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[Mary G]

Thanks for the update Nas, I imagine that anxiety about today aside, you must be hugely relieved with those scans results.

Great news that the hysterectomy has completely dealt with the scarcoma with a good prognosis. As you say, the drugs will deal with the breast cancer cells in the lung so you have a very good treatment plan.

I hope you are feeling better now and more positive but it just have been a worry.

[Nas]

Wow Nas, what a journey! It sounds like better news than you thought you'd be getting,  if I am understanding correctly?

Are the BC cells related to your previous bout of BC then? And floating around not attached to anything so can be zapped / mopped up???

Great they couldn't find anything on your lungs.

Wow a lot to take in, you deserve your drink tonight! And big hugs to you, you are so strong and amazing to get through today and I'm sure you'll do the same with any treatment too. When does it all start?

Hey positive Penguin,
How’s it going?
Yes these pesky cells are breast cancer cells, oestrogen fed ( unfortunately) If they are going to return, it’s mainly the lung, brain, spine and bones and certainly not  the abdominal wall! As the lovely breast care nurse said, cancer moves in devious ways!

My drugs have arrived today; one lot targeting the beast and the other lot blocking any oestrogen I may produce. Think Pac-Man!!

I think I will start on January 1st, as can’t face any grim side effects over Christmas, when I’m still trying to gather physical strength following the hysterectomy.

I’m hoping these cells are floating, it’s hard to know. The scan didn’t pick up a tumour but they feel sure something is there. So, if tiny and its food supply cut dead, maybe the drugs will kill it. I will only know that ( probably) after the next scan in March.

What we don’t want of course, is for the cells to multiply or move to a different organ or body part.

Anyway, let’s stay positive. I have my drugs ( and my doughnuts) so I’m ready !!

Partner Sarah, how is your husband? Is he well? And Jules, your friend?

Sarcoma.. wow.. that’s a devious one alright! Taking precisely one year to cause problems. Glad that’s gone! 

Mary, although now in the midst all this health chaos, I do feel weirdly positive. I was much more composed this time round. Listening and note taking and understanding what was being said. Asking coherent questions instead of one question over and over ( which I won’t post on here!).

Sheila, patient support would be excellent and I did ask about that. There is a big Maggies centre in Manchester, which I may investigate some time.

Ayesha, I will TRY not to be so greedy in future. Ironically I am
not a greedy person by nature; just when it comes to the bad stuff! 🙈🙈😱

Finally, I just wanted to say  for all your kind words and messages of support and good luck, they have been an absolute lifesaver in truth.


Wishing you all good health and peace, wherever you are on your journey and I will of course keep
you updated on my own journey, via this thread.   

Xx

[suzysunday]

Hi Nas and it's so good to hear you sound so positive.  Sounds like a good idea to wait to take the drugs till new year Have a great Christmas and glad you have had all this support and that it has helped.   Keep us up to date with your progress xxx

[Ana21]

Hi Nas!

Thanks for the update.  Great to hear the surgery took care of the sarcoma!  Excellent news.  Sounds like you have a wonderful medical team.

It's good to hear you sounding strong and positive. 

Wishing you a happy holiday and all the best in the battle ahead. 

[Nas]

Thanks Suzy and Ana
The waters may be turbulent at times, but I myself and my team are ready! X

[Wrensong]

Nas, so pleased to hear the good news that the hysterectomy has dealt with the sarcoma with no further treatment required for that.  So good too that spine, bones & brain are clear & no growth has been found in the lung.  Your expert team are on the case & it sounds as though you couldn't be in better hands.  The way you've dealt with all this has been simply amazing  .  Big hug to you & I hope you're having something of a well deserved break over Christmas.
Wx

[Penguin]

Hi Nas
Good you've been able to delay the start of the drugs until new year ❤️
And positive scans didn't pick up an actual tumour- logic, to me, dictates that it has to be bloody tiny to not be seen on the scans. And we all know that the earlier/ smaller things are when picked up, the better the chance of treating them effectively!
Hope you managed to have a good Christmas Day and a few drinks!!! X

[Kathleen]

Hello Nas.

I am so pleased that everything is going well for you. I think postponing the drugs until the new year is a good idea as you will have time to rest and recuperate before you begin the treatment.
Am I correct in thinking that you will not be using systemic HRT in the future? I imagine that topical treatments for VA will be okay should you want them.

Wishing you well and please keep us updated.

Take care.

K.

