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Author Topic: Anyone experienced this: severe anemia, blood transfusions, adenomyosis  (Read 4134 times)

Starlight

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I'm a bit traumatised after the past while.

The other day I went to my GP as I felt my severe anemia wasn't getting better and I felt pretty unwell.

She told me to go straight to A&E.

Hemoglobin 61, tachicardia.

Blood transfusion (2 bags) which have upped my hemoglobin levels to just being anemic.

Anyway, the consultant there said she thought I had adenomyosis. Uterus 13cms instead of the 6cms it should be at my age.

She have me norethistone to take as follows:
3 tablets x 4 weeks
2 tablets x 4 weeks
1 tablet x 4 weeks.

If I'm still having trouble after that, she said she would put me into a chemical menopause.

I said I absolutely wouldn't be able to cope with that, as my mental health has been trashed over the past few years (including an accident requiring emergency major surgery and *literally* having to learn how to walk again. So I went from being super fit, walking 10 miles a day, cycling, gym etc, so not being able to walk *at all*. And exercise and being fit was my coping mechanism. So I told her a chemical menopause and the associated symptoms was an absolute no from me).

I've only managed 9 hours sleep in all the past 3 nights. I've had so many panic attacks I've lost count of how many I've had.

I don't want to have this nightmare condition.

Anyone else have this? I feel so alone.
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bombsh3ll

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I'm so sorry you are dealing with this.

The first priority is hemodynamic stability.

Norethisterone 5mg thrice daily should control the bleeding.

It doesn't have to dry up completely, but it does have to be kept to a level where your health is not at risk.

Following on from this there are multiple options. First of all how old are you?
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Starlight

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Thank you.

55 today.

The bleeding has stopped.

I still feel completely traumatised by the past 2 months.

But I can sleep and walk (I usually walk 10 miles a day).

I've been trying to look at anti inflammatory foods to help.

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Starlight

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Been perimenopausal for 8 (I think) years.

2 years ago I had a very serious accident that need emergency major surgery. First period after surgery was insane, 3 weeks long and very heavy.

I was housebound for 3 months after my accident and literally had to learn to walk again. It took 7 and a half months of physio to be able to do that, and learn how to go up and down stairs again.

Stress levels went through the roof. I had previously been super fit, running, cycling, gym.

No income for all that time (self employed) and no benefits.

Periods were getting further apart in the past year.

Thought I was almost there.
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