words anymore, I struggle with formulas I have used at work for over 20 years and can't remember what they are. I can't even add up anymore and I feel like people can see this and wonder what is wrong with me. I am trying to organise to see a therapist to try to find ways to manage this as I see this as my only option now. One person at work knows I am menopausal but I haven't told him the whole story as I don't want to highlight my real issues to anyone as it will make me feel worse. No one at work truly knows what I am experiencing and I mostly work with men so there's no chance they will have a clue about how I feel. I have been to a nutritionist to clean up my diet, I am now mostly gluten free to see if that would help. I started running 2 to 3 times a week about a year or so ago to get aerobic exercise to see if that would help but I still feel bad although not giving up running just yet! I do feel like my life is over at 47 which is tough to handle as I have an 11 and 7 year old and I don't want to be like this . Thanks so much for listening.
« Last Edit: November 02, 2018, 10:05:22 PM by D666 »
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Springchicken

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Re: Cognitive decline & brain fog
« Reply #5 on: November 08, 2018, 09:55:12 PM »

Hello
I really hope that you can get something sorted out soon and feel lots better soon. I totally understand your feeling of being at the end of your tether. Be wary RE brain fog (I am sure you are) of supplements and the claims made by companies though. Have you had a vit D blood test at all? Just a thought. Also, for the brain fog, I found that doing very slow deep breathing really helped, and to make a habit of it especially when out in fresh air.
What you have described all sounds sooooooo familiar. I too went through the meno at about 45 years old. (am 51 now) I had no idea what was happening to me ....but I knew nothing seemed right with me anymore. Tinitus, burning skin sensations, depression, hair loss, anxiety, brain fog, stomach bloating, painful joints, feeling that i was going totally mad, cried all day most days, gave up my job, unable to think through anything clearly, serious cognitive decline, forgetful, clumsy, hated the idea of sex, bad skin......I just wanted to run away and build a den in a forest and stay there. I felt so isolated. Several GP's implied I was a hypochondriac. I retreated and felt suicidal and very isolated. Until a new GP said aha! blood test for you my girl and suggested HRT. Felt great for a few months and then the good feeling wore off. Tried another lot of HRT and another lot and so on in an attempt to find one that suited me etc. I am very sensitive to meds and some of them made me feel shocking. Others were ok for a while then the effects wore off. It really is trial and error - and finding an understanding GP (and not one that quickly decides you need a coil fitted without hearing what you have to say!!!! ). Some people are able to find HRT that suits, for others it is a minefield and lots of trial and error. I finally came off my latest HRT as it was making me anxious and feel generally rubbish.....3 months later, and now the sweats and depression are so horrific now I need to pluck up courage to go back to the GP (already been to Meno clinic but now been signed off).
I must say though, on the days I could / can muster up some ooomph, I find meditation, deep diaphragm breathing and qigong helpful. (and hiding in bed    ;D ) Watching how many empty carbs I consumed, cutting back sugar and artificial sweeteners helped.
This forum is totally amazing :thankyou: :clapping: and gives us a platform so that we cna share experiences, read advice and also express ourselves in an environment where we know we are supported and understood. This is crucial when we are going through some of the horrors that many of us are going through. We are not alone! Big, big hugs to all of us. Stay strong. And on the days where we feel we aren't, hang in there. xxx
p.s I have started hugging myself! (in private)  :)
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Springchicken

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Re: Cognitive decline & brain fog
« Reply #6 on: December 01, 2018, 08:17:18 PM »

Thank you Birdy. I really needed that. It brought a (very nice warm) tear to my eye. xxx
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CLKD

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Re: Cognitive decline & brain fog
« Reply #7 on: December 01, 2018, 08:43:18 PM »

I had a dog living next door for 10 years.  He died 10 years ago.  In the early hours I couldn't remember his name  :-\.  I saw this dog every day ..... he was the best friend to my own. 

