Please login or register.

Login with username, password and session length
Advanced search  

News:

Menopause Matters magazine ISSUE 81 out now. (Autumn issue, September 2025)

media

Pages: 1 [2] 3

Author Topic: Mirena decision  (Read 4666 times)

Wrensong

  • Member
  • *
  • Posts: 2232
Re: Mirena decision
« Reply #15 on: August 03, 2023, 07:37:29 PM »

Thankfully none any more, Katherine.  I've had hysterectomy.  It was either that or stop HRT & I had other reasons for the hysterectomy as well as progesterone intolerance.

I found dydrogesterone (in the Femoston range) the only just about tolerable progestogen, but it still felt dangerously wrong for me.  I had 4 trials of Utrogestan with different doses of oestrogen & tried it vaginally too, but it messed with my thyroid condition, making me very unwell every cycle & repeatedly destabilising everything.  Tried all the other progestogens inc MPA/Provera, Norethisterone (orally & transdermally), Levonorgestrel & the controversial compounded, over a total of 6 years & a long cycle, minimal prog regimen, but that wasn't sustainable long term & the reaction just got worse.  The thyroid condition makes me unusual though, so please don't think my experience means you'll be the same.
Wx

Logged

Katherine

  • Member
  • *
  • Posts: 671
Re: Mirena decision
« Reply #16 on: August 03, 2023, 07:53:45 PM »

Thank you so much for sharing that Wrensong, you’re so kind and I’m sorry you went through all that. I’ve only tried utrogestan and thought it would be the best with it being body identical. I’m trying it vaginally for the first time this evening, I’m going to try and find a suitable applicator tomorrow. Xxx
Logged

meno-mel

  • Member
  • *
  • Posts: 176
  • No ovarian function & I bleed cyclically on conti!
Re: Mirena decision
« Reply #17 on: August 04, 2023, 06:56:56 AM »

Hi ladies

I've recently asked for a Mirena due to long standing issues with utrogestan, but the more information I find on Mirena the more worried I get. I just read that it contains silica and barium(!) and that the risk of breast cancer is not known. Also in Meno-Mel's recent post I see it can become embedded in the womb and this can result in a long wait to have it removed. I did look into taking Utrogestan vaginally but I found a reputable document (I forget where) which said there is no evidence that the utrogestan reaches the place where it is needed via this route. I am starting to think it might be better to just try and withdraw gradually from HRT. It is such a shame because I find oestrogel really good. I would welcome any thoughts that might help me decide whether to go ahead or not as I am so confused.
Hi Katherine, it is actually Ermin2trude who is waiting for removal, I had one years ago that they refused to remove at the 2 month review, so I had it in for maybe 3 years before I found the threads and pulled very hard, just on an impulse really, out it popped and won't be getting another!
The depressing side effect lessened after the 2 month mark, but it was still too strong to want to live with simply to stop my heavy bleeding.
About the vaginal utrogestan, I can say that I actually, pause to see if I dare say this, but I quite like the effects from taking utrogestan 200mg vaginally (except the mild skin irritation). It's not that I feel nothing, I feel it systemically, only just, unlike other progesterones it's very much in the background, but it isn't depressing at all and any oral progesterone/mirena has always made me depressed. My husband saw this so clearly he had a vasectomy 20 years ago, we had completed our family and he didn't think it was fair for me to take 20 years of the hormones that affected me badly instead of him having a one off operation. I love this man for stuff like that, y'know.
I think they mean young women should only have the coil for contraception after the first child, I was offered it then but refused because I didn't know how it would affect breastfeeding, I enjoyed having more milk than a cow, didn't want to change that!
The cervix is loosened by childbirth, otherwise they can't get in. That would apply to anyone who'd had a caesarean too though. I expect by our age it'd be ok.
Well done on being brave enough to cancel, we should never be railroaded into these things if we aren't sure.

