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Author Topic: Louise Newson  (Read 41584 times)

Seasidegirl

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Re: Louise Newson
« Reply #270 on: October 26, 2024, 12:26:02 PM »

CrispyChick thanks for the signpost to Mary's thread,  I'm 3 pages in to it - I see people like me...

Nas, I hear you re cancer,  I was lucky my family history and bolshiness meant that my issues were discovered aged 46 on family history screening whilst still Ductal carcinoma in situ rather than invasive BC.

There are definitely people around who argue because they can!
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CLKD

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Re: Louise Newson
« Reply #271 on: October 26, 2024, 12:38:40 PM »

Tnx Heather.


Still haven't seen the programme but who instigated such an uninformed topic for broadcasting  :-\, was there a sponsor for example. 
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Uma17

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Re: Louise Newson
« Reply #272 on: October 26, 2024, 12:59:57 PM »

Hi Nas

There was a podcast/youtube about cancer at Hayley Street Emporium this week. They have really good podcasts.
I would like to see more threads on living with cancer drugs and the menopause. I feel sure if I started a thread on that, it would be read many times, but replies would be few.

No one seems to discuss it, yet there are some of us poor buggars, who actually have to live with disease AND ride the debilitating storm that menopause can be.
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Sage 🍃

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Re: Louise Newson
« Reply #273 on: October 26, 2024, 01:10:39 PM »



I don’t post on MM any more because this forum is currently mainly about HRT, nothing against HRT, it’s just not the main subject of my menopause journey.



This forum is about anything and everything to do with menopause (and much more!), not just HRT and all discussion is welcomed. There is a whole board dedicated to general health, as well as alternative treatments, and many threads about emotional and life issues where women seek and receive support.

I am curious to know where you do post - or rather, where there is a forum that offers equally wide-ranging advice, information and support as this one?

Clearly there are FB groups but the beauty of this one is that members are completely anonymous!

Hurdity x

I'm not complaining about the MenopauseMatters website or forum, just stating a fact, HRT dominates the forum, and I have absolutely nothing against it, it's the current trend and a complex topic. I prefer discussing scientific evidence than personal experiences and experiments with hormones. I do not post on any other public forums or social media, but I discuss this topic with friends (including doctors and scientists).
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CLKD

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Re: Louise Newson
« Reply #274 on: October 26, 2024, 02:05:26 PM »

 :-\I prefer discussing scientific evidence than personal experiences and experiments with hormones.    :-\

Sadly not all scientific evidence is correct .....   including dis-credited Papers regarding HRT several years ago.  'Evidence' also depends on who might sponsor the research and how many of the results are left out of the final publications: i.e. if something doesn't 'work' which may alter what the researchers want to present then they won't publish it even if it's Peer Reviewed.

This Forum is about sharing real experiences, info that can be used, shelved or disregarded.
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Mary G

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Re: Louise Newson
« Reply #275 on: October 26, 2024, 02:59:47 PM »



I'm not complaining about the MenopauseMatters website or forum, just stating a fact, HRT dominates the forum, and I have absolutely nothing against it, it's the current trend and a complex topic. I prefer discussing scientific evidence than personal experiences and experiments with hormones. I do not post on any other public forums or social media, but I discuss this topic with friends (including doctors and scientists)

What sort of scientific evidence do you want to discuss and how will that help you deal with menopause symptoms?

The two HRT studies in the early 2000s did an enormous amount of damage and millions of women are suffering today because of those wretched studies.

If a menopause/HRT study is conducted and then another study comes along and conflicts with it and then, horror of horrors, a third study comes along and conflicts with the first two, what are you going to do?  Do you pick the study that gives you the most convenient answers and go with that? 

Well said CLKD.
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Sage 🍃

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Re: Louise Newson
« Reply #276 on: October 26, 2024, 04:02:14 PM »

:-\I prefer discussing scientific evidence than personal experiences and experiments with hormones.    :-\


I prefer, meaning, it's my choice. I'm not criticising the forum or its members. The forum is very useful. I do read posts about personal experiences, and some are interesting and useful, but if all I can add is 'I had the same', I leave it to other members who like to chat about their personal experiences. I have posted some links to studies and videos (including one discussion panel with Dr Heather Currie, about HRT!), but no one seemed to be interested. Fair enough, not everyone is interested in scientific research. I don't post any more, but I still read the posts.


Sadly not all scientific evidence is correct .....   including dis-credited Papers regarding HRT several years ago.  'Evidence' also depends on who might sponsor the research and how many of the results are left out of the final publications: i.e. if something doesn't 'work' which may alter what the researchers want to present then they won't publish it even if it's Peer Reviewed.

Fortunately, evidence is evidence, and the scientific interpretation, which depends on correctly applying the scientific method, is subjected to scientific scrutiny, including disclosing sponsors. I think you (and Mary G) may be confusing Menopause with HRT. 'Dis-credited Papers regarding HRT' is a drop in the ocean of research on menopause.

This Forum is about sharing real experiences, info that can be used, shelved or disregarded.

