Print

Please login or register.
1 Hour 1 Day 1 Week 1 Month Forever
Login with username, password and session length

[Nas]

I simply do not know what to do right now. Been on femeston conti 1mg for almost 12 weeks and have been steadily going downhill. Today I feel rough!! Bladder, tiredness, irritability, tearful etc etc. 

Tried increasing to 1.5/2mg disaster!

I’m waiting for a review with Liverpool women’s hospital. However, I do have a phone appointment with Chelsea and Westminster next week ( as I WAS under them to begin with)

The temptation is to revert back to my patch and face the bleeding until I can speak to Chelsea to hopefully prescribe a different progesterone which controls bleeding better than
utrogestan.

It it’s never ending 🤦‍♀️

[sweettooth]

Hi Nas so sorry to hear you are feeling so bad!  What happened when u increased?  Sounds as though 75 patch was your sweet spot. Sorry may have asked b4 but could you try the mirena for now? X

[sheila99]

 
Sorry things are getting worse. I hope they come up with something suitable. In the meantime would it be an option to use a cut down patch alongside the femesron so you get more oestrogen but are still getting some prog?

[Nas]

I could Sheila, yes.
I have some 50 dose patches, which I have dug out. I’m tempted to cut one in half and stick that, I don’t know!

It’s either that or slap on the 75 and face the music re: bleeding.

Sweet, yes the coil is looking likely at this rate, as bleeding didn’t settle at all in over 15 months whilst on the patch, yet it balanced me.

The increase in femeston was too much for my body. I was jittery and even more grumpy and irritable.

Now I’m worried the 75 won’t work either and I will be stuck forever!

How are you anyway sweet? Any improvements yet?

Xx

[Kathleen]

Hello ladies.

I was all set to post a rant about my situation today and then I saw this heading and thought ' that just about covers it lol. '

I am reducing my Sandrena gel sachets at the moment and today my anxiety is through the roof!
I am also very tearful and my mood is low. These are the symptoms that can be caused by too much Oestrogen apparently which is why I am titrating down. The tearfulness is awful but it's the internal shaking feeling that I really struggle with. I feel scared and on edge all the time, it's horrendous and it was the final straw that led my to HRT years ago.

Any advice ladies?  I feel so stuck and don't know what to do for the best.


Nas - we are trying different things but both feeling rough. I have posted before about my experiences with Evorel 75 mcg patch and, like you, it caused some bleeding but was beneficial in other ways. It was a long time ago for me but I would be willing to try it again.

Take care ladies and hugs to you all.

K.

[Nas]

Kathleen, I had the internal shaking at 5am this morning. That just about the straw that broke the camels back and tells me that this crappy journey us going to last for bloody ever! 😬😬😬

I’ve given myself a spray of lenzetto and will continue for a few days to see if it shifts the bladder problem. It’s 75 patch again!

I don’t know what that answer is Kathleen. It’s a total minefield. That only thing I can suggest is to do a complete reset. Come off everything and start low and slow again, so your receptors don’t become flooded too quickly.

When is your next HRT review?

X

[Kathleen]

Hello again Nas.

I completely sympathise with you Nas. My shaking started soon after I woke up and has been on and off all day, along with the crying which in part is me feeling sorry for myself and worrying  about my future.

My next Newson Health review is not until June but our surgery now has a menopause nurse so I will see if I can get an appointment with her.

I actually came off all HRT in 2019 and various symptoms came back including hot flushes, night sweats and the beginnings of  VA. The reason I tried HRT again was because the crying episodes also returned and of course the jitters ramped up. I
Eventually I had a phone consultation with a consultant at my local hospital and he told me that 'Less is more' but a week later I had an appointment with NH and Dr Boden prescribed unopposed Oestrogen for two months and she favoured high doses of Oestrogen. . I have stayed with NH since but now I wonder if that was wise.

Although we are both having problems I recognise that our situations are not identical. The fact that you have  bladder problems indicates that your levels are too low whereas physically I feel okay so my HRT is likely controlling them, leaving me with the emotional symptoms such as internal shaking.  To have both must be horrible and I feel so sorry for you.

I spoke to a friend yesterday who is doing well on one pump of Oestrogel and she suggested that time of application may be a factor for example use your spray at night instead of morning. Is that something you have tried?

There are many women on this forum who share our story and I have been here long enough to see others come and go. They too have had our range of  problems but either they found the answer and haven't returned or are now suffering in silence.

Sorry to ramble on and I hope your plan of an extra spray of Lenzetto is helpful to you. Everything and anything is worth a try.

Wishing you well and sending hugs across the Internet.

K.

[Nas]

Hi Katheen,
I would certainly try and arrange an appointment with the menopause nurse at your surgery; June is still a fair way off..
I just don't know what to think about NH if I am honest. The more I read, the more I wonder if they are helping or hindering women. Obviously they are authorising the higher oestrogen doses, whereas a GP wouldn't be able to. But for how long can the oestrogen receptors carry on being flooded with hormones, before the oestrogen becomes ineffective?? Different 'specialists' have different opinions on how much O women actually need it seems. My 'specialist' (like the chap at your local hospital) believes that women only need a low dose to keep things ticking and that the higher doses inevitably lead to other problems later on. But at the end of the day, we women are unique with this hell and it isn't one size fits all.

