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[buffy26]

Before I self diagnosed VA from reading in thus forum, I was prescribed Locoid steroid cream. Although it can still help as long as I only use a small amount 3 times per week for a couple of weeks and no more, it's not great. Prior to that I was given the same as you  ( Mometasone) and it also made things so much worse.
I haven't been able to get rid if my VA even though I use Ovestin and oestrogen pessaries, but it's so much better than it was.
But now I'm waiting for a hysteroscopy I've had to stop all hrt treatment and I know it will come back with avengence.
I was told by the GP that because I've had it undiagnosed for over 12 years, there is no chance of getting back to how things were. Lovely thought.
I think I'd stop the steroid if it makes you sore, as it did me, too.

Hi, I am sorry for only just responding MrsMitch, thank you for sharing your experience too. Your GPs reaction was a bit defeatist wasn't it?! Don't give up hope, I noticed the Hydramol, simple hydration cream has made a good impact. It may be a try of various creams to suit you. I stopped the Mometasone after a week as it was becoming intolerable; I knew it was this that was making it so. I saw my GP yesterday for a review, she noted an improvement in the rawness but also noticed some potential structural changes so I have been referred to a Vulva Clinic which is reassuring that I am going to see a specialist now. I
 also had a Hysteroscopy last year, for thickened lining of the womb. All was ok there, but I am still not getting the best out of Estrogel, so considering alternative dosages or other methods. Night sweats and body aches are dire still!  Best of luck with finding something that helps you  :_)

[Jules]

Before I self diagnosed VA from reading in thus forum, I was prescribed Locoid steroid cream. Although it can still help as long as I only use a small amount 3 times per week for a couple of weeks and no more, it's not great. Prior to that I was given the same as you  ( Mometasone) and it also made things so much worse.
I haven't been able to get rid if my VA even though I use Ovestin and oestrogen pessaries, but it's so much better than it was.
But now I'm waiting for a hysteroscopy I've had to stop all hrt treatment and I know it will come back with avengence.
I was told by the GP that because I've had it undiagnosed for over 12 years, there is no chance of getting back to how things were. Lovely thought.
I think I'd stop the steroid if it makes you sore, as it did me, too.

Hi, I am sorry for only just responding MrsMitch, thank you for sharing your experience too. Your GPs reaction was a bit defeatist wasn't it?! Don't give up hope, I noticed the Hydramol, simple hydration cream has made a good impact. It may be a try of various creams to suit you. I stopped the Mometasone after a week as it was becoming intolerable; I knew it was this that was making it so. I saw my GP yesterday for a review, she noted an improvement in the rawness but also noticed some potential structural changes so I have been referred to a Vulva Clinic which is reassuring that I am going to see a specialist now. I
 also had a Hysteroscopy last year, for thickened lining of the womb. All was ok there, but I am still not getting the best out of Estrogel, so considering alternative dosages or other methods. Night sweats and body aches are dire still!  Best of luck with finding something that helps you  :_)

Structural changes? Internally?

[buffy26]

Before I self diagnosed VA from reading in thus forum, I was prescribed Locoid steroid cream. Although it can still help as long as I only use a small amount 3 times per week for a couple of weeks and no more, it's not great. Prior to that I was given the same as you  ( Mometasone) and it also made things so much worse.
I haven't been able to get rid if my VA even though I use Ovestin and oestrogen pessaries, but it's so much better than it was.
But now I'm waiting for a hysteroscopy I've had to stop all hrt treatment and I know it will come back with avengence.
I was told by the GP that because I've had it undiagnosed for over 12 years, there is no chance of getting back to how things were. Lovely thought.
I think I'd stop the steroid if it makes you sore, as it did me, too.

Hi, I am sorry for only just responding MrsMitch, thank you for sharing your experience too. Your GPs reaction was a bit defeatist wasn't it?! Don't give up hope, I noticed the Hydramol, simple hydration cream has made a good impact. It may be a try of various creams to suit you. I stopped the Mometasone after a week as it was becoming intolerable; I knew it was this that was making it so. I saw my GP yesterday for a review, she noted an improvement in the rawness but also noticed some potential structural changes so I have been referred to a Vulva Clinic which is reassuring that I am going to see a specialist now. I
 also had a Hysteroscopy last year, for thickened lining of the womb. All was ok there, but I am still not getting the best out of Estrogel, so considering alternative dosages or other methods. Night sweats and body aches are dire still!  Best of luck with finding something that helps you  :_)

Structural changes? Internally?

Hi Jules, I will DM you if thats ok?

[Jules]

And how long did you follow that frequency for before it made improvements?

Just popped back on here to report that after 4 months, the nightly use of ovestin is making some difference.  Plumping up a bit and more comfortable. I was wasting away so less than nightly was doing nothing. I'm using a large pea size and continuing till I feel I've got on top of it before I try reducing.

It took over a year to be fully plumped up again and feel normal. Its constant maintenance and I still suffer the occasional flare up but they are very mild now.
My regime is the same as I started with and experimented reducing the Vagifem but it never really works to do that, I need the daily regime even after two years.

[fiftyplus]

Hi Jules Welcome back :foryou:I missed ya, great to see you back x 

[fiftyplus]

 

[Ayesha]

Thanks for the update, Jules and welcome back.

Your post proving again that if you keep to a regime that works for you and to be in charge of your own regime will work in the end and to reduce the dose when the time is right.

[Jules]

That's right. I dont know if there's  a limitation to the extent it can have and I'm not sure I'll ever look like my old self (none of me is my old self) but definitely improvement and had I done nothing, I dread to think of the end result. Don't wait till things get too severe.

