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[Donna-paul]

I had light bleeding/spotting both times. I had a scan and biopsy 15mths before and given all clear then I had bleeding again. Even though then the lining was ok the nurse decided to redo the biopsy. Something I will always be grateful for. I had to have lots of scans to make sure it hadn’t spread which it hadn’t so total hysterectomy was all I needed🤞try not to worry till you have had the biopsy.

[Northerngirl]

Hi Northerngirl, I've just had the same diagnosis as you, today. 6.5mm thickness after TVS. Have to have my hysteroscopy under gen anaesthetic due to vaginal atrophy, the gynae said combined with not having children, the pain would be too bad, so I'm glad I'll be knocked out!!
I had spotting for a couple of months followed by a massive heavy period last month. On HRT for 2 years which I decided mainly due to quality of life (or lack of it)
Gynae said to stop hrt and tbh I doubt I'll go back on after this.
Like you, I wasn't given any other diagnosis except possibly cancer. I'm having the procedure with 2 weeks and had the pre op today while at the hospital.
Try not to overthink this - with only 8mm thickness there is only 7% chance of it being cancer, so very low. I've learned over the years that the medical profession always give you worst case scenario. I had to sign the consent form which put more emphasis on what might go wrong instead of the procedure itself. I'm sure with both of us, it's unlikely to be cancer, other yhan bleeding I gave had no other symptoms.  Apparently there is a high chance that I wasn't taking enough progesterone,  hence thickening, too much oestrogen- 4 pumps daily, hence bleeding. It may be polyps.
Try to do some reading here if you can, lots of sound advice from women who have been through the same.
Will you update when you've had your procedure so I know how you are?
Sending you virtual hugs, I hope you can settle as you process the information you have.

thank you so much for your reply, it means a lot to know that we're not alone. It sounds like you've had a lot more information than me about this. I've been on different HRT over the years and finally thought I'd solved it with 1 pump and utrogestan daily. I'm the same as you....I will never take it again...too scared now. I just hope I'm here to make that decision. I'm so terrified at the moment....it couldn't have happened at a worse time (not that there's a good time) I'm due my first grandchild in the spring  and can't help but  fear the worst. I didn't know you could have the hysteroscopy under anaesthetic....I've had one before and found it very painful  and I too have VA.
Have they said you will have a hysterectomy whatever the outcome?
We must stay in touch...I hope all goes well for you

[Northerngirl]

I think that medics should keep big gobs shut ........ although they seem to 'have' to be doom and gloom instead of explaining carefully the ifs, why's, buts.  Quality of Life so HRT when required is important.

They just said either outcome and both not good. Then sent you away  .  To my mind that's medical negligence.  However, if you are having to wait for further treatment rather than being admitted immediately?

that's exactly what they said...2 outcomes with a hysteroscopy and biopsy  then a hysterectomy as I am postmeno.  It was over the phone not in person....but don't suppose it matters how they said it, it needed to be said.

[Northerngirl]

Post menopausal bleeding also doesn't mean it is always cancer.  There are other reasons for it too - are you on HRT?  Did they see any endometrial polyps on the scan - was it a TVS scan done by a gynae? I agree with CKLD, at this stage it was a jump for them to say that. x

it's not just the bleeding, it's the urinary issues and the 8mm thickness.
No polyps mentioned. Yes I'm on oestrogel  and  daily utrogestan. Not done by gynae but I presume it has been assessed.

[Northerngirl]

Hi Northerngirl, I've just had the same diagnosis as you, today. 6.5mm thickness after TVS. Have to have my hysteroscopy under gen anaesthetic due to vaginal atrophy, the gynae said combined with not having children, the pain would be too bad, so I'm glad I'll be knocked out!!
I had spotting for a couple of months followed by a massive heavy period last month. On HRT for 2 years which I decided mainly due to quality of life (or lack of it)
Gynae said to stop hrt and tbh I doubt I'll go back on after this.
Like you, I wasn't given any other diagnosis except possibly cancer. I'm having the procedure with 2 weeks and had the pre op today while at the hospital.
Try not to overthink this - with only 8mm thickness there is only 7% chance of it being cancer, so very low. I've learned over the years that the medical profession always give you worst case scenario. I had to sign the consent form which put more emphasis on what might go wrong instead of the procedure itself. I'm sure with both of us, it's unlikely to be cancer, other yhan bleeding I gave had no other symptoms.  Apparently there is a high chance that I wasn't taking enough progesterone,  hence thickening, too much oestrogen- 4 pumps daily, hence bleeding. It may be polyps.
Try to do some reading here if you can, lots of sound advice from women who have been through the same.
Will you update when you've had your procedure so I know how you are?
Sending you virtual hugs, I hope you can settle as you process the information you have.

