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Author Topic: Hysterectomy and HRT  (Read 1385 times)

purplebee

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Hysterectomy and HRT
« on: October 27, 2024, 11:03:18 AM »

Hi ladies,
I had a full hysterectomy just over 7 weeks ago. I was on a low dose of Evorel Conti before my op and have restarted it at a higher dose 7 weeks ago. I have a feeling the dose may be too high for me as my nipples have become rock hard and painful, also feeling queasy and slight headache all in the last week or so. I think I should cut down can I just cut my patch in half like I used to or do it slowly.. there's no plumbing for it to affect now.. any advice would be appreciated.  Thank you.




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CrispyChick

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Re: Hysterectomy and HRT
« Reply #1 on: October 27, 2024, 11:36:53 AM »

Hi

I'd probably drop it down slowly, if you can. What dose were you on prior to surgery?

Maybe aim for that, although you might find you need more now through the surgery. But maybe better to get back down to that and see how it pans out.
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purplebee

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Re: Hysterectomy and HRT
« Reply #2 on: October 27, 2024, 12:11:32 PM »

Hi CrispyChick
Prior to hysterectomy I was on 25 mcg and put a full patch on after the op to see how it would make me feel. I think it's too much. I agree with you to do it slowly. I've cut it down today to three quarters of the patch.
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purplebee

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Re: Hysterectomy and HRT
« Reply #3 on: October 28, 2024, 08:25:16 AM »

I would really appreciate some advice please. Anyone??
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CLKD

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Re: Hysterectomy and HRT
« Reply #4 on: October 28, 2024, 08:49:26 AM »

Who prescribes your HRT regime, mayB speak to them?
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Wrensong

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Re: Hysterectomy and HRT
« Reply #5 on: October 28, 2024, 11:54:05 AM »

Hi purplebee, sorry to know you are feeling rough, but yes it does sound as though the full EC patch is too much for you, or the change from half patch to full too big a jump in one go.  I was on EC for a couple of years as my first HRT & some years down the line, had a hysterectomy last year.

I've tried most of the HRT products available over the years & at various doses, so that has meant a lot of changes!  I usually try to increase or reduce dose gradually to minimise stress to the body & agree the reduction to 3/4 patch, perhaps for a couple of weeks, seems sensible before you go back down to half if that feels best for you.

Can I ask were you aiming for a higher dose post-op with greater bone protection in mind?  Also, were you pre- or postmeno before the op & did it include oophorectomies?

Is there any reason you need to continue with a combi product, containing a progestogen e.g. endometriosis history or retained cervix?  Many of us are mightily relieved to see the back of progesterone in all its forms after hysterectomy & the Norethisterone EC contains is considered one of the less well tolerated progestogens.
Wx
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purplebee

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Re: Hysterectomy and HRT
« Reply #6 on: October 28, 2024, 05:53:34 PM »

Hi Wrensong,
Thank you so much for your reply.
I am many years post menopause. I had a full TAH-BSO (everything taken out). I decided to stick with the HRT that has helped me over the years and yes, for the protection to bones from progesterone. I'll stick with the 3/4 of a patch for a while and see how I go. I'm also using Blissel vaginal cream for burning and dryness.

May I ask you how long it took for you to fully recover please? I am only just over 7 weeks post op and have 'swelly belly' (as they call it) .. My bladder is still sensitive and feels tight and 'pulls' when I pee. My bowels are temperamental but a lot better then the first couple of weeks. I know my age is a factor in the healing process (I'm 74 next month) so I have rested over the last 6 weeks as much as possible. I live on my own so it hasn't been easy. The healing isn't linear and the tiredness hits like a sledgehammer some days.
Again, thank you for your help. Any tips for recovery you could pass on would be greatly appreciated.
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CLKD

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Re: Hysterectomy and HRT
« Reply #7 on: October 28, 2024, 06:00:53 PM »

Did U have Blissel prior to surgery?  U may benefit from estriol on the outer labia and urethra .

