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[Nas]

Hey penguin,
Sorry to hear DS is being challenging. The gift of parenting, which keeps on giving!

We see alot of this in the school which I work in. Children often keeping it all in at school, but then explode at home and the poor parents have to deal with the aftermath. I do hope things get easier for you all. How old is he?

I came off the HRT a couple of weeks ago. Still too early to see any effects, but time will tell I’m sure!

[Penguin]

Hey penguin,
Sorry to hear DS is being challenging. The gift of parenting, which keeps on giving!

We see alot of this in the school which I work in. Children often keeping it all in at school, but then explode at home and the poor parents have to deal with the aftermath. I do hope things get easier for you all. How old is he?

I came off the HRT a couple of weeks ago. Still too early to see any effects, but time will tell I’m sure!

He's 9. This term is the worst for tiredness too, both kids are the sort of tired that a good night's sleep isn't enough for. Thats totally it though, he can be okay until the school gate and then totally lose it on the way home. We've been told the sensory stuff means he is probably just so done in by hometime that he can't keep  it together anymore, so it makes sense, but is so hard.

I lasted 5 days off hrt but was getting worried about my mental health. I hope you go okay or there are other options offered to you to manage symptoms!

I love the idea of a house bunny too. Who'll look after them when you are in hospital?

[Nas]

Yes the autumn term is a killer for everyone, kids, staff and parents. Does he receive any support at school?

The house bunnies.. well DS is 15.5 and more than capable. I’ve told him I won’t be able to clean their room and litter trays for a while; he kind of grunted and acknowledged that he would help ( well he won’t have a choice!)

Not sure what options will be available to me HRT wise, post surgery. I won’t have any ovaries, so will have to play it by ear as they say. I do have a stash of HRT at home, in case things get bad!

[Penguin]

Yes the autumn term is a killer for everyone, kids, staff and parents. Does he receive any support at school?

The house bunnies.. well DS is 15.5 and more than capable. I’ve told him I won’t be able to clean their room and litter trays for a while; he kind of grunted and acknowledged that he would help ( well he won’t have a choice!)

Not sure what options will be available to me HRT wise, post surgery. I won’t have any ovaries, so will have to play it by ear as they say. I do have a stash of HRT at home, in case things get bad!

Yeah his school is great, they will do anything and everything to help, and the senco is brilliant. We have some things in place in school, but we are still working out what's going on so we've seen Ed Psych, ENT, optician and next is Paediatric OT Assessment. School are just waiting to hear exactly what he needs now, we don't need an ECP I don't think (?). All private unfortunately as waiting lists are so long. But we've narrowed it down so hopefully the OT will be the final piece in the jigsaw.

Ah okay so you will have help, albeit gruntingly,  at home, that's good! Assume DS knows where freezer, hob and microwave are too 🤣

[Katherine]

Hi Nas

I think people don't tend to tell you that you can be put on a list in case of cancellations, but I've heard of people doing it. I think it would be worth it. I know of someone on an NHS list who was going to have to wait years or months but then an appointment came up the next day. So it would be worth doing, and have a bag packed ready or anything else you would need to do.

I like the idea of us all having a chop of the 'thing.' I would have a good go at it for you! xxx

[Nas]

Well Katherine,
Yes, it’s worth being added to the cancellation list for sure.

After my pre op on Monday, I will pack my bag ready! Haven’t got any loose fitting clothes at all.. so will have to sort that one!

Don’t worry, you can have a bash at “ the thing” once I’ve had first go! 

[SarahT]

Me next me next!😁

I would like to say I have been toning my arm muscles but that would be a complete lie. However brute angry force will be used by many of us whether it be sledgehammer or scythe.... You were totally right to make a leave of absence from work. You need to put yourself first physically and emotionally. Take the advice from those before to prepare as much as you can so once it's all over you have the much needed time to recover and heal. And get in a supply of chocolate along with actual healthy suff.

