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[Annalou77]

Plz can anyone tell me if they have any sort of vibration/ buzzing feeling internally? I have this almost constant feeling in my pubic area of vibration/ buzzing feeling and it’s driving me crazy. Worried incase this is serious and I need to get checked out. Don’t have this anywhere else. I’m 55 , been on patches for year and a half almost. Spotted most months but didn’t have a period. Recently had a 3 week bleed which was very painful with clots but stopped now. Nurse referred me to gynae but referral was refused. Said it was to do with hrt and that was common . Spoke to gp after 3 week bleed and she referred me again and still waiting … feel like I’m wasting their time ….now I have these weird buzzing vibrations all the time … 😭 anyone else had these?

[Shirazette]

I haven't had this but there's a recent quite long thread on this. I don't know how to copy a link but it's on page 4 of this forum section at the moment.

[LittleClaire]

Yes I get these but in the middle/stomach area. Literally like something is shaking inside me. It’s mostly when I am laid in bed quiet I don’t know if you’re the same? Not sure if it’s high or low oestrogen symptoms but yeah weird all the same!

[Katherine]

I've had this internal vibrating feeling too while on HRT but it only happened once, it was very disconcerting but I wasn't left with any issues from it. Ive heard of it happening to other ladies on here too. I would speak to your GP to put your mind at rest though.

[pineneedles]

I started having internal buzzing/tremor earlier this year, 4 months after starting HRT. Mine is in the upper torso but sometimes extending to neck and limbs, never in the pelvic area though. It happens in the early morning hours almost every day now, occasionally also when not asleep/horizontal but not often.

I initially thought it was because of changing the brand of HRT patch I was on, but changing back to the other (Evorel) didn't make any difference and it now happens almost daily. GP doesn't think it's menopause/HRT-related so have gone through some blood tests, a chest x-ray and now waiting for a 24-hr ECG referral, but nothing abnormal has shown.

Despite what the GP said, I am inclined to think they are another menopause / HRT symptom. This article mentions them, too: https://www.drlouisenewson.co.uk/knowledge/internal-tremors-and-menopause-what-you-need-to-know

[joziel]

This is another menopause symptom, sadly. It has been one of my worst. Like you pineneedles, it began about 3 weeks after I started HRT. (It was not one of my low estrogen symptoms before starting. I had every low symptom in the book. These all suddenly got a lot better - and I was hit with the inner tremors.)

The problem for me is they were really strong, and not just in one area but my core - and they happened at night mostly. I would sometimes have them in the morning and before bed, but strongest and worst when I was trying to sleep. I also had a racing heart, beating strong (could hear it in my ear on the pillow and see my pulse in my chest) and felt wired all night. I could hardly sleep.

This became truly awful. I stopped the HRT for 6 months - and there was NO CHANGE. I was stuck. I started the progesterone by itself for a few months, still no change. So then I gradually weaned back onto the estrogen - and there was no change.

Having tried no estrogen and low estrogen, we decided (private Newson Clinic) to go higher and try higher levels of estrogen. Around the same time (very confusing as to what was causing what) I also began thyroid meds, including T3 - because I had high rt3. When I increased the estrogen there was a huge improvement, beginning around 600pmol serum levels.

Thinking that the thyroid meds weren't doing anything and I didn't need them and this was all estrogen related, I weaned off the thyroid meds. And got hit by these symptoms again. My thyroid didn't recover previous function either. I went back on thyroid meds and now I am the best I've been since all this began about 3.5 years ago.

I still get very very light tingling in my feet at night, but I am able to sleep during it. I am much less wired. My heart no longer beats very loud and hard all night. I am currently waking around 5am every morning and trying to figure out if that is thyroid or sex hormones(!) - but I am sleeping well for about 5 hours until this happens.

These are neurological symptoms of menopause and they are hell. My hunch is that there is some estrogen-thyroid interaction causing this. I have also tested my DNA via Ancestry and uploaded the raw data file to ChatGPT to see what SNPs I have. I have a lot of dodgy estrogen metabolising SNPs and also thyroid SNPs. So perhaps that explains this...

[pineneedles]

Sorry to hear yours has been so bad, joziel. My buzzing/tremor isn't strong enough to stop me sleeping, luckily. After I was first told it wasn't HRT-related, I also thought it could be thyroid but had normal TSH and T3 levels from blood test. But maybe that conclusion was a little simplistic as thyroid and oestrogen do seem to interact. GP is completely puzzled by it though and doesn't think buzzing is a known symptom of anything. She even said she had to put 'palpitations' on my ECG referral as otherwise the cardiology wouldn't look at it! It's not palpitations because I can feel my normal heartbeat at the same time.

However, now that I think about it, I also have difficulty sleeping occasionally because of my heartbeat being too fast/loud and being too aware of it. I had attributed it to eating/drinking too late before bed but could be another hormonal thing. Another symptom to track...

[Kathleen]

Hello Anna Lou and welcome to the forum.


This sensation is mentioned in my trusty menopause book which was written in the 1990s!

It is indeed a neurological symptom but the feelings are sensed in other parts of the body.
I had this in my abdomen when I was post meno but not on HRT. I also had heart palpitations, mainly at night but also during the day.

I believe that HRT alleviated these symptoms however I am off HRT at the moment and hoping that these problems don't reappear.

I hope this helps you and take care.

K.

[joziel]

pineneedles, make sure your thyroid panel included TSH, free T4 and free T3 plus thyroid antibodies. It's relatively easy to get all that tested privately in the UK via affordable at-home tests. The test which is harder to get, is the rt3 test. The only place I've found where you can order it yourself, is the Blue Horizons Platinum thyroid test (google). It includes a bunch of other stuff but the only reason I get this particular test, is the rt3. You have to do a venous draw for it (I go to an aesthetics clinic for that, as it's nurse-run and she offers blood draw services) and it takes 3 weeks for the results to come back. Plus it is expensive, about £140.

I do think it's worth doing rT3 once...

And yes, thyroid and estrogen interact because high estrogen can create more TBG (thyroid binding globulin) which is like SHBG but for thyroid hormones - it binds up your thyroid hormones so you may then feel hypo.

I have also been through the whole cardio thing. Because the tremors were so strong I thought they were palpitations at first. I bought this little Kardia device which connects with my iPhone and does reliable ECGs - it was what my local hospital were using but I cut out the waiting list by buying my own for £100. I did ECGs at night, in the middle of all this, and emailed them to the cardiac nurse, who said they were always normal. My pulse was fast at 95bpm at night, but the actual heart rhythm was normal.

I also had an echocardiogram, which was also normal. I realised at this point that the tremors were not from my heart. Tingling and buzzing are known symptoms caused by a range of things, from iron deficiency to B12 deficiency - but as always it's best to take the most obvious thing... and if you've just started HRT an then you get this, it's most likely due to hormones. THe problem is how to get rid of it. For me, going quite high with the estrogen and stablising there has really helped although it's now causing flooding during periods so I am very slowly coming down on the gel. I hope I don't get these symptoms back or it's not going to be clear what to do. (Don't really want a Mirena.)

[Dierdre]

Yes had it a couple of weeks ago for the first time. It lasted a couple of days on and off in my pelvic floor and going up into my right buttock, felt like a mobile phone buzzing. Not had it since and not on HRT just local estrogens🤞