Anaesthetic can take a while to leave the body, plus U have undergone major surgery. Listen to your body.  If U need to sleep, sleep.  I can drop off at any time my brain tells me to  ::)

R U eating well?  Also keeping hydrated and what was recommended for exercise?  If the tiredness continues I suggest getting a thyroid function and VitD blood test done, we shouldn't blame everything on menopause.   Do U get to C the Consultant again?

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Wrensong

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Re: Hysterectomy and HRT
« Reply #8 on: October 28, 2024, 09:22:44 PM »

Hello again Purplebee & thank you for the extra info, that's very helpful.

I understand why you decided to stay on combined HRT if EC suited you well & the simplest thing for now, as you suggested, would be to continue with your plan to reduce the dose back to half a patch & see how you feel once stabilised at that dose.  In my early 60s I'm finding my body doesn't cope well with higher doses either & the 25mcg half patch may be as much as you can tolerate & importantly, the optimal dose for you to feel your best. 

Now you have no uterus or cervix (with no endometriosis history) as I'm sure you know you could speak to your gynae/GP about changing to oestrogen only HRT if you prefer to see how you feel without a progestogen, perhaps with a little testosterone added if your doctor is amenable, but for now I understand your priority is to recover from the major surgery & get rid of what may be side effects from the higher dose.

We have had similar surgery cumulatively (total hysterectomy + BSO), but mine was in 2 stages, several years apart - the BSO came first & my hysterectomy was laparoscopic, so with smaller external wounds than yours but with pelvic floor repair & another couple of gynae procedures at the same time.  So the differences make it less straightforward for us to compare recovery.  I was warned the PF surgery would likely make me feel pretty rough & required a longer recovery period (3 months) than for laparoscopic hysterectomy alone & to take recuperation very seriously.  I then had complications requiring readmission twice so I can empathise with the toll this type of surgery takes & really can't imagine how you have managed living alone.  Bless you - you must have had a very tough few weeks.  The reason for your surgery may also have some bearing on your recovery, making it different to mine.

So your question about recovery time - it took a lot longer than I anticipated  :o, largely I suspect because of post-op infections persisting for a couple of months & a heavy bleed depleting my iron stores.  I was told to do very little for 3 months post-op, but was lucky my partner works from home & took over the heavy household stuff to enable this.  18+ months on from surgery I'm frustrated to say I'm still not back to the level of fitness I had before, partly through muscle loss from the enforced abstention from exercise.  I'm also still struggling to get my HRT optimised.

Can I ask have they done urine tests for you to check for infection, had a look at your tummy, maybe a scan (I had one when readmitted post-op) to make sure all's OK re the "swelly belly" & bladder symptoms?  If you have no post-op review coming up very shortly I'd ask to see your GP to check everything out for peace of mind.  Early days isn't it & may all be due to the recovery process but best to seek medical opinion I think. 

Also have they given you anything to help keep your bowels gently regular?  Yes, the first couple of weeks are very hard on the bowel with the trauma & swelling from the surgery coupled with the anaesthetic effects, but if you are still struggling with bowel function I would flag that up, as it's important for us to try to avoid undue pressure on the pelvic area after hysterectomy & any bloating will also be increasing the pelvic discomfort as you heal.

Do you feel the Blissel is enough for the vaginal symptoms?  Hard to say at this stage I imagine, as you will still be sore from the surgery.  Although I'd lost both ovaries 5 years before the hysterectomy, I did find I was drier for the latter op, presumably due to loss of mucins on removal of the cervix.  Blissel is a very weak formulation of the already weak estrogen Estriol, so I wonder whether you may benefit from moving to an Estriol cream, the stronger of the two perhaps, the 0.1% product.  I'd suggest Vagifem for the stronger estradiol it contains, but this can be resistant to dissolving when we are very dry.  Something to maybe ask your doctor about if you feel you might need more than Blissel & have not tried the alternatives.  Were you required to go without vaginal HRT for a few weeks post-op?  I was & found this really set back the GSM.