thank you so much for your reply...it means a lot to know we are not alone. Do you have to have a hysterectomy whatever the outcome?
I didn't know you could have the hysteroscopy under anaesthetic..it's very painful I found before.
We must stay in touch and help each other x

[MrsMitch]

No, Notherngirl, no hysterectomy mentioned at this stage. I told the gynae that which ever Dr I speak to about anything always want me to come in for an internal exam and I refuse due to the pain from VA. My last smear in the summer was impossible.  She wanted to know why my GP didn't refer me to hospital for exams or smear, she said I could have local, sedation or GA if needed for any necessary exam. She told me to insist, in future, that they refer me. I haven't had any children so my cervix (gynae explained) will never have opened and that combined with VA means they wouldn't attempt hysteroscopy without GA. Why don't you contact them and ask for it too? I will never have anything that could be painful now.
With regards to your first grandchild, you're jumping the gun, thinking you may not be here, you will be. I know it's easy for our minds to think the worst, but it is apparently very rare that either of us has cancer. The chances are, the biopsy will come back with good results for us both. If they don't,  I would think the best option would be hysterectomy.  I believe I will be informed by letter of the results which is novel. I would think hearing from the specialist would be far better, but there we go.
So, please do try and focus on the fact that there is only a 7% chance with that thickness it could be cancer. If you did have to have a hysterectomy,  my friend has had one recently (she's 70) because her family have a genetic propensity to cancer. She bounced back really fast as was fine.
But try to put that to the back of your mind until either of us know.
Please think about contacting the gynae depth and ask for a general anaesthetic too.

[Northerngirl]

No, Notherngirl, no hysterectomy mentioned at this stage. I told the gynae that which ever Dr I speak to about anything always want me to come in for an internal exam and I refuse due to the pain from VA. My last smear in the summer was impossible.  She wanted to know why my GP didn't refer me to hospital for exams or smear, she said I could have local, sedation or GA if needed for any necessary exam. She told me to insist, in future, that they refer me. I haven't had any children so my cervix (gynae explained) will never have opened and that combined with VA means they wouldn't attempt hysteroscopy without GA. Why don't you contact them and ask for it too? I will never have anything that could be painful now.
With regards to your first grandchild, you're jumping the gun, thinking you may not be here, you will be. I know it's easy for our minds to think the worst, but it is apparently very rare that either of us has cancer. The chances are, the biopsy will come back with good results for us both. If they don't,  I would think the best option would be hysterectomy.  I believe I will be informed by letter of the results which is novel. I would think hearing from the specialist would be far better, but there we go.
So, please do try and focus on the fact that there is only a 7% chance with that thickness it could be cancer. If you did have to have a hysterectomy,  my friend has had one recently (she's 70) because her family have a genetic propensity to cancer. She bounced back really fast as was fine.
But try to put that to the back of your mind until either of us know.
Please think about contacting the gynae depth and ask for a general anaesthetic too.

so have you already had your hysteroscopy?
I understand what you are saying but it's all the symptoms along with the 8mm lining...I have bleeding, nausea, lower back and abdominal pain....doesn't look good to me.

[CLKD]

I think that taking a list along to the appt is the way to go: ask the questions B4 the procedure that you are asking here.  'it might be' B4 the next appt is a bit harsh, was there a Nurse present who U were able to talk to afterwards?

Some medics are so used to giving 'news' that they forget the outcome to the patient/relatives. 

[Donna-paul]

No, Notherngirl, no hysterectomy mentioned at this stage. I told the gynae that which ever Dr I speak to about anything always want me to come in for an internal exam and I refuse due to the pain from VA. My last smear in the summer was impossible.  She wanted to know why my GP didn't refer me to hospital for exams or smear, she said I could have local, sedation or GA if needed for any necessary exam. She told me to insist, in future, that they refer me. I haven't had any children so my cervix (gynae explained) will never have opened and that combined with VA means they wouldn't attempt hysteroscopy without GA. Why don't you contact them and ask for it too? I will never have anything that could be painful now.
With regards to your first grandchild, you're jumping the gun, thinking you may not be here, you will be. I know it's easy for our minds to think the worst, but it is apparently very rare that either of us has cancer. The chances are, the biopsy will come back with good results for us both. If they don't,  I would think the best option would be hysterectomy.  I believe I will be informed by letter of the results which is novel. I would think hearing from the specialist would be far better, but there we go.
So, please do try and focus on the fact that there is only a 7% chance with that thickness it could be cancer. If you did have to have a hysterectomy,  my friend has had one recently (she's 70) because her family have a genetic propensity to cancer. She bounced back really fast as was fine.
But try to put that to the back of your mind until either of us know.
Please think about contacting the gynae depth and ask for a general anaesthetic too.