I didn't say it wasn't, but I think this Forum is more than that. I think members have the right to discuss posts that offer potentially dangerous advice, without scientifc evidence; the fact that science is not perfect doesn't justify offering advice based solely on personal experience, given that we're all different. I'm not saying members can't give medical advice, but I think they shouldn't. And how do you know what information 'can be used, shelved or disregarded', without discussion? I certainly don't know how.
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Sage 🍃

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Re: Louise Newson
« Reply #277 on: October 26, 2024, 04:49:58 PM »



I'm not complaining about the MenopauseMatters website or forum, just stating a fact, HRT dominates the forum, and I have absolutely nothing against it, it's the current trend and a complex topic. I prefer discussing scientific evidence than personal experiences and experiments with hormones. I do not post on any other public forums or social media, but I discuss this topic with friends (including doctors and scientists)

What sort of scientific evidence do you want to discuss and how will that help you deal with menopause symptoms?

The two HRT studies in the early 2000s did an enormous amount of damage and millions of women are suffering today because of those wretched studies.

If a menopause/HRT study is conducted and then another study comes along and conflicts with it and then, horror of horrors, a third study comes along and conflicts with the first two, what are you going to do?  Do you pick the study that gives you the most convenient answers and go with that? 

Well said CLKD.

Maybe you're confusing HRT with Menopause. There's a lot of research out there, besides 'the two HRT studies'.

What you are describing is how science works, and as imperfect as it is it's the best thing we have so far to help us take informed decisions.

I don't 'pick studies', and I have no idea what you mean by 'convenient answers', I read the articles, read the references, author's affiliation and confict of interests, and I keep reading them because there is no ultimate truth in science.

In the meantime I try to make sense of what is happening to my body.

If I need a drug for a medical reason, I take it, but not before careful consideration regarding my medical history, including genetics and other drugs, supplements or herbal teas that could interact with that particular drug.

This is how I try to have some control over any health issues I might have, including menopause. I don't know any doctor who actually 'knows' my body from the medical point of view to do it for me. (and that's why I find it troubling that many women seem to think Louise Newson knows their bodies better than themselves).

I usually don't trust information regarding drugs and treatments offered on social media, but if there is something that might help me, I read the available scientific articles about it and give it some thought before I discuss it with a doctor.

I'm not against people trying to feel better by following other people's advice, adults can (or should) think for themselves. This is a discussion forum (or so I thought) and the topic is 'Louise Newson'. She is a medical practitioner, not just a menopausal woman discussing personal experiences in a public forum.

I don't post any more on MM because my interest in HRT in just scientific, given that I'm not taking HRT, but every time I have posted evidence that doesn't quite fit into what some members want to read (is that what you call 'convenient answers'?), they just ignored my posts, or commented that the video was 'too long' (along with a rolling eyes emoji). Funny, isn't it?

Find as much good quality information as possible and listen to your own body, Know Thyself. That's what I try to do.

This is my last post, but if I find anything really useful to post I will post again, even if nobody is interested, I just don't want to derail the topic, which I think is very important.
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CLKD

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Re: Louise Newson
« Reply #278 on: October 26, 2024, 07:40:02 PM »

U missed one of my points Sage - that many studies miss out details of 'failed' or 'unexpected' results that might screw the overall intentions in order to get their products out there.  As DH is a research scientist he can pick apart many studies which the man in the street is unlikely to be able to interpret. 

Many women have to rely on shared experiences: either sitting around as friends or by joining Forums: as there are many medics with little or no knowledge about IBS, Menopause, depression ...... too many stick to the 'guidelines' and are afraid to take a patient's individual needs into account , fortunately our GP is willing to listen and work with my illness and was able to diagnose my VA without actually discussing it with me face2face. He found yet another urine sample in my name waiting for testing and asked how many had been sent to a Lab., not impressed to find that none had been tested: he then rang me to let me know that a script for VA was waiting. 


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Elliebee

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Re: Louise Newson
« Reply #279 on: October 27, 2024, 05:09:50 PM »

I watched the Liz Earle YouTube video which did have some inaccuracies which I questioned on her IG page. She did respond to these but did not answer my questions. I also shared this article to her IG page :  https://vajenda.substack.com/p/a-master-class-in-hormone-levels.

And I was immediately blocked from her page for sharing misleading information! I have a screenshot of the message blocking me!

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Lesred

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Re: Louise Newson
« Reply #280 on: October 27, 2024, 05:53:09 PM »

Hmmm…. That’s very interesting Elliebee, agree with her or you’re out! Not really the point of an open discussion!

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Elliebee

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Re: Louise Newson
« Reply #281 on: October 27, 2024, 06:25:30 PM »

Lesred, it certainly seems that way. But I’m hoping maybe 🤔 an IG blip! I know she is good pals with LN and is keen to defend her which I understand.
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Lesred

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Re: Louise Newson
« Reply #282 on: October 27, 2024, 06:33:31 PM »

Let’s hope it’s just a blip as we should all remain open to other points of view especially with the minefield that is menopause!  :)
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Elliebee

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Re: Louise Newson
« Reply #283 on: October 27, 2024, 07:22:49 PM »

It appears several people who disagreed with LE have been blocked and prevented from posting on Ig. 😬
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Summer-sky

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Re: Louise Newson
« Reply #284 on: October 27, 2024, 09:12:58 PM »

I watched the Liz Earle video and thought she made some good points but puzzled over the comment that higher levels of progesterone are not needed for higher levels of oestrogen unless I have misunderstood her point there? One contributing factor for endometrial cancer can be unopposed oestrogen. 
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