I hope they gave you guidelines on how best to recover e.g. very minimal lifting in the initial weeks, nothing heavier than a half-full kettle (difficult living alone I know) & thereafter whatever adaptations you can make for the long term.  I was told no heavy lifting for life, e.g. grandchildren, shopping bags, even heavy saucepans.  So it has taken some lateral thinking to adjust lifelong habits & that will be less practical & more difficult for you as you live alone, so I do feel for you.  Please do rest as much as you can to help you recover fully.  7 weeks is very early days considering it was major surgery of a very invasive nature that really pulls us about.  Please message me if you prefer.  :hug:
Wx

P.S. - sorry this is so rambling, with extensive later editing too.
« Last Edit: October 28, 2024, 10:41:10 PM by Wrensong »
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sheila99

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Re: Hysterectomy and HRT
« Reply #9 on: October 29, 2024, 03:26:41 AM »

As you're many years post meno it's unlikely you've lost any oestrogen of your own so you could return to your pre-op dose. If you want it for bone protection I think they recommend 50mcg which would be a whole patch? Agree it would make sense to switch to an oestrogen only patch now.
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Wrensong

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Re: Hysterectomy and HRT
« Reply #10 on: October 29, 2024, 08:05:16 AM »

Yes, as Sheila says 50mcg oestradiol is usually the minimum dose recommended for bone protection, but any supplementary systemic oestrogen will help.  If you have osteopenia or osteoporosis, then again, best to speak to your GP/gynae about your HRT. 

For now, given the uncertainties about how you are healing, I think it would be wise to do this anyway for advice on the bladder, abdo/pelvic swelling & the erratic bowel transit.  I was given a post-op helpline no for the gynae ward, but if you were not given any contact details for help in the initial weeks, your GP or practice nurse should be well placed to advise.
Wx
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purplebee

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Re: Hysterectomy and HRT
« Reply #11 on: October 30, 2024, 08:51:52 AM »

Hi Wrensong,
Thank you for your feedback. I joined a group called Hystersisters and it would seem it's quite common to have the swelling as it's due to the body sending fluids to the site of surgery to promote healing, I usually wake up with a flat tummy and when I start to move around and when its evening it will swell and then go down. Apparently the bladder is moved around by the when surgery is carried out and it takes time for it to adjust and settle down especially as the colon and bladder move down to fill the space left.. The right side 'pull' of the bladder seems to be very common. Its much better than it was at the beginning though.. I'm managing quite well with Blissel as an addition to Evorel. I've been very careful with lifting and my daughter has been helping me with shopping and cleaning etc., so I'm managing. The tiredness can be overwhelming at times, but it's the norm it seems. Thank you so much for your advice. Much appreciated.
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Wrensong

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Re: Hysterectomy and HRT
« Reply #12 on: October 31, 2024, 10:39:35 AM »

Hello purplebee.  Glad to know you have found some reassurance  :).  Yes some swelling & bladder discomfort are to be expected post-op & I definitely had that, but it's difficult to know exactly what's going on with another member in the wake of major surgery, so always seems safest to suggest we get checked out by a medic if there is any doubt.  Never having had the surgery before (of course!!) I didn't know quite how much discomfort & dysfunction were par for the course, especially after routine catheterisation - a first for me, but turns out what I was experiencing post-op was not the norm & I had to be readmitted twice in the following weeks with complications I wouldn't wish on anyone else. 

I'm glad things are improving for you & that's great that the Blissel seems adequate.  If the tiredness goes on for longer than you feel reasonable in the circs, maybe ask your GP about it?  As mentioned earlier, blood loss took my iron stores right down so I had to take an iron supplement for a few months afterwards, but hopefully your tiredness will improve as you continue to heal.  Take good care of yourself & I hope you're soon feeling a great deal better.
Wx
« Last Edit: October 31, 2024, 10:42:36 AM by Wrensong »
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