It will be interetsing to hear what the nurse tells you when you speak to her? It must be so frustrating that your emotional symptoms are being so persistent and I honestly thought HRT would even those out for you, particuarly the sandrena which is decent quality stuff I have read. You can't come off HRT right now I don't think, that would send your body into a complete shock! Rather, try and get an appt with this nurse and see what her take is on your situation. I know when I mentioned the emotional stuff to my MS, the repsonse was pretty much "HRT doesn't necessarily fix all symptoms" Well I am beginning to think she was right!

It is very sad to think that some women may suffer in silence with this and I hope not too many. Alas, I fear to try and fathom the correct combination, is nigh on impossible! But as you say Kathleen, anything and everything is worth a try. Your friend may be right, timings could be key and I will certainly experiment with them re this spray of lenzetto. I feel like I am walking on egg shells right now; trying to feel well whilst avoiding the dreaded bleeding which makes the VA 10 times as horrid.


Today has been hard, I could feel the brain fog come over me at work, trying hard to keep afloat. Was so exhausted when I got home!

I have rambled and written an essy lol...

REALLY hope you feel better in the coming days Kathleen..
Take care 

[sweettooth]

Nas I’m so sorry that you weren’t able to tolerate the increase.  This is just my opinion but I would rather try the mirena and go back to 75 patch that you feel good on! Anything that affects us Mentally and that trembling thing is horrific to deal with.  You will find an answer❤️
I dipped to an all time  low yesterday and then off it went and I then had a good evening and a good day today🤞🤞Covid fatigue has eased.
  Since vaccine though I can have good spells and then it can flip🤷‍♀️ I put on a 25mcg patch beginning of week as I was struggling badly so unless it’s helping too on top of my high immunity supplements🤷‍♀️

Kathleen it may be withdrawal causing your horrid symptoms? Are you doing it extremely slowly?  I decreased too quickly earlier this year and the results were critical really critical.  Have you had a thorough blood check done? I used Medichecks recently and would highly recommend them xx

[Marchlove]

Ladies, my heart goes out to you all as I’ve been there.
Post menopause for sure the lower the dose of estrogen the better, but at the same time progesterone dose has to lower as well.
So, so difficult to achieve and a journey I’ve been on for awhile.
But, it has/is getting better.
Personal experience only, but that is the best thing I can offer to you all tonight x

[Floo36]

Morning ladies,  it is vary hard to navigate.  I have awful debilitating symptoms including the shakes, vibrations, jumpy on edge, nervous, panic  etc and can 100% say mine is down to low Estrogen, I have all the other symptoms too.  I used to think it’s too much Estrogen but it isn’t for me.  The only bit of relief I get from the shakes, jitters, anxiety etc is when I’m having an upward fluctuation, and I mentally feel normal but unfortunately it doesn’t last and it’s more frequent the closer I get to meno, I’m 54.  I have had times over the last 3 years from hell that my Estrogen was too high at times (not from HRT), I felt great in mood, happy, skin and hair was great, everything was great but an awful crazy libido, it wasn’t pleasant and would not want that ongoing ever again so I’d know if I was getting too much.  We are all so different how we are affected.

I’m still trying to get well and not sure I will ever get there.

Best wishes all.

[Marchlove]

You may well be right Floo36, but I was coming from a very much post menopause perspective, so this may be where the difference lies. x

[Sazzle42115]

Hey Nas
I'm still with you on this one. It's never ends. I've now ei

Withdrawn from the awful mirtazphine and started Citalopram my mental health is at crisis point with insomnia and anxiety the AD meds have made me feel awful suicidal even
 Thought I was going to be sectioned last week I went manic. Dr still saying need to get hormones up and as not absorbing implant in my next option. Some of term I'm getting worse XXX

[sheila99]

Sazzle your doctor may be right. My anxiety and insomnia were due solely to oestrogen deficiency and went after 3 months on HRT. It won't cure longstanding mental health issues but oestrogen deficiency could well be making you worse.

[Kathleen]

Hello again ladies.

I am sorry that you are all suffering similar problems.

I felt particularly bad yesterday afternoon but in the evening I started to feel more normal. Goodness knows what today will bring, especially as I am supposed to be going out to lunch.  I will either avoid the wine or drink a whole bottle. It could go either way lol.

Nas - thanks again for your kind comments. I will definitely be contacting my surgery and asking for an appointment with the menopause nurse.

Sazzle42115 - the implant might be the right thing for you. The NHS consultant I spoke to about eighteen months ago said he treated  many ladies with the implant and it worked very well. I managed to get an appointment with Newson Health shortly after I spoke to him and I remain a patient of theirs. I am however following some other advice that he gave me as I was impressed with his knowledge and experience. 


Floo36 - are you post meno? The experiences you describe mirror my own but I have been post meno for a long time. I began to feel as you do about two years after my last period so definitely low Oestrogen. The emotional symptoms have  persisted while on  HRT though others are well controlled. I am now wondering if the added Oestrogen is contributing to the severity of the mood changes and that perhaps a lower dose along with my already small amount of progesterone will be more stabilising.

Marchlove - as I am very post meno and experimenting with lower doses but like you I realise that other ladies  will have their own hormones in the background.

Sending hugs and best wishes to everyone here.

K.