[SarahT]

Hiya Nas,

So, New Year is the start of your plan, sounds like a wise choice indeed. Bit of time for yourself for a few days without the additional worry as tonic the drug treatments will be as kind to you as we hope. Wrensong was so right - you have been bloody amazing,and yet you  still find the energy to reply to posts to offer advice and support to others. Top Girl in my eyes.

Roll on 2024, I'm all in for a positive and uplifting  New Year. And I wish you the same and to all who are having a tough time. X

[Losingtheplot]

Big hugs Nas xxxx

[Nas]

Hi Nas
Good you've been able to delay the start of the drugs until new year ❤️
And positive scans didn't pick up an actual tumour- logic, to me, dictates that it has to be bloody tiny to not be seen on the scans. And we all know that the earlier/ smaller things are when picked up, the better the chance of treating them effectively!
Hope you managed to have a good Christmas Day and a few drinks!!! X

Penguin, I so so hope the beast is tiny and can be knocked on the head ( that is what i try to tell myself anyway!) I did indeed indulge in a Prosecco or 8  🤣 and feel pleased Christmas Day was enjoyable for my immediate family.

Wren, I don’t feel amazing and have had stern words with my body, basically asking what the heck is it playing at! Is it possessed? Or simply confused with good and bad?

Kathleen, you are bang on with your “ no HRT” thinking. I’ve had to bin it all. Never to enter my body again. Symptoms of intense itchy skin and mood swings have descended 🙈
On the upside, I will now know what I’m dealing with ( menopause wise).

Parter Sarah, are you ready for the next round? I feel we can abandon the sledgehammer now because reading up on the side effects, these drugs appear to have the ability to tackle the toughest disease cells known to man!

LTP, I sincerely hope you can access an effective type of therapy very soon. Sending strength and hugs back ❤️

Anyone else planning on watching Michael Palin in N Korea tonight? I’m intrigued! How has he even managed to access that country? Suppose he poses no threat…
Xx

[Nas]

Just back from my gynae follow up. I will forever be grateful to that surgeon who performed my hysterectomy, as my ovaries and fallopian tubes were also covered in breast cancer cells!

That, along with the sarcoma, would have had a merry old time of things, trying to kill me off!

I’ve been referred to the sarcoma team, just to put closure on that episode, which is what drove me to the GP initially.

So, as one door closes, another opens, ready for the next challenge of keeping what is there, at bay.


P.s I watched Michael Palin in N Korea and realised he visited in 2018, not recently!

[SarahT]

Blimey Nas, it seems incredible what you have been through and how fortunate you were finally taken seriously.
So the main culprits hanging on to the breast cancer cells were scythed out and fully removed in time. And a referral to the sarcoma team which will ensure any lingering questions you have can be addressed.
How are you holding up partner?  I imagine it can take some time to slow all the thoughts down, but we all do our baby steps I guess.
2024?? Im ready for you! 😁

[Penguin]

Just back from my gynae follow up. I will forever be grateful to that surgeon who performed my hysterectomy, as my ovaries and fallopian tubes were also covered in breast cancer cells!

That, along with the sarcoma, would have had a merry old time of things, trying to kill me off!

I’ve been referred to the sarcoma team, just to put closure on that episode, which is what drove me to the GP initially.

So, as one door closes, another opens, ready for the next challenge of keeping what is there, at bay.


P.s I watched Michael Palin in N Korea and realised he visited in 2018, not recently!

Omg Nas I am so glad they operated when.l they did and didn't delay things when they found the lung fluid. Blimey what a palava though, am  I right in thinking breast cancer cells (particularly if hormome driven) are likely to respond well to the zapping? Your team are so fantastic, they're just on it now aren't they.  How are you feeling after today? It must be so hard to process all this news that seems to be coming in thick and fast now after such a long bloody wait. I am SO glad you are in the system and about to start your treatment in a couple of days, what a journey hey. You're amazing I hope you know that eh x

[Nas]

Hi penguin and partner Sarah,
Almost a sense of relief that all “news” is now up to date.

Fearful of future news, but no point in worrying about what hasn’t happened yet!

The team are truly amazing at the Christie. I had a question about the timing of a blood test, left a message and within the hour, had a call with a detailed answer.

I have access to all the professionals ( from consultants to nurse specialists) at my fingertips and from now on, no stone shall be left unturned.

It’s odd as I hated the place so much two weeks ago, but now, it feels safe and the outside world feels scary! That’s going to have to change obviously, but how, I don’t know.

Certainly don’t feel amazing Penguin, but in a better place mentally than immediately post op.

The journey continues …..

Xx