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[Tulip256]

I am so fed up with the NHS at the moment.  I tried to get dydrogesterone but was told it will not be available in my area for a long time as the local Formulary is not even reviewing it and my GP will not prescribe anything that they don't list.  Ended up getting the Mirena instead as they insisted it would only have local side effects but now dealing with bad systemic side effects, wondering when to give up and go private for dydrogesterone. 

[lizzy76]

Hi,

I am also very interested in trying this. I have also had problems with progesterone. Currently on Cyclogest (private prescription).

Just saw that Nalvee is now covered by the HRT prepayment certificate!

https://cpe.org.uk/our-news/dydrogesterone-10mg-tablets-nalvee-added-to-the-hrt-ppc-medicines-list/

I'm going to ask for this at my GP appointment later this week. Has anyone else managed to get a prescription for it?

[Flamingo]

Has anyone had it prescribed yet? I'm off to get a script tomorrow from private GP but it's where to go to get it??

[Furyan]

Has anyone had it prescribed yet? I'm off to get a script tomorrow from private GP but it's where to go to get it??

Hi - I just got a private prescription as GP is also dragging their feet referring me to an NHS menopause clinic. Any pharmacy should be able to order it once you have a prescription. Two local chemists told me they can get it ok. 

[Flamingo]

Yes ordered, thank you.  Hope you get on with it 🙏

[CherrySG]

I have been prescribed it, but my pharmacy have found it to be out of stock at the supplier.

Bit frustrating, really 

[lizzy76]

Hello,

Just to let you all know that I have managed to get a prescription for Nalvee/Dydrogesterone from my GP! It was difficult to find it in the chemist but managed to get from Boots in the end.

[CherrySG]

Hello,

Just to let you all know that I have managed to get a prescription for Nalvee/Dydrogesterone from my GP! It was difficult to find it in the chemist but managed to get from Boots in the end.

Oh, that's hopeful, thanks lizzy76. With a bit of luck my local Boots will get it soon!

[Vicky81]

Hurdity I've sent you a private message xx

[Vicky81]

Hi all

I haven't been on here for months because I've had so much on - not time even to read the weekly MM newsletter that comes into my inbox BUT just by complete chance TODAY decided to have a quick read of the newsletter that came through this morning - and I couldn't believe my eyes!

Here is what it says in the newsletter:

"A "new" progestogen has been launched called Nalvee. Previously known as Duphaston, Nalvee provides dydrogesterone, which is a great progestogen with a better protective effect on the endometrium than micronised progesterone. It has, generally less side effects than some progestogens, and has a similar risk profile to micronised progesterone for breast risk effect."

and here is the Press Release by Gedeon-Richter UK:https://pharmatimes.com/news/gedeon-richter-launches-nalvee-in-uk-to-expand-hrt-options-for-menopause/

I had an idea this was on the cards because I had read that the rights to Dupaston had been acquired some time ago by Theramex and wondered if this meant making it available in UK - but instead a different company has launched their own product.

Since I am now coming to the end of my latest Utrogestan cycle and being thoroughly fed up with it (in my 70's) I am really excited that this might make a difference to staying on HRT rather than gradually winding down (given my age).

On this forum we have been talking at times wistfully and at times angrily about Duphaston and dydrogesterone and how it could revolutionise women's adherence to HRT - and tolerance to progestogens - if it was still available in UK. Here it now is! Not a magic bullet for everyone, and I might eat my words after trying it - but I intend to try to get hold of it for my next cycle! It will be the end of my 17 year nil-by-mouth HRT regime - but hopefully will be worth it!

For those who want to read a bit more here is the medical entry:
https://www.medicines.org.uk/emc/product/101122/smpc

I did a search on the forum and it hasn't been mentioned yet so the news hasn't yet got through.

Hopefully it will make a real difference to many of us who are not happy with the current choices of progestogen, but want to be as near to bio-identical as possible.

Hope everyone's well

Hurdity x

I've sent you a private message please help xxx

[Vicky81]

Hurdity!!!!! I got accepted for Navee! Pick it up tomorrow from chemist!!!! X̌xxx
Abd I am willing to take it continuously because I need my ovaries shut down....when they say off licence you can still do this ....I've seen this with other medicines used off licence fir this n that x

[Hurdity]

Hi Vicky - only just seen this and have just answered your message

Hurdity x

[CherrySG]

So I've been on Nalvee for a week- very early days but not much in the way of side effects so far, except some short-lived drowsiness.

One thing I have noticed is that it takes away the desire to overeat, so with a bit of luck I'll get some weight off.

[Flamingo]

So I've been on nalvee 10 days and  I started a bleed yesterday....should I keep taking for prescribed 14 days or stop and let bleed come? Is it normal to get bleeding when you switch? Feel terrible tbh