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[Hattie]

Hi Judith

I was given a 2year window on amitriptyline and vagifem to get better and you are still within that time span.

Hattie X

[Hattie]

All I can offer is a  :big hug: …………. chronic pain is tiring, difficult, restrictive 

thanks for the hug CLKD - maybe oneday chronic pain will be fully understood - as far as a process in the body goes it doesn't seem to fulfill any purpose.

i much appreciate now what my body does 'do' in any circumstance to put things right when something goes wrong.

Hattie X

[Dancinggirl]

I don't think there are any limits on the use of Vagifem now - it is now accepted that VA doesn't go away and ongoing use of local oestrogen may well be necessary. DG x

[Judith57]

Hattie, I think a lot of my problems are 'mechanical' as I remain pretty much pain-free as long as I don't sit down and put pressure on that damned nerve. I am typing this kneeling down and leaning on the sofa, can't face sitting down at the moment. I hate it.....

[Hattie]

I don't think there are any limits on the use of Vagifem now - it is now accepted that VA doesn't go away and ongoing use of local oestrogen may well be necessary. DG x

According to current thinking you are right in that respect and I accept that Dancinggirl but if you haven't got VA in the first place is oestrogen going to help nerve pain ?

During the 2 years and more that i used localised oestrogen it did nothing for the pain which just gradually got worse.

i can compare one side of my vulva with the other - one side is fine - no pain - the other side where my 'injury' occured is where i have all the pain.

I feel that i was given vagifem because it is in the tool box but is not a remedy for everything vulva.

Hattie X

[Hattie]

Rosebud

I have found a clinical hypnotherapist in my local town who specialises in mental health and persistant pain which seems to fit the bill - i have been given an initial appointment for mid April when she is back from holiday.

Feel i have nothing to lose in giving this a try. Will see what she says at first appointment which is free.

Hattie X

[rosebud57]

Well done Hattie, you've nothing to lose, go for it.



P.S. Let us know how you get on.

[CLKD]

Some Hospital Anaesthetists run 'pain clinics' ………..

[Hattie]

i have been through the pain clinic system - i am sure that they can help some people - a friend of my husbands was helped with back pain but like Judith57 i have lost my confidence in the mainstream medics.

At the most all they can offer me is a limited selection of drugs which mask the pain - i have also had a nerve block done which i can't be sure hasn't done me more harm than good as a lot of muscle tightening happened after i had it done.

Hattie X

[Hattie]

  http://www.pelvicpainrehab.com/alternative-treatment/404/how-hypnotherapy-can-help-your-pelvic-pain/

[marras]

Have just read these very sad posts and my heart goes out to all who suffer chronic pain. I have constant back, hip and shoulder pain and was diagnosed with possible fibromyalgia many years ago. Nightitime is especially bad so I have an idea of what you are going through. Like you, I can't bear to think that I will suffer this for the rest of my life but unless a miracle comes along to dissolve my arthritis then that's what's it's gonna be. Love and hugs to all.

[thorntrees]

I sympathise with you all. My pain is not in the same area as some of you but it never goes away.About 8 years ago I fell down the stairs and did considerable damage to my facial bones. The remedial surgery to insert titanium plates resulted in permanent damage to the nerve running from under the eye to the chin. As a consequence I have constant pain and burning down the side of my face and through my mouth area. Painkillers do nothing, I find distraction works the best so I try to keep my mind occupied. If it gets really bad I sometimes find a heat pad helps but sometimes I just feel that I would give anything for an hour completly free of pain. I do try to remind myself that the outcome of the original accident could have been a lot worse but to always be in pain is tiring and does take a bit of the pleasure out of life. I did wonder about acupuncture but can't find any info that says it helps nerve pain. Hope everyone finds some relief somehow!

Thorntrees

[CLKD]

Thorntrees - in 8 years treatment may well have altered enough to consider some form of mechanical pain relief?  Have you seen the Surgeon recently?  Could an injection into the nerve root, similar to what is given for trigenimal neuralgia, a possibility? 

[Maryjane]

I have the same issues as Hattie and Judith 57 and its the PITS. I am going to see a Chinese accpunctorist tomorrow who worked in hospitals in China for ten years, so will report back. I did not get on with hypnotherapy.....

[thorntrees]

Nothing mechanical can be done CLKD as the nerve is severed not just inflamed or irritated. A nerve block injection might take some of the burning sensation away but not the numbness and the Consultant said it would need repeating at regular intervals and would be difficult to place.To be honest I have learnt to live with it mostly. Will be interested to hear how the acupuncture goes Maryjane.

Thorntrees