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Author Topic: Tell us how you cope with joint aches  (Read 881257 times)

catweazle

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Re: Tell us how you cope with joint aches
« Reply #375 on: September 20, 2012, 12:39:48 PM »

Sorry to hear that Night_Owl.
Did you see 'The Food Hospital' on channel 4 last night? There was a lady on there with RA and they did manage to reduce her symptoms by altering her diet to exclude foods that cause inflammation.
Sorry I can't remember the exact details (meno brain  ::)).

If you missed it, it's available to view on demand at channel4.com.

Catweazle x

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Night_Owl

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Re: Tell us how you cope with joint aches
« Reply #376 on: September 20, 2012, 03:41:41 PM »

Thanks for that Catweazle - will go check it out channel4.com.

Have read that wheat/gluten can make things worse.

RA seems to get worse when I'm on the progesterone section, maybe because the anti-inflammatory effect of the small amount of estrogen I'm taking is reduced further.  In fact, overall RA has stepped up since I've had to reduce estrogen level due to worsening migraines.

Flipping meno has a lot to answer for!


Night_Owl
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purplenanny

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Re: Tell us how you cope with joint aches
« Reply #377 on: September 20, 2012, 04:58:25 PM »

Night_Owl, just a thought - have you tried Vitamin D? It is definately helping my legs. I am not on hrt

Purplenanny x x
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Taz2

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Re: Tell us how you cope with joint aches
« Reply #378 on: September 21, 2012, 07:09:10 AM »

I am so sorry to read about your RA night_owl. I hope that you are started on your medication soon as the longer it is left the more lasting damage will have been caused. Have you been offered methotrexate? These auto-immune diseases are so debilitating.

You may find this thread helpful http://www.menopausematters.co.uk/forum/index.php'topic=14024.0  the more information you have the better your chances are of coping with it.

Taz x  :hug:
« Last Edit: September 21, 2012, 07:12:34 AM by Taz2 »
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Trey

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Re: Tell us how you cope with joint aches
« Reply #379 on: September 21, 2012, 08:25:58 AM »

Night owl a new med in US ha put a friend in complete remission.  I will get name of it tomorrow U S time.  Dr. Andrew Weil lives near where I am and prescribed it for her.  It is on the market.  Fish oil and vit D3 are seriously anti inflammatory and yes voiding gluten often helps.

I hope you find what works for you to put the R A into remission soon.

It's the middle of the night here. Pm me if I don't get back to you with the name of the prescription.
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purplenanny

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Re: Tell us how you cope with joint aches
« Reply #380 on: September 21, 2012, 08:29:15 AM »

Hi Trey, I am taking a high dose VitD3 from gp for a months trial. Do you think it would be good to add fish oil? I have had a look on healthspan but find it confusing as to which one to buy - any advice would be welcome

Purplenanny x x
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Anne B

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Re: Tell us how you cope with joint aches
« Reply #381 on: September 21, 2012, 09:45:49 AM »

Hi Purplenanny
I use omega 3 fish oil capsules but if you are taking high dose Vit d supplements just be careful you buy the capsules with no Vit d added. I got mine in a chemist shop but you can get them in health food stores as well.
Xxx
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purplenanny

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Re: Tell us how you cope with joint aches
« Reply #382 on: September 21, 2012, 10:29:52 AM »

Thanks Anne

I also take Glucosamine & Chondroitin Liquid - do you think that's ok to mix? x x
« Last Edit: September 21, 2012, 10:31:59 AM by purplenanny »
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Anne B

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Re: Tell us how you cope with joint aches
« Reply #383 on: September 21, 2012, 10:42:01 AM »

Hi
Fairly sure that's ok. I believe they act as anti-inflammatories but in a different way.
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purplenanny

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Re: Tell us how you cope with joint aches
« Reply #384 on: September 21, 2012, 10:46:21 AM »

Thanks Anne x x
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Night_Owl

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Re: Tell us how you cope with joint aches
« Reply #385 on: September 21, 2012, 12:22:45 PM »

Thanks for input, ladies.  Taz, thanks for the link.  Trey, yes will PM for name of med.

PurpleNanny - I've been on Higher Nature D3 for quite a few months now - it's quite low dose though.  Will go back on the fish oil too, took it for ages then stopped as I was taking Higher Nature 3-6-9 instead.

Have had blood tests confirming RA - awaiting next consultant appt.  Think it's been around for years as my fingers have always been crooked but the pain has really kicked in, now in neck, knees and feet.  Mother and grandmother both had/have it bad - so I was destined.

On top of all this, am waiting to see an Endocrinologist as the meno clinic don't know what to do with me anymore as I can't cope with any HRT regime - or without it.  I am now "untreatable".  Tried so many different regimes and still I get ill, migraines, sweats etc etc.  Hair loss marches on too.

There's a possibility I may have developed PoTS too - just great.  The Endo will investigate further.

Still on ultra low dose HRT and the vile prog (I'm prog intolerant) - have had a scare as even on low dose my endo thickened rapidly to 7mm (after being off for 3 months) - have had to take monthly high dose prog and having second endo scan 1 Oct.  If it doesn't reduce then may need ablation.  Body seems to have gone into meltdown, immune system shot to bits, all triggered by meno, loss of hormones.

Just too much going on at once.  In total despair as to how I've lost my health, I'm 50 now - 6 years into the meno now and I just get worse and develop more illness, no adjustment whatsoever.  Just feel ill every day, achey, hung over and about 90 years old.

Thanks for listening.   Sorry for the rant.

Night_Owl
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purplenanny

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Re: Tell us how you cope with joint aches
« Reply #386 on: September 21, 2012, 01:32:36 PM »

Oh Night_Owl - you rant all you want, that's what we are here for. You have such a lot to cope with, I am so sorry. Pain is awful, it can really be very debilitating (sp?)

I do hope you get some relief somewhere soon. In the meantime share it with us and have a big hug from me


Purplenanny x x
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Anne B

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Re: Tell us how you cope with joint aches
« Reply #387 on: September 21, 2012, 02:06:29 PM »

Night owl, poor you. This must be very challenging for you. I hope you get some relief of your symptoms soon. You are far too young to be suffering like this.
Keep posting and vent your feelings. That's why this forum exists.
Xxxx
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catweazle

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Re: Tell us how you cope with joint aches
« Reply #388 on: September 21, 2012, 02:37:49 PM »

Sending you big hugs Night_Owl  :hug: :hug: :hug: :hug: :hug:

I know you have been suffering for such a long time.
I really hope things turn around for you soon.

Catweazle xx
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Night_Owl

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Re: Tell us how you cope with joint aches
« Reply #389 on: September 22, 2012, 09:09:33 PM »

Thanks ladies for your kind words.  Will report back as I go along.  Don't feel I can post too often as I don't have anything positive to say re: meno - just constant struggle - disheartening/negative for others to read.  It's such a bummer when not only experiencing (early) meno with all the vile symptoms plus additional health issues - then on top of it not being able to tolerate HRT, it's like there's nowhere to go with it.  I often think that lack of proper sleep over six years has shot me to pieces.  sigh ...


Night_Owl
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