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[Nas]

Okay suzy, will catch up tomorrow x

[suzysunday]

I just wanted to say that I hope you can make some progress today regarding a treatment plan.   The waiting and not knowing is really stressful..   Sending hugs and good wishes x

[Penguin]

Hope your appointment goes well today Nas, been thinking about you x

[SarahT]

Me too Nas 😍

[Nas]

Hi all
Quick update.
Had appointment with consultant today.

The fibroid is a soft tissue sarcoma within the womb.
No obvious sign of spread within the chest or abdomen.
Lung has fluid, which will be sampled soon.
All treatment to take place at The Christie Hospital, including the total hysterectomy.

Don't feel too bad, now I know what is what.

So there we are. Ladies, if you have any post meno bleeding/aches/pains, that is not usual for you, don;t hesitate to get it checked out.

I would not have been referred onto the two week cancer pathway, if I had not reported three separate episodes of bleeding to my GP. I could have easily left it and put it down to the HRT. Normal gynae wait where I am, is around 50 weeks!

xxx

[Nas]

I just wanted to say that I hope you can make some progress today regarding a treatment plan.   The waiting and not knowing is really stressful..   Sending hugs and good wishes x

Thanks Suzy,
I have dropped you a message 

[SarahT]

Hey you,

You kind if expected this I guess. Good you feel a bit more in control knowing what you are dealing with. You were so right to keep on at your gp and fighting when you were certain something was very wrong. You know everyone on here are all rooting for you.
I will have a mega size bar of chocolate for you when you are up for it.

Rest when you can partner xx

[Penguin]

Oh I'm so glad there is no sign of spread. And that you don't feel so bad now you know what you’re dealing with. So good you kept on pushing to find out what it was. I still don't understand why you weren't put on the 2WW pathway given all the pain you had though. Rosie on another thread had the same with it taking months and months to diagnose, in her case she was still classed as peri despite being on hrt for years and them not actually knowing if she was or wasn't. Goes to show we have to push and not take no for an answer if we feel something isn't right. I'm so glad you did.

How long til the op? We're talking weeks not months right? X

[ToriiJ]

Hi all
Quick update.
Had appointment with consultant today.

The fibroid is a soft tissue sarcoma within the womb.
No obvious sign of spread within the chest or abdomen.
Lung has fluid, which will be sampled soon.
All treatment to take place at The Christie Hospital, including the total hysterectomy.

Don't feel too bad, now I know what is what.

So there we are. Ladies, if you have any post meno bleeding/aches/pains, that is not usual for you, don;t hesitate to get it checked out.

I would not have been referred onto the two week cancer pathway, if I had not reported three separate episodes of bleeding to my GP. I could have easily left it and put it down to the HRT. Normal gynae wait where I am, is around 50 weeks!

xxx

Hi Nas
I’m glad you don’t feel too bad now and you know what you are facing. That’s good there is so sign of spread.

Been thinking of you and now you are on the pathway to recovery xx

[Nas]

Hi penguin,
Yes weeks rather than months.
It’s growing too fast for months, so they are aiming for 3 weeks time (I think).

 I knew things weren’t right, from back in May. GP diagnosed IBS, diverticulitis, gasto problems etc. He refused to accept a fibroid could cause such havoc.

Sarah, the chocolate will be much appreciated 🍫🍫🍫 thank you. Hope you are okay?

Torii, Thankyou for your good wishes. As you say, the road to recovery starts here 💪🙏🤞 x

[Penguin]

Ohh 3 weeks sounds good! Hopefully done and dusted and healed sufficiently in time to enjoy cjristmas x

[Nas]

That’s the aim penguin 🤞 x

[Songbird]

Oh Nas, I have also been thinking of you. So glad that there is no evidence of spread and that a plan is in place to get you to a good place. Sending you lots of 

[Dotty]

Hi Nas I’ve followed your story for a long time and you gave me encouragement when things were tough for me. I’m so sorry that it’s taken you so long to find out what’s wrong and send you best wishes for the next few weeks and months xx

[Ana21]

Nas,

So good to hear it's contained and you'll be fast-tracked for surgery.  You may recall that I've been dealing with unscheduled bleeding for years and my old meno specialist was entirely blase about it.  From time of referral, it took 18 months for me to see another specialist.  My new doctor has switched me to sequential transdermal to see if we can control the bleeding while investigating adenomyosis as a potential cause. 

A friend on systemic MHT experienced an unexpected bleed and tests revealed it was endometrial cancer.  She couldn't believe it.  She's so healthy and felt perfectly fine at the time with no pain or other symptoms.  She was very lucky and received a diagnosis and hysterectomy within a month.  The cancer was contained and she hasn't had a recurrence.  Prepandemic.  She didn't have to deal with the long wait times that some of us are still experiencing.

I'm glad you finally know what you're dealing with.  Keep us posted on the lung fluid sampling.  I hope that issue doesn't delay surgery.  Fluid in the lungs and general anaesthesia don't sound like a good mix.  Wishing you all the best!