Print

Please login or register.
1 Hour 1 Day 1 Week 1 Month Forever
Login with username, password and session length

[Peach8]

Hello. My periods are horrifically painful, I'm talking vomiting, near fainting, can't walk, the usual painkillers don't touch it and the strong ones just come with other problematic side affects and I end up off work. I'm progesterone intolerant and didn't do well on utrogestan or provera. Currently got mirena but 6 months in and I'm still spotting nearly every day, I'm lucky if I get 2 days a month without bleeding. I'm also on 1.5mg sandrena plus testosterone. I've had depo injection and mini pills years ago and spotted daily the entire time I was on them so I feel like mirena isn't going to settle for me which I'm gutted about. Before I ask for removal, does anyone know what options I have going forward? I cannot go back to the period pain, it fills me with dread. GP had suggested meds that bring on earlier menopause but I don't like the sound of it. I have considered ablation but I've read some of the threads on here and there seems to be a mix of opinions on it.  I'd really be grateful for any suggestions x

[Nik2502]

Hi

I had similar problems and have now been told hysterectomy is my only option. Trouble is they aren’t keen to do it when they deem you healthy!

My friend had ablation a couple of years ago and ended up with more problems.

It might be worth trying the drugs that put you in to menopause x

[CLKD]

It's awful.  I suffered every month for years.  'feminax' - 1 takes it 2-3 days B4 a period is due to ease those cramping muscles.  I bet if a woman offered to pay for hysterectomy she wouldn't be refused  and it may well be the same surgeon who also works on the NHS. 

[Peach8]

Feminax doesn't help unfortunately. The only thing that touched the pain was tramadol but then I'm out my face and can't go to work or look after the kids. I feel like I'm going round in circles and will have to settle for the least crap option, whatever that is. I don't want to settle 😩

[SarahT]

Maybe worth looking at the IAPMD  website??

They usually help mostly with severe cyclical mood swings ( hello me) and mental health caused by hormones, but MAY be able to help with the more physical side of extreme pms or point you in the right direction for advice?

[CLKD]

Also The National Association for Pre-menstrual Syndrome [NAPS]

[Peach8]

Hadn't heard of either of those so thank you x

[SarahT]

Hope you be some much needed advice and help. X

[CLKD]

One isn't healthy if 1 has excruciating pains which impacts on daily activities, including work - time off costs the country after all. 

[joziel]

Those symptoms are endometriosis symptoms and the same symptoms I had 12 years ago.

Are you getting pain with the Mirena, or just constant spotting? If no pain, I'd give it a few more months to see if it can stop the bleeding. For me, desogestrel POP stopped the bleeding - but it took many months to get there, with slow brown sludgy bleeding constantly before that and I didn't think it was ever going to work. Then it did. If you don't have pain with the Mirena and you are also tolerating the progestin, and it's just the bleeding, then give it longer...

If you are progestin/progesterone intolerant then it doesn't leave you with many options if you have endo - but an ablation would be a better thing to try before anything more drastic like induced menopause or surgical menopause with a hysterectomy.

[CLKD]

joziel - the poster is getting period pains ......... 

[Peach8]

Those symptoms are endometriosis symptoms and the same symptoms I had 12 years ago.

Are you getting pain with the Mirena, or just constant spotting? If no pain, I'd give it a few more months to see if it can stop the bleeding. For me, desogestrel POP stopped the bleeding - but it took many months to get there, with slow brown sludgy bleeding constantly before that and I didn't think it was ever going to work. Then it did. If you don't have pain with the Mirena and you are also tolerating the progestin, and it's just the bleeding, then give it longer...

If you are progestin/progesterone intolerant then it doesn't leave you with many options if you have endo - but an ablation would be a better thing to try before anything more drastic like induced menopause or surgical menopause with a hysterectomy.

Thank you. I've been told I probably have endo but it has never been investigated. I'm getting some pain with mirena but nothing major, a couple of paracetamol sort it out. Just sick of the endless spotting, it has been a very long 6 months of hoping that if I just give it a few more weeks it'll stop. Fed up with it now but if I get it taken out the period pain is horrific and I'll still need progesterone, to which I'm intolerant, the mirena has been tolerable apart from the spotting.
Are you still using POP to manage your symptoms?

[VioletAquarius]

I would ask for the endometriosis to be investigated, if it is that that is causing the pain it needs dealing with as it won't go away until it sorted.

I had excruciating period pains, pain killers didn't touch it, and after numerous trips to my gp they couldn't find anything wrong, even on examining my stomach, so I was sent to a gynaecologist.

On my first appointment with him, and after an examination, he said I have endometriosis and need to come back to the hospital the next day for an operation. 

I had a cyst removed the size of a rugby ball and lost my ovary.

Don't leave it, get checked out.

[Toasty123]

Have you tried diclofenic suppositories? Brand name voltarol. I used these when I had surgery and siatica. Not ideal as no painkiller is but less side effects because it’s a suppository and better for nausea for the same reason. The pain killing effect is very good. I can’t tolerate ibuprofen as an oral tablet but when it’s a suppository I could. Hope that helps.

[Taz2]

There might be helpful info here https://www.endometriosis-uk.org/what-endometriosis. They have a helpline. Diagnosis can take a long time so finding out as much as you can is useful.

Taz x