I try to do crosswords every day.  Sometimes the answer to the clue is in the back of my mind but it takes ages to leap out  >:(  ::).  It's gnomon too long to scare me much.  I would like to remember what I've written on the list that remains on the kitchen table when I'm in t he store without it though!
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EleanorB

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Re: Cognitive decline & brain fog
« Reply #8 on: December 02, 2018, 10:40:29 AM »

Hi D666,

I've just seen this post today so don't know if you will see this reply, I will private message you later if you don't. I spoke about cognitive and memory  issues on here a little while back, if you put my name in search you should probably find the threads. Although I haven't yet managed to get on to hrt without terrible side effects, so haven't been able to benefit from the advice I was given, apparently small doses of testosterone along with hrt can be the difference that makes the difference with cognitive issues. My gynae wants me to be on hrt first before trying it. Your gp is not going to give you it, it's not licensed for that use here, but a good gynae can. Mine was definitely open to it and my also menopausal sister on hrt  has now tried it through a gynae and said it has made a huge difference. If you can I would suggest paying for a one off with a gynaecologist privately, but first check with their secretary if this is a treatment they're familiar with. No idea if you could get this on the NHS, maybe someone else will know.

Like you, I also do a job that requires constant brainpower. I am freelance and have been off work for months and feel utterly desperate. I would give anything for just a couple of days of having the brain I used to. The other thing I would check is vitamin B-12 levels and vitamin D.  B-12 blood levels will not be accurate if you have taken supplements 4 months prior to testing, but B-12 deficiency can mess with your cognition. I was deficient a year ago, recently had a lot of B-12 injections after much wrangling with the gp, and am now going to a haemetologist (they are the consultants who know about it weirdly, a gp will know nothing) to see if they think it is still an issue. A book I read on memory by a specialist in the area said the vitamin he always suggests for memory is vitamin E at 400 to 100 IU a day. About to try this so can't comment on effectiveness. Someone else on here suggested another supplement, can't remember the name of it, you should find it in my posts. I think my chronic insomnia is a huge factor. I feel if I could just sleep through the night for a week it would help enormously. Lack of sleep impacts the hippocampus and stops the ability for it to consolidate and store memory. Also it obviously stops you thinking clearly. tiredness helps nothing. Sugar and refined carbs also impact my cognition.

If it helps I feel as you do and was so terrified I had dementia. I had testing done with a neurologist - mri and verbal tests - she said not dementia thank god, but the terror it could become that still lurks around in the background. I also suffer from migraine and think that is a big factor for me too. Migraine can impact cognition and memory and can worsen (mine has) with menopause.

I try to do mindfulness meditation and keep stress low, but it's hard when you feel like you have literally lost the mind you used to have. After twenty years in a high stress career, I studied for four years, alongside working,  for another career I have always wanted to do. I qualified early in the summer, coming top of my year, and now, 6 months later, most days, I struggle to concentrate on anything for more than an hour and sometimes forget how the television remote works. I had no idea after all that hard work and effort, menopause was going to scupper my plans. It's been a big shock.

I have just come back to edit this as I forgot to say (no surprises there! ) that one thing the neuro said who was a specialist in early onset Alzheimer's is that most of the people she sees are unaware something is wrong, it is family and friends who notice first. In a nutshell they don't remember that they don't remember. I found that comforting as I am painfully aware of my cognitive and memory issues.



« Last Edit: December 02, 2018, 10:50:24 AM by EleanorB »
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CLKD

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Re: Cognitive decline & brain fog
« Reply #9 on: December 02, 2018, 03:41:00 PM »

That is a comfort.  My Mum 'would like' Alzehemers  :-\.  as she thinks that the Care Staff would make more fuss of her.  She can't get that she wouldn't remember if they did/not make more fuss if she had that condition. 