I got letter which said my biopsy came back abnormal and I had to see a Specialist in 3 days time . It also said you can bring a relative or a friend with you which made alarm bells go for me as I really thought it would be normal. I looked up the Dr before the appointment and he was a gynaecologist oncologist so I was more prepared. Try not to worry till you get the results.

[Mary G]

Northerngirl, I'm sorry to come to this thread late but a womb lining measurement of 8mm is not that unusual for a post menopause woman using HRT.   Sometimes the oestrogen/progesterone ratios are out and it's possible to just get a build up even if on continuous HRT.

There are several reasons this could have happened.  I understand you are using Utrogestan on a continuous combined regime but perhaps you have stopped absorbing it properly.  Sorry for all the questions but are you taking Utrogestan orally or vaginally?  How long have you been been using this regime and why did you have a TVS?  Was it just routine or have you had problems like irregular bleeding? Have you ever had a scan before and if so, what was your lining measurement?

When I was using a cyclical regime my womb lining measurement was 8mm immediately before and bleed and then it reliably went down to about 3.3mm post bleed.  It could be that you need to take a strong progesterone to clear the womb lining and then switch to a different and more effective form of progesterone or have a Mirena coil fitted. 

I'm glad you are being thoroughly checked out but I feel you are being made to worry unduly.  It would be different if you were not using HRT.

[MrsMitch]

[/quote]so have you already had your hysteroscopy?
I understand what you are saying but it's all the symptoms along with the 8mm lining...I have bleeding, nausea, lower back and abdominal pain....doesn't look good to me.
[/quote]

No, not had the hysteroscopy....I only had the TVS yesterday and was told that I'd be in for the GA/procedure within 2 weeks, so I'm hoping it'll be before Christmas.

I hear what you are saying re the other symptoms though. My only symptom was bleeding.  It seems to me that they will do a hysterectomy as a precaution if they think things have the potential to develop cancer. But either way, it's early day for you, which is good. Let me know when you get your apt for hysteroscopy and I'll update you likewise.

[MrsMitch]

I've just read that I'm at higher risk of hyperplasia/cancer because I haven't had children.
Starting will excruciating period pain at 11 due to endometriosis followed by awful menopause issues and now this...oh goodness me, tbh I'd be quite glad to see the back of that part of me!!!
I'm presuming if I did have to have a hysterectomy that I could continue with oestrogen pessaries to control VA.  The thought of the pain going back to what it was pre diagnosis is daunting.

[Northerngirl]

so have you already had your hysteroscopy?
I understand what you are saying but it's all the symptoms along with the 8mm lining...I have bleeding, nausea, lower back and abdominal pain....doesn't look good to me.
[/quote]

No, not had the hysteroscopy....I only had the TVS yesterday and was told that I'd be in for the GA/procedure within 2 weeks, so I'm hoping it'll be before Christmas.

I hear what you are saying re the other symptoms though. My only symptom was bleeding.  It seems to me that they will do a hysterectomy as a precaution if they think things have the potential to develop cancer. But either way, it's early day for you, which is good. Let me know when you get your apt for hysteroscopy and I'll update you likewise.
[/quote]Thank you....I will keep you updated.  Wishing you all the best with everything

[CLKD]

Where did U read that information - I've not had children and use localised ovestin for vaginal atrophy.

We 'don't do this' to ourselves!   At the time we make those decisions: whether it's over food, holidays, medication : we do so with the information to hand on that day. 

It's the way that you have been told that bothers me ........... 

[Northerngirl]

Northerngirl, I'm sorry to come to this thread late but a womb lining measurement of 8mm is not that unusual for a post menopause woman using HRT.   Sometimes the oestrogen/progesterone ratios are out and it's possible to just get a build up even if on continuous HRT.

There are several reasons this could have happened.  I understand you are using Utrogestan on a continuous combined regime but perhaps you have stopped absorbing it properly.  Sorry for all the questions but are you taking Utrogestan orally or vaginally?  How long have you been been using this regime and why did you have a TVS?  Was it just routine or have you had problems like irregular bleeding? Have you ever had a scan before and if so, what was your lining measurement?

When I was using a cyclical regime my womb lining measurement was 8mm immediately before and bleed and then it reliably went down to about 3.3mm post bleed.  It could be that you need to take a strong progesterone to clear the womb lining and then switch to a different and more effective form of progesterone or have a Mirena coil fitted. 

I'm glad you are being thoroughly checked out but I feel you are being made to worry unduly.  It would be different if you were not using HRT.

Thanks Mary G for your reply. Don't mind all the questions at all, any advice on this is gratefully received.  I take the utrogestan orally every night for about 20 months alongside one pump of oestrogen. I had the tvs as they are  being thorough after having blood in urine and uti symptoms from Oct  but all urology scans etc clear. Only this week I have  started with bleeding, back and abdominal pain (not had any sort of bleeding since 2012 and I'm 55 now. Never had my lining measured before.  I really appreciate your advice.