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[Dotty]

Yes I did find an end  .

I spent about 5 years feeling so ill, although thankfully not as ill as when I was at my worst. I had a couple of “normalish” years although I was nowhere near right, but I did manage to go back to work. Then 3 years after my last period the horrendous symptoms hit me again. It was then that I suddenly realised that I’d been wrongly diagnosed with ME / CFS. I began to get the same old spaced out feelings and then the hot flushes ramped up and I began to feel like a zombie again. It was when the nausea started that I suddenly realised what was wrong with me.

I went on hrt , but hrt didn’t help me until I was put on 4 pumps of Oestrogel. The lower doses did nothing for me. I had another 6 months of hell and then finally, bit by bit the oestrogen started to work and within a month I was feeling much better. It took about 6 months to take full effect.

I won’t say I’m 100%, but I’m so much better than I was. I’m sure I’ve got PTSD and the fear of regressing is always there. I’ve been on 4 pumps of Oestrogel now for 7 years.

[CrispyChick]

Interesting dotty.

I'm guessing you believe estrogen would've been your answer earlier in then?

I suppose that's where we differ. I've been shouting this is hormonal at the docs for 7 years. But having tried everything (except the mirena) they feel like they've proven me wrong. 

I've nothing left to try hormonally really. I mean, I can try HRT again, but as I'm so sensitive, I doubt it'll end well. I can try the mirena.

That's it. 

[Dotty]

Crispy Chick….i don’t really know if oestrogen would have helped in peri. I can’t say for definite. I was taking Noriday mini pill at the time and had been taking it for 21 years prior to this. I stopped taking it about two years later to see if it made any difference, but it didn’t.

All I can say that I didn’t start getting better until I was on the right dose of oestrogen post menopause.

[bombsh3ll]

My money would still be on something androgenic - has tibolone been considered?

This tends to be prescribed postmenopausally but as long as pregnancy is not possible and you aren't bothered about the potential for irregular bleeding, which I am sure is a very first world problem given everything else, there's no medical reason it can't be used earlier.

[CrispyChick]

No. It has not.

I did ask the gynae about that when going into cm. She said not the preferred approach.

Yes, perhaps another one for my list. So it would make my body make its own E, P and T??? Would it actually help balance pre meno though? 

I'd take irregular bleeding any day over mg other stuff. Bleeds are light and fine. And, well, now missing. The only thing that's fine. 

[Minnie Mouse]

It's terrible that still so little is really understood about this.
I had near zero medical history until I turned 50, and then...BOOM.
Crazy insomnia, mood swings, rage, burning skin, achy arms & legs, sore breasts, palpitations, nosebleeds, itchy skin, & more.
The medical profession has largely been just baffled.
Health anxiety off the scale, I've been to A&E twice in the last 6 months thinking I was dying.
And not a single hot flush!
HRT has helped my one intolerable symptom, which was waking up every hour at night and needing to prowl around the house with all the lights on.
However, it has been a lot of trial and error, especially the Utrogestan.
I do increasingly think it's the fluctuations rather than the deficiency that is really problematic, I can sometimes feel my personality changing hour by hour.
If I had the answer I would share it (although good bras, supportive shoes, and turmeric have helped) 

[CrispyChick]

Thanks for joining in minnie mouse. Are you still peri then?

I think you're so right. For us with extended symptoms it seems to be the fluctuations rather than deficiency that cause our issues.

I've started with hot flushes this month. Gone now. First month of missed period. My symptoms are worse than ever.

My brain fog is like zombie land. I usually get this at ovulation. All my pains and bloating I think may have been ovulation yesterday.

I was hoping I was passed ovulatory cycles. But I expect I've seen even more extremes of lows then highs this month.

Having tried chem meno, I know what pure deficiency feels like. Not pleasant. But it's not what I've got now.

I just can't see how HRT can help these fluctuations. I'm glad it's helped one of your symptoms.  for me most things I try just create more symptoms.

I tried utrogestan before. Knocked me out within 5 days. Couldn't function. Not that I function now to be fair. Then tried it vaginally and it triggered the biggest, longest episode of stomach issues I've ever had. So that's out for me.

[rferdi]

Rferdi - I'm sorry you were in this position too. May I ask what hrt you find is helping? X

I'm currently using Lenzetto 1 spray morning and 2 evening, and 200mg Utrogestan for 14 days a month. I just recently added the 3rd spray of Lenzetto at night and that seems to be helping. Before I was using Oestrogel which I think was also fine but Lenzetto is so easy to apply I wanted to give it a go and see if it suits me. We'll see.

I'm still experimenting and I'm not sure using HRT during perimenopause is the best idea, I think can be very difficult for some of us to find balance with it. But I can say since I started it I've not been to the ER again, which was something that used to happen before as I often felt like I was about to die, so it must be doing something good.