Edit, I've just remembered, instead of removing the mirena when I asked, they put me on antidepressants which I took for the three years, then I stopped them a while after I pulled the thing out.

I asked the doctor how it worked before I had it fitted and she said it was just purely the presence of this foreign object that made the body effect the resulting changes. I asked repeatedly if any other mechanism was at work because I couldn't see how that would work, but she kept saying the same thing, it just sits there doing nothing at all, the body reacts in a certain way to it's presence and that is all.
 
After it was fitted (early days of the internet, I hadn't the info to hand back then), she handed me a leaflet to take home. It told a different story. The leaflet was the first indication that this thing had chemicals in it and it doesn't just sit idle at all, it was releasing these progestogens into me as I was reading in horror, knowing full well I had been basically tricked, but really I was just treated as a mindless body, a vet doesn't bother explaining to the animals, some doctors are too much like that with women as well. I had told her I didn't tolerate progesterone, so she didn't mention it's presence. I was both furious and strangely hurt that she dismissed my concerns, perhaps thinking if I didn't know then I wouldn't get the bogus reaction I think of as progesterone intolerance? All because she wasn't a believer in progesterone intolerance herself.
« Last Edit: August 04, 2023, 07:38:07 AM by meno-mel »
Logged

Katherine

  • Member
  • *
  • Posts: 671
Re: Mirena decision
« Reply #18 on: August 04, 2023, 08:13:25 AM »

Hi meno-Mel,

Apologies for that, yes I remember now it was Ermin2trude. Thanks you so much for writing such a detailed post and I’m so sorry you went through that. I am really shocked that you asked for mirena to be removed and it wasn’t and also that you weren’t told the truth about the hormones in it. Some people should not be in the medical profession. It’s good that you could pull it out yourself.

I took utrogestan for the first time last night and I didn’t get my usual negative side effects and I actually found it quite moisturising. I just hope enough got to my womb, but I am going to just check back with my gp about this. I will go to the chemist today and see if they sell any suitable applicators.

Thanks for explaining everything, I see now why they mention having children before the coil. What an understanding husband you have, bless him.

I’m definitely not excusing any medic who withholds information, it is wrong, but I think they sometimes do it because they don’t want to frighten you and if they are positive and encouraging then that can make the patient feel the same. However I’m with you, I would rather have all the facts and make my own informed decision and they have to remember it is our body not theirs!

I’m going to continue with the vaginal utrogestan for now and see how I go. I also take a vaginal estradiol tab twice a week so I wonder if they can both be inserted on the same night. I will have to ask my gp.

Thanks again for all the info, and support, I really appreciate it. Xxx
Logged

Nas

  • Member
  • *
  • Posts: 2306
Re: Mirena decision
« Reply #19 on: August 04, 2023, 08:36:52 AM »

Just to say that the mirena can work very well for many women, but probably not if you are progesterone intolerant, due to not being able to quickly remove it if necessary.

I think much more information needs to be put out there re: the coil, because it is in danger of being labelled a real “ demon device” when in truth, it’s just one of many hormonal devices, which women either tolerate or do not. 

The nurse who fitted mine was great. We sat for ages discussing it, looking at it, I touched it. Then within 5 mins it was in. I took her phone number and left.

Anyway, i totally get the whole progesterone intolerance thing
and maybe Davina and the gang need to highlight this during their next tv broadcast? It’s a real issue for many and I wonder how many women, simply quit HRT, purely because the progesterone makes them feel so unwell? Maybe that alone, is a contributing factor to the low stats?

Oh women’s health needs a massive shake up! Maybe it will be better for the next generation?

Wonder why there aren’t slow release progesterone patches?

Good luck Katherine, i hope you can find a solution in all of this. It’s tough, trial and error all the way.
« Last Edit: August 04, 2023, 08:43:05 AM by Nas »
Logged

discogirl

  • Member
  • *
  • Posts: 1583
Re: Mirena decision
« Reply #20 on: August 04, 2023, 08:37:04 AM »

Hi Katherine,

I've been reading your posts with interest. I couldn't tolerate utrogestan at all, not even vaginally.

