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Author Topic: Localised hyperplasia? Lining is both thick and thin........  (Read 1576 times)

elle

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Hello, I wonder if anyone could help me understand the following. I had a TVS which showed hyperplasia of 6.3mm and fibroids, so I was referred for an endometrial biopsy and cervical polyps removed due to recurrent postmeno bleeding on HRT. Results were normal. I then got a hysteroscopy which showed normal uterus but fibroids. I couldn't get biopsy done due to pain. However, the consultant has written in my follow up letter that the rest of the lining looked thin. Am I right in thinking then that the TVS measurement of 6.3mm would just refer to the places the fibroids are impacting, ie, that I have hyperplasia but only in some areas of the lining? It seems obvious as a possibility but I had thought of the lining as uniform. Has anyone else had this localised thickening and is it something that requires a specific approach or treatment to the norm? Thank you x
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CLKD

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Re: Localised hyperplasia? Lining is both thick and thin........
« Reply #1 on: June 16, 2025, 08:10:04 PM »

Firstly were you offered sedation prior to the procedure?

Sorry can't help with your query  :-\
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elle

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Re: Localised hyperplasia? Lining is both thick and thin........
« Reply #2 on: June 16, 2025, 08:48:47 PM »

No sedation offered from what I remember. The biopsy I was actually crying out in agony, they removed 2 polyps with no anesthetic. He just told me there and then he'd found them while perfomring the biopsy and could remove them. I was asked if this was ok but wasn't in the best state to consent/refuse. It sounded barbaric but I assumed I must be wrong in thinking so. He did ask me more than once as I was screaming if I wanted to stop. Again, I wasn't in a state to decide. The next gyne I saw,  I queried why I didn't get any pain relief and she said usually polyp removal isn't painful. The hysteroscopy was a different kind of pain, more cramping like, but for me I found it very painful. I got a local anesthetic but they can only use that on the cervix not the womb. I couldn't go through with the fibroid biopsy as I was in too much pain so have to go back. No mention of sedation but she did say GA could be an option if I couldn't handle pain next time. I'm waiting for another appt for the biopsy soon but I'm scared. The problem is Im also scared of GA. I queried epidural but she said they prefer GA over epidural. Both gynecologists were really nice, but I felt battered and maimed and upset after both procedures. Do you know if sedation actually helps with the pain, or does it just mean you're too groggy to cry out with the pain??  :-\ I asked her for the highest pain relief I could get re LA but it didn't touch it and I had taken prescribed opiates beforehand as well as OTC pain relief.
« Last Edit: June 17, 2025, 08:17:34 AM by elle »
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CLKD

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Re: Localised hyperplasia? Lining is both thick and thin........
« Reply #3 on: June 17, 2025, 08:33:23 AM »

This is abuse.  Time that action was taken to offer every lady sedation during invasive procedures.

It helps with pain and U need some1 to drive U there and back.  Did they know that you had taken 'prescribed opiates' because they should have made a difference, any idea which meds those might b?
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elle

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Re: Localised hyperplasia? Lining is both thick and thin........
« Reply #4 on: June 17, 2025, 11:25:31 AM »

It felt like it which is why I think I felt so upset afterwards. The memories still stop me in my tracks and I catch myself just standing thinking about it. I would struggle to say that the abuse was from the gynecologists themselves, more the system.Both were lovely and I felt I had everything explained to me and they did make clear I could stop at any time and did ask me if I wanted them to stop during the procedure. I just couldn't make decisions in that situation and wanted it done without having to return. I was well taken care of in terms of empathy and care.
I'm on Dihydrocodeine for chronic pain and the gynecologist was aware of this and what I'd taken. I wonder if the option of sedation meant I would have to have the procedure carried out in theatre..My next appt for the biopsy, which she explained would take longer and probably be more painful, is soon and I will ask about sedation. Thank you x
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CLKD

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Re: Localised hyperplasia? Lining is both thick and thin........
« Reply #5 on: June 17, 2025, 12:45:09 PM »

MayB ring the Dept and find out the options?  No patient should have to suffer and if the Consultant was aware that U were in enough pain to warrant him to ask if he should stop, there's a message there.   :-\. He/she should have stopped!

Under GA would be my choice.  The best sleep I ever. have ;-)
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elle

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Re: Localised hyperplasia? Lining is both thick and thin........
« Reply #6 on: August 13, 2025, 08:37:34 AM »

Just an update for anyone else waiting for a hysteroscopy.

I went for the third procedure and it was so much better than the other previous ones. I had a biopsy for fibroids. Even though it took longer and the equipment used was larger and I had the same (for me inadequate) pain relief, the pain was tolerable.

Gyne department were great and have kept me updated until my results come through. All looks good from what they could see at the time.

The hyperplasia that kickstarted the hysteroscopy pathway was focal hyperplasia where the fibroids were located, not general hyperplasia. This distinction wasn't made clear to me at the time when I had my TVU. My lining is actually thin.

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Northerngirl

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Re: Localised hyperplasia? Lining is both thick and thin........
« Reply #7 on: August 13, 2025, 05:26:01 PM »

Glad things are looking positive for you elle, hope you get your results back quickly.
I agree with clkd you shouldn't have to be in any pain during the procedure.
I've had 2 hysteroscopies, one without general anaesthetic and one last year with GA(after advice from the ladies on MM)

Take it easy for a day or two !!!
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MrsMitch

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Re: Localised hyperplasia? Lining is both thick and thin........
« Reply #8 on: August 14, 2025, 07:04:52 AM »

Same story, as usual, isn't it ladies? Why on earth would anyone within the NHS carry out any procedure like elle (& so many of us) without adequate pain relief & the offer of GA? Clearly costs. It's barbaric.
Thank you for the update, elle. Hoping the results ate good.
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elle

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Re: Localised hyperplasia? Lining is both thick and thin........
« Reply #9 on: September 06, 2025, 09:00:04 AM »

Glad things are looking positive for you elle, hope you get your results back quickly.
I agree with clkd you shouldn't have to be in any pain during the procedure.
I've had 2 hysteroscopies, one without general anaesthetic and one last year with GA(after advice from the ladies on MM)

Take it easy for a day or two !!!

Thanks so much, I'm glad you found an option for your hysteroscopy that allowed you pain relief, it's so good to have the support and knowledge of this group. All results were good for me, but yes, a bit of a journey! I hope your results were reassuring too x
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elle

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Re: Localised hyperplasia? Lining is both thick and thin........
« Reply #10 on: September 06, 2025, 09:10:41 AM »

Same story, as usual, isn't it ladies? Why on earth would anyone within the NHS carry out any procedure like elle (& so many of us) without adequate pain relief & the offer of GA? Clearly costs. It's barbaric.
Thank you for the update, elle. Hoping the results ate good.

Thank you so much MrsMitch. Yes, I felt like I went through an operation without anesthetic and it just felt medieval. I was offered GA in theatre at later date but I'm scared of that too and luckily the fibroid biopsy was actually easier that the previous procedures. The care team were lovely. What did throw me was that I asked for gas and air and was told they didn't have any. This was in the gyne dept of the main hospital in Edinburgh (the Royal Infirmary) and Gyne is in the maternity department! I wasn't thinking straight at the time because I was worried so I didn't query it. Can only presume that it was some red tape as there's no way the wards upstairs in maternity wouldn't have had gas and air available.I was offered another appt in a different location that could give me gas and air but the thought of postponing wasn't good for me and I decided to try without. I did get cervical but not utererine anesthetic. All results were good but what an experience!
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