[Minnie Mouse]

Hi,
Yes I'm still Peri, still ovulating at nearly 56, which also seems to baffle the medics.
With so many women experiencing early Meno, there must be lots who go later. I'm really hoping I'm done by 60 
Several times I've wondered whether the HRT is fighting my now chaotic natural cycle.
Your post reminded me of another symptom, chronic flatulence 
If men went through this, Utrogestan would be a lot better formulated by now...

[rferdi]

I had near zero medical history until I turned 50, and then...BOOM.

Same, 50 was the magic number 

And not a single hot flush!

Same, not one.

I do increasingly think it's the fluctuations rather than the deficiency that is really problematic, I can sometimes feel my personality changing hour by hour.

Very much agree with this, I think the fluctuations in peri can be brutal.

[rferdi]

Yes I'm still Peri, still ovulating at nearly 56, which also seems to baffle the medics.

Sorry if this is a silly question but, how can you tell you're still ovulating? Thanks

[Minnie Mouse]

...series of medical investigations and scans when I went onto continuous regime too early and had "unscheduled bleeding"

[Lclegg002]

Yes Crispy chick I am still peri. I’m 46 and all this started at 43. I literally don’t know anyone who is suffering like me, all my friends are sailing through and living their lives to the full still. I think they just see me as the hypochondriac now and think it’s in my head and I should push through it and I am withdrawing more and more from them and my world is becoming very small. I feel very angry at being dealt such a shit hand and can feel myself becoming resentful of people (everyone) because I desperately want to be ‘normal’ like them. My husband asks why I spend so much time on here but it gives me so much comfort knowing I am not alone, as in my world I am.
Torrij I’m sorry you too are having such a hard time..you hit the nail on the head when you said menopause is killing you, it is me too. It is sucking every bit of life from me. But the worst part is some days I want to be dead and then I wouldn’t be suffering anymore.
Crispychick def worth trying the mirena.i think at this stage we just have to try anything. Can I ask how you felt on Slynd? I def feel less anxious on this but my mood is very low and I am now thinking I have chronic fatigue. I can’t figure out if this is the Slynd though as I also get chronic fatigue when I take estrogen … tried it time and time again…within 2 hours of putting on gel a wave of exhaustion comes over me, my eyes go heavy and weird and I feel sedated … this wasn’t so apparent when on desogestrel so I have no idea what’s causing it? I am also spotting on and off pretty much every few days and have pms nearly every day. I’m just so done with it all xxx

[CrispyChick]

LCkegg. Hi.

I've just looked back, on Sound my motion sickness (one of my constant symptoms) tanked up even further and I was just so dizzy and sick.

To be fair, I think it's whoever I make a hormonal change that this happens, rather than the hormones themselves being the issue.

After 7 years of trying, my body tolerates nothing now.

My idea was to do nothing. But 3 1/2 months I to doing nothing and I'm in hell. Been made worse by my first missing period.

I'm now getting new symptoms - more bloating, hot flushes, low moods and crying etc. And that's all fine and 'normal' peri stuff. But for me, it's the underlying poison that tortured me day in day out.

I'm wondering if anyone else can relate to this specific thing - it really is the deal breaker on whether I have hormonal issues only, or also have ME/CFC. Very hard to describe. But here guess:

Poison - I feel ill combined with a woozy feeling, nauseous, motion sick and something running through my blood - fluey I guess. But the worst bit for me is it really ramps up when I have to talk to people either socially or for an appointment. So I feel hideous when even having a chat with a friend or speaking to my kids. If is not anxiety. Im sure of that.

Anyone else get the worse when taking thing???

LClegg.  I know exactly how you feel. I often want to dud so I can stop feeling so bad. It reached a peak when they put me on AD which made me suicidal. So that reinforced the want to die because of how I feel feelings.

I have actually been very pleasantly surprised by the majority of my friends and my close family. They can see how bad I am and how long it's gone on for. They've been great. But ...I do wonder if it's because doctors keep telling me this is noticeable hormones so everyone is standing by awaiting to hear what terrible disease I have. Not sure?!

I guess I might try Mirena. But scared. But I'm seeing no improvement on doing nothing, or indeed my own hormones declining. Just more turmoil.

So. I'll put it out there - whilst chemical menopause was a disaster for me, have any of you in peri considered it?

[Lclegg002]

Hi crispychick  I can relate on the dizzy, woozy feeling… mine seems worse in the evening and was one of my first peri symptoms that freaked me out. Sometimes I’m lying in bed and feel like I’m on a boat as my body is moving and vibrating.  I get it worse some days of the month 🤷‍♀️ my ears always seem blocked at the moment too and my nose is constantly stuffy so don’t know if related. And yeees, talking to people is the worst, I put it down to anxiety because I start to feel dizzy and weird and like I just want to escape. I think that’s why I’ve become so withdrawn as anything social just stresses me out. I’ve got dentist and hairdressers tomorrow and am freaking out about both because I hate being in a situation where I cannot escape if I need to! Problem is I now think I have some form of ptsd where this has gone on so long and I now associate pretty much everything with the severe anxiety, dread and depression that I have experienced so hard to say what’s real and what I’m making worse 🤷‍♀️