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Author Topic: What to do (again!)  (Read 3808 times)

Nas

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What to do (again!)
« on: July 21, 2022, 11:24:23 AM »

Hi all
Well, I’ve had his Mirena for 8 weeks now and been on the Evorel 75 patch for best part of two years.

Of late I’ve been feeling ‘ off’. Irritable, anxious, lack of interest in things etc etc. I’ve had a blood test today to check Oestrogen and will request results next week.

Still don’t know whether the Mirena is for me or not. Was planning to give it 3 months, then, decide.

Not sure now, whether to have a go at increasing oestrogen now, or leave it until Oestrogen levels are back.

I’ve never felt amazing on HRT, more ‘ okay’.

Maybe I’m tired ( busy school term) but definitely feel overwhelmed with life and all the things I’ve got to do this holiday!  :-\
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CLKD

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Re: What to do (again!)
« Reply #1 on: July 21, 2022, 11:32:05 AM »

HRT isn't a cure.  One sometimes needs to work round symptoms on a daily basis.  8 weeks isn't long enough ....... hormones don't usually get where they are in a hurry so it stands to reason that it will take the body a while to uptake any extra.

MayB make a list each evening of 'necessities' and 1 of 'what' has to be done .  Ticking off in the day helped me enormously in that I could see what I had achieved, rather than beating myself up about what I hadn't done!!!! I also learnt not to say 'yes' to anyone.  "I'll check our calendar B4 committing" by which time, 'they' had found someone to help anyway ;-).  I do less and less for others.  Even the neighbours ;-).

Little steps.  Blood tests are reliably unreliable.  My Gynae refuses to do them, relying on symptoms.  I may have asked: do u keep a mood/food/symptom dairy?  Diary even  ::)
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joziel

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Re: What to do (again!)
« Reply #2 on: July 21, 2022, 11:40:42 AM »

I think give the Mirena at least till 6 months before you assess things there. That will give it time to stabilise.

I don't think you need to wait for blood results back before increasing estrogen if you want to give that a go. Just because the advice is to treat to symptoms, not blood results. Some women need quite a high blood level, like 800, to feel good. Others feel good at 250. The BMS advise increasing to treat remaining symptoms. If remaining symptoms don't go after you increase, they advise reducing back again.
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Nas

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Re: What to do (again!)
« Reply #3 on: July 21, 2022, 11:59:24 AM »

Good advice joziel, thanks.
Will give myself a small increase ( going to have to be a blob of gel ) as running out of patches now and see how that goes.

Yes, six months is probably about right to give the Mirena time to settle.
That’s the thing, I don’t know whether the Mirena is causing these feelings , or lack of Oestrogen.

CL, I live by lists.. i will break the big list down I think, into smaller lists and see where I get to.

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CLKD

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Re: What to do (again!)
« Reply #4 on: July 21, 2022, 12:01:08 PM »

Any chore that I hadn't done would go onto the next day's list ;-)
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joziel

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Re: What to do (again!)
« Reply #5 on: July 21, 2022, 12:36:42 PM »

I don’t know whether the Mirena is causing these feelings , or lack of Oestrogen.


Confusingly, it could be both  ;D  Or - it could be the Mirena, but a little extra estrogen off-sets it...

This s**t is complex with many variables. We are pioneering biohackers. In 200 years time, there will be some superlative knowledge on it all. Or we'll all be getting slices of our ovaries frozen age 25 to be restored to us age 40, thereby preventing menopause entirely  ;D ;D ;D
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ATB

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Re: What to do (again!)
« Reply #6 on: July 21, 2022, 12:39:31 PM »

Oh hey Nas, sorry to hear you still don’t feel great. I would offer the same advice as Joziel, my estrogen blood tests show quite a high result, I’m on 50 now, so I think in my experience that the advice focusing on symptoms seems to be right and certainly my doctor at Newson thinks so, I was worried at how high my oestrogen was but she wasn’t at all. I really feel for you and all you’ve got to deal with while also maintaining a high stress busy job. Sending you a big hug xx
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joziel

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Re: What to do (again!)
« Reply #7 on: July 21, 2022, 01:41:37 PM »

What is your estrogen on a 50 patch ATB?