[Jules]

Thankyou

[Jules]

Before I self diagnosed VA from reading in thus forum, I was prescribed Locoid steroid cream. Although it can still help as long as I only use a small amount 3 times per week for a couple of weeks and no more, it's not great. Prior to that I was given the same as you  ( Mometasone) and it also made things so much worse.
I haven't been able to get rid if my VA even though I use Ovestin and oestrogen pessaries, but it's so much better than it was.
But now I'm waiting for a hysteroscopy I've had to stop all hrt treatment and I know it will come back with avengence.
I was told by the GP that because I've had it undiagnosed for over 12 years, there is no chance of getting back to how things were. Lovely thought.
I think I'd stop the steroid if it makes you sore, as it did me, too.

Hi, I am sorry for only just responding MrsMitch, thank you for sharing your experience too. Your GPs reaction was a bit defeatist wasn't it?! Don't give up hope, I noticed the Hydramol, simple hydration cream has made a good impact. It may be a try of various creams to suit you. I stopped the Mometasone after a week as it was becoming intolerable; I knew it was this that was making it so. I saw my GP yesterday for a review, she noted an improvement in the rawness but also noticed some potential structural changes so I have been referred to a Vulva Clinic which is reassuring that I am going to see a specialist now. I
 also had a Hysteroscopy last year, for thickened lining of the womb. All was ok there, but I am still not getting the best out of Estrogel, so considering alternative dosages or other methods. Night sweats and body aches are dire still!  Best of luck with finding something that helps you  :_)

Structural changes? Internally?

Hi Jules, I will DM you if thats ok?

Hi Buffy, I had a break. Needed to stop reading things.  I've had to re-register and can't send or receive messages until I've posted 10 times.

[buffy26]

Before I self diagnosed VA from reading in thus forum, I was prescribed Locoid steroid cream. Although it can still help as long as I only use a small amount 3 times per week for a couple of weeks and no more, it's not great. Prior to that I was given the same as you  ( Mometasone) and it also made things so much worse.
I haven't been able to get rid if my VA even though I use Ovestin and oestrogen pessaries, but it's so much better than it was.
But now I'm waiting for a hysteroscopy I've had to stop all hrt treatment and I know it will come back with avengence.
I was told by the GP that because I've had it undiagnosed for over 12 years, there is no chance of getting back to how things were. Lovely thought.
I think I'd stop the steroid if it makes you sore, as it did me, too.

Hi, I am sorry for only just responding MrsMitch, thank you for sharing your experience too. Your GPs reaction was a bit defeatist wasn't it?! Don't give up hope, I noticed the Hydramol, simple hydration cream has made a good impact. It may be a try of various creams to suit you. I stopped the Mometasone after a week as it was becoming intolerable; I knew it was this that was making it so. I saw my GP yesterday for a review, she noted an improvement in the rawness but also noticed some potential structural changes so I have been referred to a Vulva Clinic which is reassuring that I am going to see a specialist now. I
 also had a Hysteroscopy last year, for thickened lining of the womb. All was ok there, but I am still not getting the best out of Estrogel, so considering alternative dosages or other methods. Night sweats and body aches are dire still!  Best of luck with finding something that helps you  :_)

Structural changes? Internally?

Hi Jules, I will DM you if thats ok?

Hi Buffy, I had a break. Needed to stop reading things.  I've had to re-register and can't send or receive messages until I've posted 10 times.

Ah Ok, I get it. Sometimes it takes you down a rabbit hole doesn't it! Although, super helpful and much valued forum.

[buffy26]

Steroids down there is the treatment for Lichens Sclerosus, the cream I use is Hydrocortisone called Dermovate or Clobetasol. It's the only cream I can use that actually doesn't sting or burn and make me sore. It works very fast healing the tissue so when I apply the Ovestin it doesn't sting. A small amount twice a day for a month then once or twice a week for maintenance. Usually it sorts me out within a week or two, wouldn't be without it.

Hi Dierdre, so after my visit with the gynae doctor, she confirmed Lichen Planus or Schlerosis. She observed all looked well "estronogised "
and not a bit dry or sore and that I should drop the Vagifem to just twice a week. Also to use Epaderm ointment for moisture instead of Hydramol. Since adapting this advice I have reverted back to the rawness and discomfort. I was using Vagifem every night and was doing so well. She is waiting for a result of a swab test to check for thrush and then will issue a prescription request for my GP practice to prescribe Dermovate to prevent any flare ups. I was deemed to be not in a flare at the time, diagnosis made from evidence of activity historically. I feel I want to up the Vagifem again as before and do my own routine again, surely thats ok, if it works?! Any thoughts on this ladies on the safety of higher doses of pessaries?
I am back and forth to GP for other issues a lot so I am loathed to go back again about this too! 

[Jules]

A GP once said I was well estrogenised on examination.  Clearly though I wasn't as I was having UTIs and irritation. I wasn't using any estrogen products then.

[buffy26]

 This was a gynaecologist, so sees a lot more cases I guess! although, someone I know prefers to see a dermatologist for her issues as both specialities cover these issues. Menopause specialists may even have another view on dosage and best products ! aghh! I just read that you are on daily Vagifem, is still the case? Is your practitioner fine with this? 

Jules, I have just seen your reply on my messages, can I now respond to that? Apologies for not seeing sooner!

[Jules]

This was a gynaecologist, so sees a lot more cases I guess! although, someone I know prefers to see a dermatologist for her issues as both specialities cover these issues. Menopause specialists may even have another view on dosage and best products ! aghh! I just read that you are on daily Vagifem, is still the case? Is your practitioner fine with this? 

Jules, I have just seen your reply on my messages, can I now respond to that? Apologies for not seeing sooner!

I'm not on daily vagifem,  alternate nights though. I use ovestin nightly though at present externally,  hopefully until I feel I can reduce it.