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[Hurdity]

Hi all

I haven't been on here for months because I've had so much on - not time even to read the weekly MM newsletter that comes into my inbox BUT just by complete chance TODAY decided to have a quick read of the newsletter that came through this morning - and I couldn't believe my eyes!

Here is what it says in the newsletter:

"A "new" progestogen has been launched called Nalvee. Previously known as Duphaston, Nalvee provides dydrogesterone, which is a great progestogen with a better protective effect on the endometrium than micronised progesterone. It has, generally less side effects than some progestogens, and has a similar risk profile to micronised progesterone for breast risk effect."

and here is the Press Release by Gedeon-Richter UK:https://pharmatimes.com/news/gedeon-richter-launches-nalvee-in-uk-to-expand-hrt-options-for-menopause/

I had an idea this was on the cards because I had read that the rights to Dupaston had been acquired some time ago by Theramex and wondered if this meant making it available in UK - but instead a different company has launched their own product.

Since I am now coming to the end of my latest Utrogestan cycle and being thoroughly fed up with it (in my 70's) I am really excited that this might make a difference to staying on HRT rather than gradually winding down (given my age).

On this forum we have been talking at times wistfully and at times angrily about Duphaston and dydrogesterone and how it could revolutionise women's adherence to HRT - and tolerance to progestogens - if it was still available in UK. Here it now is! Not a magic bullet for everyone, and I might eat my words after trying it - but I intend to try to get hold of it for my next cycle! It will be the end of my 17 year nil-by-mouth HRT regime - but hopefully will be worth it!

For those who want to read a bit more here is the medical entry:
https://www.medicines.org.uk/emc/product/101122/smpc

I did a search on the forum and it hasn't been mentioned yet so the news hasn't yet got through.

Hopefully it will make a real difference to many of us who are not happy with the current choices of progestogen, but want to be as near to bio-identical as possible.

Hope everyone's well

Hurdity x

[bombsh3ll]

Thanks for sharing this!

I do hope word gets out and it doesn't disappear due to "lack of demand" because nobody knows about it!

[Lcgbw]

I have been searching on this forum too for anyone’s experience of it
I’ll be following your trial with interest!
Fingers crossed

[Dotty]

There are a lot of posts on Instagram about Nalvee on the pages of menopause doctors / specialists. Instagram seems to be the place where up to date things are discussed.

 https://m.youtube.com/watch?v=0nzCoaziaJI

Interesting watch on You Tube about Nalvee.  It says towards the end that it’s not available on NHS yet but can be obtained privately but is very expensive.

[Hurdity]

I have been searching on this forum too for anyone’s experience of it
I’ll be following your trial with interest!
Fingers crossed

I'll have to get hold of it first - hoping my great gynae specialist GP will agree to prescribing it!

Hurdity x

[Hurdity]

There are a lot of posts on Instagram about Nalvee on the pages of menopause doctors / specialists. Instagram seems to be the place where up to date things are discussed.

 https://m.youtube.com/watch?v=0nzCoaziaJI

Interesting watch on You Tube about Nalvee.  It says towards the end that it’s not available on NHS yet but can be obtained privately but is very expensive.

Hmm that's interesting. I thought ALL (licensed) medicines listed on EMC were available on NHS? I must admit I assumed that because it featured in the MM newsletter that it was available on NHS.

I don't follow any Instagram pages of specialists - who would you recommend - (I have too much to read generally as it is!)?

Well I certainly don't want to have to go privately to obtain it.....

Oh dear well that puts the dampers on things somewhat!!!!

Hurdity x

[Hurdity]

...however on further googling I found this:
https://dmd-browser.nhsbsa.nhs.uk/ampp/view/210500?ref=

- listed on an NHS related website.

...and it is also listed under various formularies throughout UK, but as expected - for exceptional use or not yet discussed, but this is the case for many of the HRT products many of us are using - they are not the first product that is recommended but you have to argue your case....

Hurdity x

[Dotty]

Hi Hurdity. I've just listened again to the You Tube clip and the doctor says that she doesn't think it's on the NHS yet.  I saw on the Norfolk formulary website that it's not yet available and on my local formulary it's not mentioned at all. So who knows?

Just read on The Menopause Support Network Facebook Page ( Diane DAnzebrink ) that it is available but depends on your local formulary.

Good people to follow on Instagram....Diane Danzebrink, Dr Louise Newson, mre fund, Dr Naomi potter, hormone equilibrium, Dr Sarah Molly Ball, Manchester Menopause Hive. There's too many to name really.

[Hurdity]

Hi again Dotty

Yes I just listened to the youtube interview and the doc admitted she didn't actually know.

Re formularies - I can see it may take a while for it to be discussed and listed even as a restricted formulary item, but in theory it should be available. It will be interesting to test this out by trying to get hold of it - but maybe I'll wait until I next need to renew my Utrogestan, so put up with it for one more cycle (hopefully the last!) - to give them a bit more time.

Thanks for the recommendations. Yeah - don't have time to read all of those but maybe will follow a few! You're obivously keeping well up to date - unlike me!!!

Hurdity x

[Kathleen]

Hello ladies.


I have learned that just because a treatment is available or recommended there is no guarantee that you will get your mitts on it lol!

I was with Newson Health and using Cyclogest pessaries as my progesterone.
I heard that my surgery had a Menopause Nurse so I moved back to my GP for HRT and was told that Cyclogest  was not available in Primary Care even though I know other ladies were getting it from their GPs.

I was subsequently referred to an NHS consultant who recommended Lutigest but yet again my GP surgery refused to prescribe it. 

I hope the ladies who want to try this treatment are given the opportunity and hopefully they won't have a fight on their hands.

Wishing you well ladies.

K.
 

[Furyan]

Thanks for sharing it Hurdity, I literally just did a Google search for it after reading an older post on here that it wasn’t available (back then). I’ve worked out that my remaining symptoms are very likely linked to progesterone because I seem very sensitive to it. I’m definitely going to mention it to my GP soon because I think it’s worth a try if only to address these pesky side effects!

I’ve also read that it can be provided on the NHS as it was added to the HRT PPC from 1 September.