God house bunnies... My second family had many and I always had to stop  everything when they do that stupidly cute  thing where they are holding down their ears for a wash and brush up!  Xx

[Penguin]

Me next me next!😁

I would like to say I have been toning my arm muscles but that would be a complete lie. However brute angry force will be used by many of us whether it be sledgehammer or scythe.... You were totally right to make a leave of absence from work. You need to put yourself first physically and emotionally. Take the advice from those before to prepare as much as you can so once it's all over you have the much needed time to recover and heal. And get in a supply of chocolate along with actual healthy suff.

God house bunnies... My second family had many and I always had to stop  everything when they do that stupidly cute  thing where they are holding down their ears for a wash and brush up!  Xx

I am now off to Google that stupidly cute thing as I love stupidly cute things and I can't picture what you mean! Sometimes I do wish we could share pics on here!

[Nas]

Yep, my partner in hormonal mayhem, you can take a turn after me, then penguin, Suzy and Katherine.. plenty left for you all.. 

The house buns.. so cute, so destructive, so complex, but I love watching them groom each other, fight for the herbs at breakfast and snuggle to one another. They are 7 and 8 and are inseparable best friends 🐇🐇🐰 They also help me take my mind of the “ thing” which is good!

Partner, the period of work leave is definitely needed.. not feeling guilty one bit tonight. Chocolate at the ready, as are loveheart sweets ( for post surgery wind I’m told!) and peppermint teabags.
 
I do hope you are all okay. I know many of you continue to struggle with this hormonal crap, which has brought us all to this invaluable forum to begin with.

I was given a leaflet whilst at the hospital yesterday and one of the first sources of support re: meno and hrt/ hysterectomy, was MM. How great is that? 

Xx

[ElkWarning]

I came off HRT with no taper - catastrophically high BP. It was ok. I was expecting worse. I think it helped that I had the mirena, as I went cold turkey on the oestrogen first and had the mirena removed a short time later.

In terms of how you're going to manage, get signed off, or keep going until it's totally not possible. Speak to your boss. Ask for desk duty. As a teacher, I know plenty of TAs who switch to lighter duties. You can even request that you're deployed to low contact. I've done that for my TAs. You could also speak to your union.

Sounds pure awful, but at least you might have an end in sight.

[Nas]

I’ve been signed off Elk.
Desk duties? That’s a laugh isn’t it? Doesn’t exist at our place unfortunately. You hit the ground running at 100mph and don’t stop until home time.

Yep, pure awful. Pain, worry, surgery, rage ( no HRT now, else I bleed for days, womb is wrecked ).

Just got to hang on for a bit longer!

[Donna-paul]

Definitely peppermint tea is much needed are you having laparoscopic surgery or full surgery? Either one make sure you rest loads and don’t do anything at all. I had to stop hrt cold turkey when I saw my surgeon and he doesn’t want me back on it. It’s not been as bad as I thought I was on hrt 5.5 years so dreading been of it. When you brush with cancer you have to look at the bigger picture. You can do this and I hope you won’t be waiting long. I was originally told 6 weeks but they rang me following week for the op that week xx

[Nas]

Hey Donna-Paul
How are you doing?
Yes, this is my second encounter with C. How do you feel without the HRT now? I had to cave in today and gave myself a couple of sprays of lenzetto oestrogen spray. I’m so dry everywhere ( and I don’t just  mean down below!).

I’m having the full surgery, everything is going, not sure if the cut is hip to hip, or vertical.

Will get some peppermint tea and get my overnight bag from attic on Monday. Pre op is Monday! Xx

[Donna-paul]

I’m Okish I have a lot of health problems I’m waiting for my gallbladder to be removed. Having attacks all the time having bad one now😔 I had to have everything removed including ovaries and cervix. I’m 8 moths down the line and I think it’s only now hitting me and without hormones as well. I don’t want to be negitive as we have had no choice and I was lucky it hadn’t spread plus caught early. I hope it’s the same for you to x

[CLKD]

Late to this Nas.  All the best for the surgery and on going treatment    1 bit of advice, have nighties that button up, not pull over the head because the whole body may be stiff and sore after!  [it's quicker on Ward Rounds too]

Also, plenty of quick meals into the freezer B4 you go .........  I was advised after all my surgeries not to lift anything heavier than the kettle - so that meant I could continue with chocolate ;-).