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[sue1975]

I’m sorry you aren’t feeling well CrispyChick xx

PS: that should read Paula Briggs x

[CrispyChick]

Thank you sue - I really appreciate your reply.

Can I ask what dose estrogen add back you've found works? Is it patch or gel?

Thanks for the specialist recommendations - Nick Paney is taking on. So I'll try there xx

[Loopylou1017]

Nick Panay is a lovely man who has a very caring bedside manner. He knows what he is talking about and explains things fully so that you can understand. I would fully trust everything he says. Good Luck and keep going it will get better.🥰

[sue1975]

Oh, great that you can book with Nick Panay!

I’m in chemical menopause at the moment before the surgery and on two pumps of oestrogel at the moment.

I’ve needed more in the past but that was when I had the mirena coil which made me very, very poorly!

Hope you see Mr Panay soon xx

[CrispyChick]

Thank you ladies.

It's been a horrific 9 year struggle for me - given I've already tried, and failed at chem meno, I'm really hoping he still has options for me.

I'm currently trying to supress with 1 and 1/2 Cerazette mini pills. Going to try adding in tiny dose oestrogel tonight. I tolerate nothing! So I'd like to know before I see him.

Fingers crossed he can help me...

And he's found the solution for you both? Do you need to see him often?

[CrispyChick]

Sue and loopy Lou

Ars you both still on here???

If so, would you chat chemical menopause with me please???

[suanne75]

Hey Crispy Chick x

Yes, of course. My experience on chemical menopause was not good at all.

You have a “flare” in the first month where hormones spike sharply before they drop. It makes you feel terrible!

I also flared in the second month. And the third.

I was in CM for PMS/PMDD and progesterone intolerance so it could have been progesterone intolerance that was causing my symptoms.

I also have chronic migraine so that was rumbling along in the background.

I had a hysterectomy on 19th December (everything out), so I am now on oestrogen only HRT and my migraine is starting to be under control with nortrypteline (thank goodness!).

I know that CM works for most people if they’re having it for PMS/PMDD. It just depends if you can tolerate the addback.

In the end, I saw another consultant who said he would have started with Prostap and Tibolone, rather than Prostap, oestrogel and utrogestan or Prostap, oestrogel and Slynd, which is what I tried.

He said I could try Tibolone before going to surgery but I was so exhausted by that time, that I just couldn’t face it.

Hope you’re ok and really happy to answer any questions xx

[CrispyChick]

Thanks sue - you've changed your user name. 

I actually tried cm last year. Injection with no add back to start with. Was absolutely brutal.

But ...I'm considering this was poor management, given my sevsitivities to hormonal change. Dropping to zero hormones was the biggest change ever. It was hell.

Interesting about tibolone. That's what I'm looking at just now. Why did he suggest that would be better??

So now you have everything out, are you starting to feel better? How much E are you on?

Obviously you are recovering from major surgery so you won't feel amazing yet. But I wish u luck.

Did you do all this privately? X

[sue1975]

Yes, definitely.  I’m not having constant pelvic pain/discomfort and my bladder is miles better!

I think that might be because my uterus was “bulky” and causing pressure on my bladder. So not feeling reason I had the surgery but a very welcome side effect!

Hormonally, I feel fine. I’m on oestrogel, two pumps. 

I’ve had some low mood days but these are down to migraine for which I’m seeing a neurologist on 12th January.

I’m definitely pleased I had the surgery. I couldn’t have gone back to cycling, Prostap with addback really wasn’t working out and I’d become really exhausted.

I’m thinking it will be a much better/more stable and predictable hormonal landscape to manage my migraine.

Yes, I’ve had it all privately. The specialist said that even if I could find an NHS surgeon will ing to operate on me for PMDD, I would have a long wait.

Pain-wise, I was only really taking pain relief for the first week. I’ve not needed it since then. The worst pain was the gas pain on the first night in hospital but they give you plenty of pain relief to manage it.

I think Tibolone is supposed to be a better option for progesterone intolerance…

Thanks for the well wishes xx

[CrispyChick]

Thanks Sue, that's helpful.

I guess with prog intolerance there were no other options other than try this tibolone with the prostrap. But I'm glad you're happy you went ahead.

I'm still waiting to see the top specialist. But I just can't see any other way forward.

I haven't tried mirena plus high dose E. And info wonder if this will be suggested first. I will try it if the specialist thinks it'll work - but given I don't tolerate any E add back, I'm not sure.

You tried this??? And mirena was hell for you?

Yes, you've moved quickly in the private sector. I get that. Because when you've been in a desperate position for so long, the thought of relief is worth every penny you have.