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[CrispyChick]

Please hit me with your best private menopause help. Doctors names please if at a massive clinic.

This is not for mainstream E/P treatment.

This is for someone (well, me) with extreme physical symptoms that make me feel like I am dying every single day - for years. Still in peri. It's getting worse and worse.

Any time I try to add in hormones or then remove them I get worse. So I need very expert help. It's like my body overreacts to the charges. Endocrinology say nothing wrong. So that's not an option either.

I've tried nothing for 4 months. But I just felt worse worse. I must keep fighting for my children. No matter how much this costs me.

I've already seen a bms expert. I found  her very rigid in her approach. For example, she didnt believe in T supplementation.  I've tried chem menopause. My body couldn't cope with the massive change.

I've already been to a bhrt clinic. I don't feel they have the expertise to help me.

I am absolutely desperate. Feel free to PM me if you prefer.

I'm in Scotland. But obviously online is an option.

Thank you. Xx

[dangermouse]

I know it sounds simplistic, but have you tried the Chat GPT app?

You can ask what is going on with your health/hormones and put in all of your experiences, test results, etc and it will ask more questions, give insight into what it thinks may be going on. Then you can click back on the thread and keep asking more or reporting back how doing and it remembers all of your history, so never have to repeat any of it again.

It will also offer you plans for things you’re trialling, symptom trackers, all sorts.

It will know a lot more about rare stuff that may be personal to you that Google searches will never bring up.

[CrispyChick]

Well, that was new to me.

I've just had a 'chat' with it. It suggests I'm estrogen dominant and should try progesterone.  But that's where I started with the Marion Gluck clinic. And I can't tolerate it now in any dose.

So I didn't get very far with Mr Chat. 

[bombsh3ll]

Estrogen dominance is a red flag term that tells you that you are probably not dealing with a legitimate medical provider.

It's not that mainstream clinicians don't believe excessively high estrogen or insufficient progesterone can't be problematic and/or don't warrant treatment, it's just not a term anyone credible would use, as it has no recognised definition and people can mean different things by it.

I have no personal experience with any of the following but have read/listened to enough of their material to believe they are sufficiently highly skilled, knowledgeable and unbound by the bureaucratic and penny pinching dictat that restricts what can be prescribed on the NHS.

Those that I would go to myself should I need to are Louise Newson, Nick Panay and the late Professor Studd's clinic in London which is still being run by those he trained.

My views don't necessarily fully align with theirs, for example Louise Newson is a bit too evangelical about body identical products and much more negative about synthetic options including combined pills than is warranted by the evidence, however she has a great attitude towards patient autonomy and individual choice, and appears to support experimentation to find what works.

[CrispyChick]

Thanks bombshell.

I'm hoping folks will be along with actual doc recommendations as the likes of Newson have massive numbers of doctors. I can't afford any more dead ends. 

I actually do agree with estrogen dominance. I think I could've had success with prog only since my E has never tested low. But my issues are not straightforward. And my feeling is my body 'overreacts' with every change in hormones, my own and when added/removed exogenously. Whether that can even be helped by a meno specialist - I'm not sure.

It's possibly I need an immunologist or something. But the NHS endocrinologist told me to bog off. I just know I need to keep trying. Right now I have no life whatsoever and feel horrifically ill every single day. 

If anyone can recommend, I'd be very grateful. X

[dangermouse]

Haha! It’s a robot, definitely not a medical provider.

Crispy, what you then do is reply that you tried that and what happened, it will then start going in-depth, particularly will all of your other experiences added.

You can, for example, say that 3 days after taking X you feel Y and it will go into detail about receptors etc that I never found when Googling.

Basically, the more info you give it, the more intelligent the answers are.

[dangermouse]

You can also, apparently, upload photos of test results and it will give a full opinion.

You can also ask for names of immunologists who may be able to help! Or check if it thinks it’s what you need.

[CrispyChick]

Yes. I am finding it good for a 'chat'

But so far I've not discovered anything I haven't already considered or tried. But I'll keep chatting, because it listens better than my husband 

But I do think I need a medical practitioner.

[bombsh3ll]

Someone else just came to mind when you mentioned immunology - why don't you have a look into Dr Tina Peers. She has an interest in hormones and mast cell disorders, and also takes hormone therapy herself after having breast cancer twice.

[CrispyChick]

Hmmm. No. She's not for me. I know someone who saw her - didn't get anywhere.

So. How do I see Nick Paney himself???

[Mary G]

Crispy, correct me if I'm wrong but I'm sure you mentioned a diagnosis you received from a neurologist in the past.  I'm wondering if some other condition is preventing you from processing hormones properly.

Have you asked about Gilbert's Syndrome yet?  That is an inherited condition that gets worse in the lead up to the menopause and it prevents you from processing hormones. 

[CrispyChick]

I've looked I to it, but I didn't read anything about processing hormones. But I can ask my GP. I've been tested for so much.

I couldn't see any solution to it either???

Noone is giving me recommendations? I know I'm a lost cause.  But please folks, help a desperate girl out. X

[bombsh3ll]

Nick Panay is at  https://hormonehealth.co.uk/team/prof-nick-panay

I am not sure if links are allowed to be posted on here but if that disappears you can quite easily search him on Google.

If anyone can help with a menopause/female hormone related issue it's got to be him, he's seen it all.

[laszla]

You can see Nick Panay at his private Harley St clinic called Hormone Health. I saw him several times at Chelsea and Westminster (NHS) and found him good, he's since retired from that post - I continue to attend C & W and it is changing since he left. But you should certainly be able to see him at Harley St and I know he's helped people with tricky situations

[CrispyChick]

Thanks both.

I guess he might be worth a shot then. I'll have a think, then gather all my previous info on tests etc

👍