I not take cyclogest 100mg (200mg cut in half) every day rectally. And although I do still get slight anxiety it's nowhere near as bad as when on utrogestan. They're both micronised progesterone, so it maybe the delivery method.

I wondered had you considered cyclogest at all?
Logged

Wrensong

  • Member
  • *
  • Posts: 2232
Re: Mirena decision
« Reply #21 on: August 04, 2023, 08:40:03 AM »

That sounds promising Katherine.  I hope it proves to be the solution for you.  You could try inserting Vagifem in the morning if you're worried about using the two together at night.  Maybe after an early loo visit if that's your habit, to avoid the possibility that the muscular activity involved could expel the Vagifem.
Wx
Logged

Katherine

  • Member
  • *
  • Posts: 671
Re: Mirena decision
« Reply #22 on: August 04, 2023, 10:53:07 AM »

Just to say that the mirena can work very well for many women, but probably not if you are progesterone intolerant, due to not being able to quickly remove it if necessary.

I think much more information needs to be put out there re: the coil, because it is in danger of being labelled a real “ demon device” when in truth, it’s just one of many hormonal devices, which women either tolerate or do not. 

The nurse who fitted mine was great. We sat for ages discussing it, looking at it, I touched it. Then within 5 mins it was in. I took her phone number and left.

Anyway, i totally get the whole progesterone intolerance thing
and maybe Davina and the gang need to highlight this during their next tv broadcast? It’s a real issue for many and I wonder how many women, simply quit HRT, purely because the progesterone makes them feel so unwell? Maybe that alone, is a contributing factor to the low stats?

Oh women’s health needs a massive shake up! Maybe it will be better for the next generation?

Wonder why there aren’t slow release progesterone patches?

Good luck Katherine, i hope you can find a solution in all of this. It’s tough, trial and error all the way.

Hi Nas

Thanks for replying. I don't think anyone necessarily sees the Mirena as an inherently bad product, I think it's more a case of being careful, informed and gps being open about possible negative effects. Also being able to get it removed quickly should be guaranteed if it is causing major issues. I know a lot of women who swear by it but for others it's a nightmare. Also there's very mixed info online so it's very hard to make a decision. So I'm very grateful to all on here who have shared and helped me make an informed decision. Anyway thanks so much for your good wishes Nas, they are much appreciated. xxx
Logged

Katherine

  • Member
  • *
  • Posts: 671
Re: Mirena decision
« Reply #23 on: August 04, 2023, 10:57:53 AM »

Hi Katherine,

I've been reading your posts with interest. I couldn't tolerate utrogestan at all, not even vaginally.

I not take cyclogest 100mg (200mg cut in half) every day rectally. And although I do still get slight anxiety it's nowhere near as bad as when on utrogestan. They're both micronised progesterone, so it maybe the delivery method.

I wondered had you considered cyclogest at all?

Hi Disco,

Thanks for replying. I took Utrogestan vaginally for the first time last night and so far so good. I just need to find a good applicator now for it. I haven't tried cyclogest but will definitely consider it if I have issues with taking utrogestan vaginally going forward. Thanks for your help and I hope you're doing ok xxx
Logged

Katherine

  • Member
  • *
  • Posts: 671
Re: Mirena decision
« Reply #24 on: August 04, 2023, 11:00:46 AM »

That sounds promising Katherine.  I hope it proves to be the solution for you.  You could try inserting Vagifem in the morning if you're worried about using the two together at night.  Maybe after an early loo visit if that's your habit, to avoid the possibility that the muscular activity involved could expel the Vagifem.
Wx

Hi Wrensong,

Thank you. I am feeling very encouraged by my experience with taking utrogestan vaginally so far. Good idea about taking the Vagifem in the morning, I will do that. xxx
Logged

discogirl

  • Member
  • *
  • Posts: 1583
Re: Mirena decision
« Reply #25 on: August 04, 2023, 01:38:09 PM »

Hi Katherine,

I've been reading your posts with interest. I couldn't tolerate utrogestan at all, not even vaginally.