I've always been one to make lists but now I can't remember what was written ......... when I forget I feel as though there is a blank space in part of my brain.
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NorthArm

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Re: Cognitive decline & brain fog
« Reply #10 on: December 02, 2018, 07:21:11 PM »

Ah yes CLKD - the old ‘holes in the head'....

I've always had an almost photographic memory, great with names, faces, dates...always great a quiz nights because I've a head full of ‘sh*t' lol.

I was about 41 when I noticed the ‘holes'...simple words would elude me - my gp said (I'd been seeing him for 20 years) ‘welcome to normal memory....

It comes and goes the ‘holes' thing, but hasn't worsened too much - was awful at first when this hell hit, but seems to have improved on hrt. Thank god.
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dhadden

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Re: Cognitive decline & brain fog
« Reply #11 on: December 02, 2018, 08:04:50 PM »

Eleanor B, thankyou for messaging me. I have now picked up your reply and had a good read as well as all the other lovely women who have taken time to post on this. It makes me cry every time I read on this forum, about the number of women who are all in the same boat one way or the other with menoposaul symptoms. It's just heart breaking what goes on and how ashamed I think we feel of ourselves with something that we can't even control. I feel completely ashamed that I am like this. I have read about the testosterone thing for concentration and that's where I think I will need to go next ( as long as I don't start growing hair all over my face...things are bad enough!). I was at the docs again 3 weeks ago (think she thinks I'm a hypochondriac.....as I do!!). I am now on hrt tablets (Elleste Solo), they aren't doing much for me at the minute but I think I maybe need to give it a little bit longer. I don't even know where to start with a meno doctor or gynae doc.....where do you get these people?? I have asked my doc about a specialist but she doesn't seem to know. I have had vitamin tests including vit B, D etc and all was within normal levels. I started taking a lot of omega3, 6, 9, vit b complex etc a few weeks ago but I started feeling funny (about the same time is started on the HRT tablets) so I have come off all vits for now to see how I feel and see if the hrt will work. I have ok days and bad days all the time. I really feel that I want to leave work most of the time as I can't cope with the head that I have on me most days. I have to say that I do sleep well (touch wood) but I know that's the hrt that makes me sleep. What I will say for people that don't sleep, I started taking magnesium before I got hrt as I had insomnia for about 3 weeks and it was like he'll on earth. It was advised by my sister that magnesium helped her sleep and the magnesium definitely helped me sleep. So for those of you out there that haven't tried magnesium yet, it's worth a trip to Holland & Barrett to get some! It had me sleeping after a couple of nights. I watched a programme on Tele the other day about the menopause and they claimed that CBT (cognitive behavioural therapy) worked so I am going to try and get myself some appts through my health insurance (although I remain sceptical that it will help me) CBT is all about breathing and reducing the anxiety I think! Thankyou ladies for being good listeners.
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CLKD

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Re: Cognitive decline & brain fog
« Reply #12 on: December 02, 2018, 08:10:24 PM »

We have a whole thread about that programme D666. 

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dhadden

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Re: Cognitive decline & brain fog
« Reply #13 on: December 02, 2018, 08:16:55 PM »

Thankyou CKLD, I must go and find that thread.
Eleanor B, I also wanted to say that I know exactly how you feel about all your hard work that you have put unit your career and coming top of your class etc. To have it all ruined with the menopause. I am exactly the same. I am an Engineer and  recently got chartered. I feel I don't deserve to be chartered any longer as my brain doesn't function so i am completely with you on how this has ruined your life. I don't know what the answers are but I can't believe that there is not much more awareness and education on what menopause does to us and how to fix it........its not like we're the first❤❤
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CLKD

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Re: Cognitive decline & brain fog
« Reply #14 on: December 03, 2018, 11:38:13 AM »

You did it, well done!   You knew enough to become Chartered but right now the knowledge is buried in HORMONES  :(

We are the first maybe to speak out?  Have a look see at 'doing stupid things' as well as 'there is a strange woman in my house'  ;)
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