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[In pain]

I'm really looking for advice or similar conditions I started hrt 2 years ago and was put on different routines all the time. In September 23 I was told that I am now post menopause ( not gone 12 months without period) so not sure how I am ! So was put on continuous 2 pumps estrogel and 100mg utesteron In October had a bleed that lasted about 12 days. Was booked in for a vaginal scan and was told everything was fine except for a small cyst on right ovary but noting to worry about and rescan in 3 months to check if it had gone. So January this year had scan was told cyst had gone but lining was thick at 8mm was told probably just hrt needs adjusting.  Few days later read the notes that were sent to doctor and the lady who had scanned me said lining 8mm thick and irregular and can't rule  out fibroid or something more sinister. Well I am now having panick attacks can't eat can't sleep. Spoke to doctor about it and she said as long as I don't have a heavy bleed It is fine but now I've started spotting and have been for about 4 days. I  am now waiting for another tvs to see what's going on I am worried beyond belief. Has anyone had anything similar. Sorry pist us long.

[Dotty]

Hi changing to a continuous regime can take 6 months to settle x

[In pain]

Hi thankyou for replying
I spoke to a different doctor and she said because I have only been on since September she would send me for a tvs again but my previous doctor ( I seem to see a different one each time ) said if I bleed I will need to see gyne for a biopsy. I'm very confused and especially worried about the sinister part

Many thanks 😊

[Penguin]

My understanding was that if you are still in peri then bleeding is likely to happen on a conti regime as your own cycle is still there in the background.

Plus, as Dotty says, you haven't even done the full six months yet, within which time bleeding may well happen. Can you go back and see the GP that suggested the TVS?

[In pain]

Hi

Yeh I think I'm going to have to get in touch again as was told I would be fast tracked but still waiting. 

[In pain]

Also was told I was postmenopausal because of my age (54) but don't see how I can be.
The other thing that is worrying me is the lining is irregular is that worse! I just don't no. Sorry to keep on but I'm exhausted through worry. I have very bad health anxiety 😕

[bluemczoo]

It takes ages to settle into a regime so maybe you are still settling down. If you aren’t absorbing progesterone properly, this can cause your lining to thicken. Did the doctor say to take 200 mg since your bleed. And if still bleeding, then your body just shedding the thickened lining. It is really hard to stay calm during these times. I have just been through something similar and had my biopsy today. It is just routine these days and as the Dr said, there is so many more people on hrt that they may rethink it all. The Dr told me that my bleeding is 97% likely to be hormonal, due to a change in brand of progesterone and/or my body having a last hurrah! I’m 53, so it may be similar for you. Take lots of care.

[Jules]

I don't know about your situation but I know about the anxiety. I'm the same everytime I've to have tests. I don't think the medics help with the language they use. It's their daily job and they forget the impact of what they say. I had an awful experience when a gp referred me to the breast clinic. I was physically ill by the time I got there all because of the things the GP had said. Recently I was given a diagnosis after a test, so casual, no explanation,  nobody with me. My advice from my own experience is to remember that theyre talking in their daily medical language and it doesn't necessarily mean anything, they just dont think, chase up your appointments,  don't just wait, the wait lists are so bad that you're just a number. Those who shout loudest get seen quicker and nobody else will speak for you. Ring up and get yourself seen. I've done it, I even rang the histology lab for outstanding results. The nhs is in such a mess, you've to push your own case.

[Northerngirl]

Hi In pain , I too am in a similar situation as I'm waiting for biopsy results at moment...due anytime now, my lining is
8mm.  The  GP I spoke to in December after my scan results came back was very blunt and told me " I had either cancer or hyperplasia, both were bad I'd need a hysterectomy but it didn't matter as I don't need my womb anyway " he was on.loud speaker at the time and neither I or my husband could believe it. I agree with Jules the medical profession are so used to it that they don't realise how it affects us. The gynae team at hospital have been much more considerate. Jules is also right about the NHS waiting times,  I'm at 4 months of investigations now and my anxiety is off the scale. There are many of us in this unfortunate position and do help each other as I've definitely found out over the past few months. Please reach out if needed

[Taz2]

Hi In Pain. The important thing here is that your lining is not uniform and this is what needs to be checked. I was told at my last scan that it's not so much the thickness itself but the fact that the lining has  a denser patch or patches which needs to be checked. This could easily be a fibroid but you need to make sure that it's not hyperplasia which is a pre-cancerous condition. Although it is obviously an anxious time it is important that you chase this up if you don't get the appointment.

Taz x

[Wrensong]

Hi In pain, I'm sorry you have this worry.  A lot of us have been there with repeat TVS, hysteroscopies & biopsies for a thickened lining & odd bleeding & know just how you are feeling    With any luck the irregularity will turn out to be due to a fibroid & the thickening & bleeding resolved by adjusting your HRT, but I agree with Taz about the importance of making sure you don't get lost in the system if you don't get the appointment within the expected timescale.  You could try ringing the scanning dept yourself to get an idea of how long before you're seen.
Wx

[sheila99]

A lot if unnecessary worry is generated by the 'everyone is peri at 54' fairy story. It's about time they realised some women aren't meno till their early 60s. If you have a cycle of your own it can be 16mm before a period and it isn't a problem. It might be that it's too soon for you to be on conti hrt, if you were pretty regular 2 years ago it's unlikely you're meno now. Agree the irregularity needs to be investigated though bit remember the majority turn put to be OK.

[In pain]

Thankyou all for your kind words. I have a doctors appointment on Monday so I will speak to them. The bleeding has stopped I now just have bloating. I'm trying to stay positive and hoping it is just a buildup of hormones.

[In pain]

Just come back from the doctors. She is referring me for an urgent biopsy for suspected cancer so I am having a full blown melt down right now 😭. Is this something they say for it to be a 2 week referral or is it the worst 😓😓

[Taz2]

This is because your lining is irregular where it should be the same depth all over. This could just be a fibroid but the guidelines are that you should be referred within two weeks as cancer can't be ruled out without a biopsy. You may have hyperplasia which gives a thickened lining plus denser patches and is a pre-cancerous condition. It's good that you are being fast tracked so that if treatment is needed then it can be started as soon as possible. Your GP sounds blunt in the way you have been spoken to with little regard for how scary it can sound.

Taz x