I not take cyclogest 100mg (200mg cut in half) every day rectally. And although I do still get slight anxiety it's nowhere near as bad as when on utrogestan. They're both micronised progesterone, so it maybe the delivery method.

I wondered had you considered cyclogest at all?

Hi Disco,

Thanks for replying. I took Utrogestan vaginally for the first time last night and so far so good. I just need to find a good applicator now for it. I haven't tried cyclogest but will definitely consider it if I have issues with taking utrogestan vaginally going forward. Thanks for your help and I hope you're doing ok xxx

Hi Katherine,

I'm pleased utro vaginally works for you, it seems to with a lot of women.

Keep going xxx
Logged

Katherine

  • Member
  • *
  • Posts: 671
Re: Mirena decision
« Reply #26 on: August 04, 2023, 02:19:03 PM »

Thanks Disco. I just asked in Boots for an applicator to use for it but they wouldn’t help with it being off license. Can you recommend an applicator from the internet or anything?xxx
Logged

discogirl

  • Member
  • *
  • Posts: 1583
Re: Mirena decision
« Reply #27 on: August 04, 2023, 03:45:07 PM »

Hi Katherine,

When I used the utrogestan vaginally I bought some applicators off amazon.

But (and sorry if too much information!!) I just used to lie down and with my finger tried to shove it up as far as it would go and I would try and sit (or lie down) for 15minutes after. I did find this online regarding vaginal application but it is information for fertility purposes:

"Utrogestan is normally absorbed within minutes of insertion, however, it is advised that you wait 15 minutes before showering and 30 minutes before having sexual intercourse or swimming"

That is from Besins healthcare, however it is for women using the utro vaginally for fertility purposes but it obviously will still apply to women using it vaginally for hrt purposes. I used to get so stressed in case it hadn't absorbed, but from Besins own website it seems to absorb in minutes

I hope this helps and good luck xxx
Logged

Katherine

  • Member
  • *
  • Posts: 671
Re: Mirena decision
« Reply #28 on: August 04, 2023, 04:45:46 PM »

Hi Disco,

Thank you so much, that really has reassured me, you've made my day actually! Dont worry about tmi, nothing is tmi for me if it helps. I'm going to try and find an applicator on Amazon as I think that would make it easier.

I asked a second pharmacist today in a different shop about vaginal utrogestan and she said someone once went in with a prescription for vaginal utrogestan from their GP. I guess it was for fertility. I wonder if it's exactly the same tablets or if they are modified for vaginal use? I suspect not as they are soft and squishy and I can imagine them dissolving quick.

She was really helpful, she couldn't reassure me with it being off license but she was lovely and understanding. Anyway I'm reassured now thanks to you. I took mine last night just before I went to sleep so that I knew I would be horizontal a few hours! It's early days but hopefully I can stay with this method. Thanks again xxx
Logged

discogirl

  • Member
  • *
  • Posts: 1583
Re: Mirena decision
« Reply #29 on: August 04, 2023, 04:48:58 PM »

The applicator I got from amazon, was just a sort of plastic thingy, I couldn't actually find one that the capsule fitted in, but I shoved the capsule up with my finger as far as it would go and then shoved the plastic thingy up to move it up even higher, but I never had any issues about it coming out and the statement from Besins put my mind at rest as well.

Here's the link in case you want to check it out for yourself xxx

https://besins-healthcare.com.au/wp-content/uploads/2022/02/BH5884-Utrogestan-LPS-Patient-booklets-conversion-from-DL-to-A4-for-website_V1.pdf

Have a read as it goes into detail about insertion etc. just remember it is for fertility use.

Come back to me if the link doesn't work xxx
Logged
Pages: 1 [2] 3