Are you peri and do you think your own ovaries are contributing some of that?
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ATB

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Re: What to do (again!)
« Reply #8 on: July 21, 2022, 02:00:36 PM »

I’d have to do a more recent one I think, the last one was too close to when I was on the 75 patch- which had it something like 1600-1700? Before HRT it was 110. But that was taken during a peak estrogen time according to my doctor. She actually wasn’t really interested in the estrogen result, it was for my testosterone. I’m sure my ovaries contribute something, but it was so low before I doubt it’s much? I was consistently around 110-140 for 6 years. I do worry about my bones actually, what damage that did for that amount of years.
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joziel

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Re: What to do (again!)
« Reply #9 on: July 21, 2022, 03:14:11 PM »

Well I'm sure mine was that low too, for even longer, because that's where the estrogen-suppressing desogestrel kept it  :(  Heck, it's probably been low my entire life except for the 5 years I came off the POP. I keep thinking I should get a dexa scan but then I get terrified. I mean, if it comes back worrying, what am I going to do, I can't increase my estrogen and I'm doing everything else I'm supposed to be doing anyway... it will just be another thing to worry about.

So when you were 110-140, that was before starting any HRT?

How long after the 75 patch was it done? I think estrogen leaves the body pretty quickly, like within 24hrs...
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ATB

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Re: What to do (again!)
« Reply #10 on: July 21, 2022, 03:18:16 PM »

Oh I’ve had so many tests I would have to go look. I didn’t realise it leaves the body so quickly! Yes the low scores were before HRT.
Oh I know what you mean about the DEXA scan. I’m just not into more tests right now! I’ve not been offered one and I can’t afford to do it myself so I do my best to live as healthily as I can now & that’s all we can do. I really wish I could keep up with my aim to skip every day!
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joziel

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Re: What to do (again!)
« Reply #11 on: July 21, 2022, 03:39:13 PM »

Very funny you should say that - I've just ordered a skipping rope and followed some Instagram-mers who are into teaching skipping steps. My plan is to skip for 5-10mins every day.  ;D
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Nas

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Re: What to do (again!)
« Reply #12 on: July 22, 2022, 07:20:18 AM »

Thanks all
 I seriously think we should all be doing a PhD in the menopause, as collectively our wealth of knowledge and information is vast!

My two choices are, switch to gel or increase the patches. I have a box of 50’s, so maybe x 2 on the bum, or a couple of sachets of sandrena.

Will ponder today. Got to be quick though, as once the o falls too low , the horrendous bladder issue returns . No thanks!

 :)
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ElkWarning

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Re: What to do (again!)
« Reply #13 on: July 22, 2022, 08:58:12 AM »

Can't really say anything about the HRT, but it does sound as if you're on the right path ...

Re: general emotional state, ye gods, it's been a shitshow in school this year, everyone is saying the worst ever.  I finished on Wednesday, but for the whole of this week I've been biting my husband's head off.  To be honest, I've been quite a cow for the last month or so.  I completely broke down yesterday, have no idea what to do with myself for the next six weeks, it's like looking into a black hole.  I'm almost scared to 'fail' the summer holidays because I know that, once we get back in September, it's going to be another horrendous rollercoaster ride with no let up.

^^ And so big congratulations for surviving this year.  Basically, anyone who works in a school, the NHS or Social Services deserves a bloody medal for what we've been through.  We tend not to talk about it, because we can't, but if I had to offer an overview, I'd say that it's felt like those two days of the heatwave, except every day, for over 10 months.  It's been brutal.  Many of the kids are feral and the staff are completely exhausted.  You did great, Nas, to make it this far.  Big hugs.
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joziel

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Re: What to do (again!)
« Reply #14 on: July 22, 2022, 09:13:51 AM »

Nas, if you're on the patches now and have been stable on Evorel 75 for 2 years, I would stick with the patches if you want to increase. Changing both the type and the dose is going to create complications because you won't know if you just don't get on with the particular type or if it's the dose or if it's differences in the way your body absorbs them.

So go to 100 patches, 2x 50s. Not sure about sticking them on the bum though.  ;D Is that where you currently put them? I think mine would come off, the amount of sitting on my bum I do...

Elk, you're right, anyone working in any of those contexts needs a medal... well done and enjoy the summer break!
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