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[Nas]

I can't cope any longer.
I have started bleeding AGAIN, two weeks since the last one.
I don't know what is causing it.
I feel ill and miserable.

The £350 scan is going to have to include a consultation of £195.

Back to work tomorrow and I haven't the will to start chasing the NHS to find out when my appointment is likely to be.

Just don't know what to do.

[Mary G]

Sorry to hear that Nas.

It's a lot of money but worth it if you can find a much needed solution.   As per your post on the other thread in the Alternatives section, I think it's worth having a scan and to discuss an ablation.   Perhaps they can advise you on this during the consultation.  They might suggest a Mirena coil, have you tried one before?

I had fairly heavy bleeds when I was on a high dose of oestrogen and not only did it get me down, it made me feel really ill.  I found it difficult to cope with the bleeding as I got older and it wiped out all the benefits of the oestrogen in the end.  I also found that the bleeds triggered my migraines.

How soon can they give you an appointment?

[Nas]

Hi Mary,
Yes it is alot of money and money I don't really have to spend.

My GP wrote to gynae on Dec 23 to request that they escalate the scan.
I have also emailed them to ask whether they have received the letter as of yet.

Ideally, I wanted to have the scan and ablation on the NHS, but don't know if I can wait that long now.

It seems, that my womb keeps kicking off at any oestrogen that goes into my body, yet I am plagued with symptoms!

When you say you bled with high doses of oestrogen, how much do you mean?

My patch is 75, so medium dose , but even when I cut it down to 50, I was still getting pains.

Think I am going to have to revert to the patch, as that is the only thing that gets me out of the dark hole and just put up with the pains and bleeding until my scan.

Just an awful time, as I can't focus on anything.

The private hospital have appointments at the end of the month, but even that seems too long to wait now!

xx

[ElkWarning]

Hi Nas ... I've tried to read back through some of your threads. I have the following observations to this one:

Back to work tomorrow ... I feel ill - is there any possibility you can phone in sick? You appear to be unwell and running on fumes.

Feeling like you can't cope, miserable, and I sense anxiety and hopelessness - as you know, this is what happens when we're faced with long term problems and no apparent solutions. I can completely understand why it now seems as if there just isn't anymore 'fight' left in you. If at all possible, you kinda need some rest ...

I think I can sympathise with your situation. I suffered from chronic and acute bleeding for years. It wasn't until a friend lent me some of her emotional energy that I was finally able to 'fight my way to the front'. My GP organised an emergency next day referral to gynae for the scans, and indeed I did then go on to have an emergency ablation within the week, some cauterisation and a mirena coil fitted. Within a couple of weeks I stopped feeling as if I was dying (partly because I was also supported by fairly heavy duty tranqs for this) and within another couple of weeks I could see light at the end of the tunnel. It probably took six months for me to heal.

Point being, I was desperate and hopeless. It was the GP referring me for emergency procedures that did the trick.

Take care, and I hope you get the care you need.

Best

EK

[Nas]

Thanks Elk.
Well after one final blast at the GP today, word has got through to gynae, that I am desperate!

A scan will be arranged as an emergency this week. Thank god!!

You are right, I am running on empty, but as much as I was tempted to get myself signed off today, work ironically  gives me something to help me take my mind off things.

I will be requesting a womb ablation to begin with I think and take it from there. It all depends what they find this week. I’m hoping nothing bad!!

Thanks again x

[ElkWarning]

Hey Nas

Very pleased to hear this!  And also that you get respite at work.  It's great when it can take you outside of yourself a bit and you can breathe a version of 'fresh air'.

Fingers crossed for good news and a structured way forward within a reasonable timeline.  Keep us posted.

On a slightly related note, are you shoving the supplements down?  My old mum (who was a nurse) swore by Floradix.  I swear that was the only thing that kept me vertical some days.

All the best

EK

[Nas]

Tell you what Elk, coming off that patch for a month was a very scary experience! I had never felt such despair in my life! This means I cannot come off HRT for a while yet, that has been proven!

Joint aches, gone within 4 days, mood lifted a bit, urgency to wee, reduced dramatically..

The bleed will start within 2 weeks, so someone needs to sort my womb out and do some investigational work. Either that, or the progesterone needs changing.

What a long journey !

Xx
No word from the hospital today, so will chase tomorrow.

I am not a fan of supplements, but so have some ashwangandha tablets?

[Mary G]

That's good Nas, hopefully you will hear from them soon!

[ElkWarning]

I know what you mean about the HRT, it really set me on the right track. Unfortunately, it screwed up my blood pressure, so it had to be withdrawn. Funny you mention ashwangandha, because I went down the herbal route next and that was one of the components. Re: the Floradix, it's just because I was chronically anemic and it's an iron rich tonic.

I mean at this stage you need answers so you can make a plan. I still remember the incredible relief when this finally became a possibility for me. Sounds like you're on top of it. The worse is not knowing and feeling as if your life is disappearing.

[Hurdity]

Hi Nas

Sorry to hear about your problems - I haven't been on the forum for a few weeks so I don't know your story. I am gathering you have been bleeding on 75 mcg patches but not sure what prog you are using and the dose and where you are in menopause?

I agree that if you need an emergency scan due to abnormal bleeding then you absolutely should not have to pay for it so I am glad that this is being organised.

Re Floradix - tonic (not tablets) - I took this throughout my pregnancies when i was anaemic and still keep some in the fridge and every now and then have a glug. It shouldn't really be taken if you ont need iron as too much iron can be problematic ( hence my occasional glug) but it is great stuff I agree! I am not a great fan opf supplements either but I do have that around and also cod liver oil (pure) also for the odd swig (!) in the winter months just in case I am low on vit D - which I wasn't when I was measured several years back in March). If you are bleeding a lot then you Floradix might be a good thing to top up iron.

Hurdity x

[Nas]

Thanks Mary, nothing today, so will have to mither them
tomorrow now!

Elk, I may just get myself some of that floradix, sounds like it could be beneficial.

I do need answers and pronto. The familiar dull ache in my abdomen is lurking, but I’ve got to keep going now and push for the scan . I need to know what is going on in there and if necessary, an ablation or what ever is necessary to get me well. Of course, I’m thinking cancer ( particularly as the menopause nurse gave me a stark reminder today, saying  that ‘ a lot can change since your last clear hysteroscopy’ ! ) Great!
So until the scan, I can’t focus on a lot.

Will keep you posted.

[Nas]

Yes Hurdity, miserable bleeding on HRT patch 75 and 100mg utrogestan. I’m post menopausal by three plus years now.

I had a hysteroscopy last April which was clear but have continued to bleed on and off ever since.

Trying to push for a scan is like extracting teeth. Got to ring early tomorrow as the pain is brewing again, but I can’t remove the patch this time as all hell breaks loose hormonally!

Xx

[VictoryV]

Nas, I’m sorry that you’re dealing with this and the appalling way you’re being treated. I REALLY hope you get the scan tomorrow.
Sending hugs.
V.xx

[Nas]

Thanks Victoria,
Getting no where fast!

Rang gynae again, no answer, just keep leaving messages.

Convinced I’ve got cancer now!

Must I really pay £550 for private treatment?? 😥😥

[ElkWarning]

Oh ... Sorry, Nas, just swung by to check in ... Pandemic innit, people not answering phones, patients blocked from physical contact, many horror stories in the papers about people who've gone undiagnosed (I assume this is what's playing on your mind) ...

Could PALS help?

I am sorry this is happening.