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[Hattie]

Hi Rosebud

Sorry I just wrote 'other' forum as Judith will know what i mean - now i will mention it anyway - there is a forum on the HOPE (Health Organisation for Pudendal Education) website. The forum is pretty gloomy and not good reading as there are very few positive outcomes but it does give information which can help you make decisions.

It is an american site it shows how their approach via their health insurance is different - which seems to me is much more client led and about how much insurance you have. They have a few more treatments than we do but don't seem to have many answers.

The man i mentioned came off all his medication after having had two pudendal surgeries and gradually healed.

Hattie X

[rosebud57]

Not subversive then, just depressing.

[Hattie]

Afraid so - i first found the site in 2012 after one of my pain symptoms then became like something poking in my vagina - which indicates pudendal neuralgia - they list UK consultants and specialist physios  - i have been to see one of both and wouldn't have had the information otherwise - not that it got me anywhere much but back to my local pain clinic.

Also lists for other countries - germany, australia etc. Unfortunately France where they do more for pudendal issues and where others including the americans have gone for training don't report much for some reason.

Hattie X

[Judith57]

Hattie knows I refer to it as the 'No-Hope' forum. I do have a cushion that I use in restaurants Hattie and it is quite successful, I think someone had recommended it on the interstitial cystitis network forum. It was about £30.00 from Amazon but it is really good and quite discreet. I just can't really carry it around with me all the time and the trip out last night was very much a spur of the moment thing so I wasn't prepared.

xxx