Hi, sorry this may be long, looking for someone with experience of HRT with adenomyosis.
The gp I spoke to to start HRT was lovely, and thorough, and ordered blood tests before I started.the tests showed a higher than normal result which could indicate ovarian cancer so I had to have an ultrasound. I had had painful periods since puberty ( think vomiting, dizziness, passing out each month), only eased by the pill, and then having my children. So I was surprised when the doctor said I had adenomyosis as I was having no symptoms at all anymore.
I am perimenopausal, and started 0.5 sandrena gel and 2 utrogestan for days 14-26. I have also now just finished my initial two weeks of vagifem.
Since starting it has made a huge difference, my constant hot flushes have gone, my night sweats have gone and so I can sleep through the night, and my mood swings have settled considerably - my kids are happy to be getting hugs rather than a tongue bashing, so it’s brilluant and I love it. Except...
The abdominal pain is awful. It’s not connected to the utrogestan as even though that comes and goes, the pain does not follow. Sometimes I cannot stand properly and I have had to go to bed in the day or cut short days out.
I am just coming to the end of my oestrogen only phase, as well as the two weeks first phase of vagifem, and I am only getting through the day with ibuprofen.
I have been reading up and have read that oestrogen can aggravate adenomyosis, so am wondering if anyone else has experienced this, and how the symptoms presented as I don’t really know what is going on so am trying to figure it out. It may be nothing to do with the adenomyosis, and I really don’t want to give up HRT so am hoping it will settle tomorrow when I start the utrogestan phase again, and maybe better next month when the vagifem is less frequent ( although I had it before the vagifem)
I have been through the search and read a lot of posts on adenomyosis but none were covering pain unrelated to periods.
You deserve a gold star if you’ve made it this far so thank you